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December 15, 2024 43 mins

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In this episode, Steve talks to Lelainia Lloyd who was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in 2012, after initially being misdiagnosed with MS in 2007. As Lelainia describes it, her immune system has gone rogue. This disability can lead to blindness and paralyses. In spite of her physical struggles, Lelainia is a passionate advocate who writes, did a podcast, travels, does public speaking and volunteering. But her hobby of wheelchair curling is what brings her immense joy. She practices advocacy out of necessity. 

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