Episode Transcript
Available transcripts are automatically generated. Complete accuracy is not guaranteed.
(00:00):
Hey Seekers, just a heads up.
This episode contains open and honest conversations about death, the dying process, and end of life care.
We discuss real life examples of death, including emotional and practical aspects of what happens when someone dies.
While these topics are shared with care and compassion, there may be sensitive or triggering for some listeners, please take care as you listen and feel free to pause or return when you're ready.
(00:24):
Hey there, fellow Seekers, and welcome to the Hang Woman Podcast.
I'm your host, Julienne Irons.
And I'm gonna be honest, this month's perspective shift is gonna be a tough one because we're diving into death, dying in the afterlife.
We have an incredible lineup of guests, including Joél Simone Maldonado, AKA, the grave woman.
Joél is a licensed mortician who specializes in black bodies, and she's gonna walk us through what happens to our bodies after we die.
(00:51):
And a lovely Rachel Erin Basio, a medium and spiritual healer who will help us answer the question of, is there really an afterlife? And if so, what's it like? Y'all, these women are so absolutely fascinating and they offer such valuable perspective shifting insight you will not wanna miss.
But first we're gonna talk about the thing that scares me the most, and that is the dying process.
(01:14):
We're gonna find out what it's like, how to prepare for it, and how we can be less afraid of it, if that's even possible.
So as I was doing my research for this episode, I learned that in nearly every indigenous culture, someone in the community held space for the dying.
Someone who knew how to anoint the body, soothe the spirit, and guide the living through grief.
But of course, colonization, industrialization, and the medicalization of death stripped that away, and that's where the modern death doula comes in.
(01:41):
The term death doula didn't actually enter the public vocabulary until around 2003, but the role, it's ancient.
This week, we're gonna ground ourselves in the practical side of death with Kim Stravers, a death midwife and fierce advocate for reclaiming death as a sacred human and deeply personal transition.
She's here to walk us through what death care can look like.
When instead of fearing it, we actually learn to embrace it.
(02:04):
Welcome to the Hanged Woman Podcast, where perspective is power.
Let's get into it.
Hey, fellow Seekers.
I'm taking a quick pause from the show to share something really close to my heart.
(02:25):
And honestly, the only reason you're even listening to this podcast right now, it's 3 of Cups.
My sisters and I created 3 of Cups, an Irons Sister's mission of love as a space for healing, beauty, growth, and community because we believe life is meant to be full, rich, and abundant in every way.
We offer all kinds of ways to support you, like energy healing, heart-centered art, plant-based medicinals, even marketing that will help enhance your brand's presence in the world.
(02:50):
Because wherever you are in your journey, we wanna help you feel seen, supported, and empowered.
So if you're looking for something to help fill your cup in whatever way you need, come join us.
Follow us on Instagram @3ofCupsHealing, or explore all of our offerings at 3ofCupsHealing.com.
Because Seeker your cup deserves to be full.
And now back to the episode.
(03:18):
Just a heads up guys, before we start the episode, this is gonna be part one of a perspective shift with Kim Stravers.
We're gonna have part two delivered to you guys next week.
Enjoy.
Kim, welcome to the show.
Thank you for having me on.
Delight to be with you this morning.
I'm so happy to talk to you and sit down with you.
(03:40):
You are allowing a dream to come true for me, so thank you.
Oh my goodness.
That just fills all the chambers of my heart.
Thank you for saying so.
I'm really inspired and feeling very invigorated by the conversation that we had when we met and started to talk about having this conversation in a more developed way.
Yeah.
So I am very happy to be able to contribute my lived experience, my knowledge, my perspective to this topic.
(04:05):
Amazing.
So let's just dive right in.
I know there's a couple of different ways that we talk about end of life caregivers.
I have death doula, I have death midwife.
Can you talk a little bit about the differences between the terms of your job? Absolutely.
So I think it really comes down to what the individual practitioner prefers for themself and then how their community may wish to describe them.
(04:34):
The variance comes from.
I think historically, we have been companioning people at end of life since the moment humans, entered the scene.
Yeah.
So how we have perceived that role how involved or uninvolved people are in terms of working with people to.
Manage the last stage of their existence as a human on this planet can differ from culture to culture.
(05:00):
And so I think it really just comes down to, as all things do, language being so malleable and so evolutionary that in an organic way it just arises that we have different terms for different kinds of things.
So the same way that we might say that someone in one community is a healer and in another community they have a title like Doctor for example.
(05:22):
I think the same kind of principle applies for death workers.
You might hear Death Midwife, you might hear Soul Companion, you might hear guide, you might hear death tender, you might hear death doula, or you might hear instead of death, end of life.
So I think that really is one of the more distinguishing features between the way that people might perceive what it is that we're doing and what is the space within which we're working.
(05:49):
So folks who are.
Maybe more predisposed to calling themselves, say a death doula or a death midwife might be coming from a place of focusing more on the moment of transition and things coming to a close sort of at that moment.
So it's almost for me, the way that I perceive it as like folks who are calling themselves deaf doulas, deaf midwives, are looking toward the moment of conclusion and people who call themselves end of life doulas, for example, might be looking more from a perspective of the space before.
(06:27):
That moment arrives.
We work in both, we work both sides of the veil both sides of that point of transition.
But I think it's very interesting to consider the implications of the language that we choose to describe the work that we do and the role that we have.
Yeah, absolutely.
So can you just walk us through what a death doula does? How does your work support the dying and their loved ones? Absolutely.
(06:51):
So the work of a death doula traditionally, and it will of course differ from practitioner to practitioner and community to community, slightly depending on individual and community needs, values, perspectives but generally we would describe ourselves as non-medical folks who accompany people through the process of dying and addressing death.
(07:15):
So that means maybe some.
Aspects that incorporate some spirituality, some grappling with emotions, relationships, social connections.
A little bit about maybe what is going to happen to the body physiologically as we get closer to death depending on the circumstances that surround it.
Maybe what you want to think about in terms of body disposition or services that you might wish to have a hand in planning for after your demise.
(07:42):
We might sometimes call that remembrance projects or legacy work.
When we extend that into things like I'd really love it if my golf buddies would put on an annual tournament in my name after I die to raise money for colon cancer research.
Or I would like to gift all of the recipes that I have.
Collected throughout the course of my lifetime and have them bound into a family heirloom, passed down a bowl, book that my, my kids, my grandkids, my nieces, my nephews, my friends, my neighbors, whomever can then, bring that into their homes and remember me by, looking at my handwriting on the page and cooking the things that I liked to cook for and with them.
(08:20):
So we really provide support that is holistic.
And as one of my teachers, Angie Buchanan, who is the woman through whom I received my death midwifery certification, she likes to say that death midwives are the water that flows between the boulders that are the medical side of dying and the funeral industry.
(08:44):
So we are really there to keep things moving continuously.
To be navigating around what is already present.
So we're not trying to move those boulders.
We're not trying to also remove those boulders, and we are not trying to be those boulders, but we are really there to help, to smooth things out, is how I like to think about it.
(09:06):
We are complimentary to what hospice care provides and palliative care provides.
We are complimentary to what say a funeral arranger or a funeral director or a pre-need person might provide in terms of say, services.
But we are not looking to replace or overrule any of the decisions or opportunities for decision making or realms of experience or approach that come from these very well established lanes that are also extremely important in people's lives as they're facing their end.
(09:39):
Do you call yourself a death doula or a death midwife? I call myself a death midwife, but I also answer to death doula.
I also answer to end of life doula.
I answer to whatever you would like to call me.
None of the terms that I have seen in this space make me feel negatively.
So I'm open to all of them.
But I do have death midwife in my website.
(10:02):
I have it on my business card.
It's what I tend to call myself in day to day.
But all terms are welcome.
So what originally drew you to death Work To have this type of job, it doesn't just come from nowhere.
What drew to death work is complex as I believe it is for most people I've encountered in this space.
For me, I did not grow up as a person who thought she would become involved.
(10:26):
In death in any significant way other than experiencing it myself and attending say, the funerals of people I love who passed on before me.
I didn't grow up thinking like I'm gonna become a mortician.
I didn't think I was gonna become a funeral director.
I didn't think I was gonna be, working as a celebrant, any of these things.
But then death started to arrive in a really loud way around 2017.
(10:51):
So in January of 2017, my younger brother, Michael, my only sibling, was killed in a car accident.
That was, as you can imagine, a shock and unexpected and quite tragic.
We were extraordinarily close.
So this was not a sibling from whom I was estranged or had strained relationship.
(11:11):
This was my go-to one of my.
Closest people.
I had very similar stories with that.
My sister passed at 35 from a brain aneurysm, so I definitely understand the shock of it.
Yeah.
And my brother was 36, so they were even very close in age.
So for me, it was not just the cold water in the face shock of now this person that I have, I had counted on being in my life until the end of it would no longer be able to be present with me in the ways I had become accustomed to.
(11:45):
It wasn't just the grief, it wasn't just the anguish.
It wasn't just, and I say just with air quotes around it because none of those things are to be diminished.
It arrived in a way that I didn't realize it at the time, but started to awaken something in me that had already been growing, I think from the time I was a small child.
And that was this.
(12:07):
What felt to me at the time, strange peace and calm around the idea of death and the struggle that people who survive, someone who has died experience in its aftermath.
I found myself in the subsequent years, suddenly being inexplicably drawn to read more about death and dying.
(12:32):
I remember reading from Here to Eternity.
There's that great book by Kaitlyn Dowdy.
She's so extraordinary and that book really gripped me.
It was this, she went on this.
For folks who haven't read that book, she went on this really remarkable journey throughout the world to just study what death looks like in cultures all over the globe.
So she had the experience of being a mortician in Los Angeles, but she was seeking how people engage with death and honor their dead and also prepare the bodies of their dead in other continents, in other countries in places that were unfamiliar to her.
(13:09):
And it really opened my eyes to this incredible breadth and depth of hair and honor that people have been participating in and passing down, through their families and through their communities and their cultures for millennia.
It was so striking to me the variance, all of the different ways that you can do this.
(13:34):
So I remember reading that and I believe it was probably about 2018 during this time also, my best friend Melissa had been diagnosed with liver cancer.
We were navigating this together.
She had been a dear friend of mine for something like 20 years, and we had traveled together.
We had for brief periods of time lived together.
(13:55):
I knew her family very well.
We were pretty well family.
I would consider her, a sister to me.
So this was another big shock of death approaching from a different direction.
So I had lost grandparents as a child.
I had experienced death by suicide of a dear friend.
(14:15):
I had experienced death by motor vehicle accident of a friend when I was in high school.
Throughout the course of my life as a younger person, I had definitely been around death.
I had attended wakes and funerals and masses and burials and celebrations of life and all of these things.
But I had yet to encounter someone who was my age, who was diagnosed with a life limiting illness.
(14:37):
So walking beside her on this path to help her.
Understand for herself what was coming and how she wanted to prepare for it, I think really woke up in me to an even bigger degree, my capacity to be with the chaos and remain calm and feel compelled to give what I could give in service to the person who would be asking me for my assistance.
(15:04):
So it really was a transformative experience.
Like I remember she had undergone a routine stent replacement in the hospital in the fall of 2019, and she suffered a microscopic, imperceptible at the time, Nick, to her hepatic artery in surgery.
(15:27):
So it wasn't discovered until several hours later when she had gone home to her dad's place that she was bleeding internally to it Startling.
Volume.
So they rushed her down to the hospital and I got the call.
She had been intubated.
She had been, put under medically induced coma.
They were trying their best to stop the hemorrhaging, and they were thus far unsuccessful.
(15:50):
So I got the call from her family essentially saying, can you come? You should come.
We're not sure she's gonna survive this.
So I threw three days worth of clothes and my toothbrush into my truck.
And I drove from Phoenix to Los Angeles, and as soon as I stepped into the hospital room with her, it was very small and it was packed with dear friends and her family and medical professionals.
(16:15):
And I stepped in there and it felt so thick with just worry, concern, fear, confusion, disorientation grief, anger, frustration, all of these intense emotions and helplessness, a lot of helplessness.
And I just remember walking in there and something in me saying, there's a place for you, or that I knew I could trust.
(16:42):
What was coming up for me was that she needed an anchor and that maybe I could be this anchor.
So I thought I would stay a few days and say goodbye to my beloved friend, but she was able to recover from this incident and I wound up staying for five weeks at her family's request.
And then when we were able to bring her outta the anesthesia, it was also her request that I stayed with her.
(17:06):
So in the space of those five weeks, we.
Transitioned her out of the anesthesia.
We got her stabilized in the hospital.
We prepared her for return home to her family.
And then while I was staying with her there, I was doing things like helping her make follow-up doctor's appointments and driving her for blood work and grocery shopping for her, helping her with some body care, cooking for her, and just being with her, just lots of conversation and trying to help her get her mind around what does this mean? What are the implications of this big shift in your health status? How much mirror is death now than it was before? And what do you wanna do to plan for that? How do you wanna be here in your dad's house? This is where you're gonna be now for the, at least the next several months.
(17:53):
What can we do to make this something that feels optimal to you? How can you be comfortable here while still recognizing that it's your dad's home? How do we think about things like.
The bigger picture paperwork.
Did you get your will finished? Did you get your, is how do you feel now about the choices you've made in your advanced medical directive? Should we revisit those choices? What do you wanna do for fun? What's important to you? We forget that, right? We forget the fun.
(18:29):
Like we can still have fun.
Yeah.
It's so critical.
That is so fascinating to me.
'cause it's like we have to find joy.
We can't just be one dimensional.
There has to be like fun and laughter.
I remember that when I was in the room with my sister and she was, brain dead and there were still some moments of laughter.
Yes.
(18:50):
Yeah.
It's natural.
I think, particularly what I learned through my experience with Melissa, because she was such a.
Vibrant person.
She traveled, she did what she wanted to do.
She was so bold and she was so passionate about the life that had been given to her and just milking it.
She was a never say no kind of person.
(19:12):
She would, fly to France to go see Anderson P She would go with friends on a trip to Italy.
She would go visit visit her brother in Asia.
She would take a trip with me to Iceland.
We would, she would just do whatever she felt called to do.
She would still try to be in Jackson Hole every winter to be snowboarding 'cause that was so important to her.
And that was a home for her for decades.
(19:32):
So she really was such a squeeze the juice out of life person that it was a good reminder to me that doesn't have to go away when someone is contemplating the end, or the end is starting to approach a lot faster than we thought that it would.
In returning home from the experience I had with her, I was with my therapist and I have been in action and adventure sports media for the last, it's about 25 years now.
(19:57):
And the media landscape has changed dramatically in the last 10, 15 years, particularly with the advent of social media and now how people build reputations as journalists and what seems to be important and how media is crafted to exist in this new environment in which we're consuming it.
I was starting to feel less relevant, less excited about it, still wanted to be in it, but was recognizing a sea change was coming from me and I didn't know where I was gonna go and I didn't know what I was gonna do, and I had.
(20:27):
At some point taken out my phone and had begun to type into the notes app, just like full on midlife crisis, by the way.
I was in my early forties.
So really just who am I, what's important to me? What do, what is my life like now? And I was really struggling to come up with anything that felt definite and concrete.
(20:48):
But helping people was one of the things on the list.
And when I went to go see my therapist and I was talking with this about her and also telling her about the experience I had with Melissa, I almost didn't say it, but I'm so glad I did.
I looked at her and I said, listen, I know there's a such thing as a life coach.
Is there a such thing as an end of life coach? And she just smiled and she got goosebumps.
(21:10):
And she said, hell yes.
And she pushed me into this, universe of training programs and webinars and, exploration opportunities around what it could mean to be companioning somebody at the end of life to help them prepare in the same way that a life coach is.
Like, where do you wanna go? Who are you? Where do you wanna be? How do we resource you? Those kinds of things.
(21:34):
So similarly in some regards the work of a doula is, just at the other end of that spectrum, the same way that we say that we have birth doulas on one end and we have death doulas on the other.
We are providing similar types of care on either of the bookends of our lives.
So that was really the genesis of me stepping forward and exploring what it might be to do this for people outside of my personal circle and expand it into my community.
(21:58):
Wow, that is that's so fascinating.
So let's talk about.
The death experience because I hear the concept of a good death versus a bad death.
Is there such thing as a good death? Is there such thing as a bad death? Or how are we supposed to look at the end of our life in that way? That's such a, that's such an interesting question to me because I think the answer is different for everyone.
(22:25):
And if there's anything a doula does it is to support the self-determination and autonomy of the dying person to define that for themselves.
So I don't think that there is a categorical definition of a good death or categorical definition of a bad death.
It's a shades of gray situation.
However, I like to tell people that not only do I not know what a good death is for you.
(22:51):
Even if you describe it to me, I can't guarantee that's what you're gonna experience.
So I try to move away from value-based language when I talk about someone's dying process and the experience that others around them are having in that context.
So rather it be good or bad, because those terms are so often used to evaluate our performance.
(23:14):
And I think the last thing folks at end of life need is another bar to clear.
I prefer to just have conversations that get to what's important to you, what feels like the right move for you? What honors your values, your morals, your relationships, how do we move toward what would feel best for you? While recognizing that frankly, there are only so many things that over which we have any control at end of life, and even then those things can go sideways.
(23:45):
Or suddenly become inaccessible to us because the body is so unpredictable in so many ways.
We know we're gonna die.
We don't know when prognosis are given.
Let's say to somebody who has a life limiting illness, they change.
People are reevaluated for hospice eligibility every six months in that model of care.
(24:06):
It's not like your doctor says you've got six months and then you're dead in six months.
Sometimes you're dead in six weeks, sometimes you're dead in six years.
It really is so variable.
.2727273So I think that rather than saying someone can or should have a good death, I try to emphasize stability, comfort, quality, joy, connection.
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You know what is the essence of your life? We often like to say that the way that someone has lived their life is the way that they will die.
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So for a quick example, if you were the kind of person who's very private, you are likely not gonna be wanting to throw the doors open and have everybody in the neighborhood come in and say they're goodbyes to you at the end.
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If you're a private person, you're a private person, you'll stay that way most likely through the end.
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People do have dynamic changes in their personalities, revelations that cause them to behave differently, but it's less frequent, than somebody just really continuing who they are in a really fundamental way tends to just carry them through all the way to the exhalation of the final breath.
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So I think really when we talk about planning, trying to anticipate what it's gonna be like, there are so many ways that we can have conversations in a non-medical way as well as for the medical folks in the medical realm about what can we do to achieve your.
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Goals of care.
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Goals of care is something that's used in the more medicalized version of deaf care, but I think it's still applicable to, folks who are working with doulas.
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It's what do you wanna achieve when you're in the room, in your final days and hours? Are you the kind of person who wants the blinds opened at sunrise every morning? Because it's really important for you to have that first light come in.
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Are you the kind of person who slept till noon every day and you have blackout curtains and you'd rather be in a darker room? What gives you more ease? What makes you feel most you? What increases your comfort and your stability? I think that the more we can offer options for people to be soothing for themselves, the things that satisfy those elements.
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Then we can perhaps create a path of more ease into the transition.
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That doesn't mean the transition's gonna be easy, death can be very painful and very messy, but we can do what we can to smooth the road as best that we can.
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And so that's achieved, can change, moment to moment, day to day, depending on what is happening with the dying person.
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So if you are a person that's not necessarily been diagnosed with something and you're not given a time span, you're just going about living your life.
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We have, wills that are mainstream, but are there any other things that we should be doing to prepare for our deaths, whether it's a sudden death or like a illness or something like that? So many things that are available to us that we don't talk about as a culture in the United States because we're so afraid of death.
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We have been acculturated to think that it is to be avoided at all costs.
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Look at how we have become acculturated to perceive aging.
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It's not allowed, you're not allowed to get old, you're not allowed to have wrinkles.
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You're not allowed to gain weight or get gray hair or slow down, none of those things, right? That's like unacceptable.
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We have entire industries dedicated to anti-aging and that says a lot about what we think about death and dying death is something that, mysteriously happens and we don't think about it until we absolutely have to.
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And even then we tend to freeze, I think, in a lot of ways and look to third parties to tell us what to do because we haven't done the work of investigating it for ourselves.
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But we know.
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In some ways, I think what we would want for ourselves, so from a basic practical standpoint, you have your will, which deals with your estate.
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So any of your possessions, your cash, your material items, real estate, those kinds of things.
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Investment accounts, who gets the stuff is your will.
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And then there is what is sometimes called confusingly a living will, which is your advanced medical directive.
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Those are the decisions that you make about your physical body and life sustaining treatments that you do or don't want in the event that you are unable to make those choices for yourself.
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This is where you elect a healthcare, a durable healthcare power of attorney.
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So that's a person who will make decisions on your behalf should you become incapacitated.
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You also will elect a financial power of attorney.
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So who's gonna take care of your, your money affairs if you can no longer advocate for yourself.
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And in some states, like here in Arizona, we also have a durable mental healthcare power of attorney, so that if you are determined to be incapable of making decisions for yourself for a mental health reason, than somebody steps in and makes those decisions on your behalf.
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So every state will be different in the types of paperwork that they consider to be that packet of living will, some states call them a living will, Arizona does, other states do not.
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From a paperwork perspective the big elections are should I become unable to advocate for myself today.
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What choices would I want to make? Would I want CPR? Would I want to be intubated? Would I want artificial hydration, artificial nutrition? So those kinds of interventions, it's really based on what you want right now in this moment.
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These are organic documents and they will change over time.
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If you are diagnosed with a terminal illness you may decide at a certain point, I no longer want to have CPR, I no longer want to have artificial nutrition or hydration, or I want it up until point X that I will describe to you at that point you are to remove me from life sustaining treatment.
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So these are decisions that will change depending on what is happening with our lives and our bodies over the course of time.
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But you can start this the second that you are, in the United States, if you are decisional, meaning if you are, mentally and developmentally well, and you are decisional and you are responsible for your own body.
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When you turn 18, you should start making these decisions for yourself because we never know, as you and I both know, my brother didn't have any of this.
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He was 36.
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He is on top of the world, he owned a home.
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He was successful in his businesses.
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He had relationships.
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He had friendships.
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He had this very full life.
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Death was the last thing on his mind.
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But then he died and no one expected it.
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And so while we didn't have to make any of the medical decisions, we still had to figure out disposition.
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We had to figure out what would he have wanted for a funeral? Would he have wanted a funeral mass? Would he want us to enter his ashes? Would we want to sprinkle them somewhere? We don't really know.
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00:31:04,640.9090909 --> 00:31:15,420.9090909
What happens to his home, to his motorcycle, to his truck, to his investments? There is no will, so we had to go through probate, which is lengthy and expensive.
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Having these decisions made not only can give you the opportunity to contemplate your mortality, which I think is a really lovely way to just be living your life as a daily practice, just a moment every day to remember that you too shall die.
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00:31:29,925.9090909 --> 00:31:39,885.9090909
What does that mean for you? How does that change the way that you wake up in the morning? But it also can relieve some of the stress and the burden that people fear leaving for their families when they die.
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It's one way to take some stuff off their plate so they don't have to guess, because that guessing can create its own type of anguish.
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00:31:47,565.9090909 --> 00:31:53,985.9090909
It really can complicate the grief when you have no idea, because you've never talked about it, what somebody would want for themselves.
286
00:31:55,575.9090909 --> 00:32:23,260.9090909
And then everything that goes around that, that can be maybe a little bit softer, right? Do you wanna die at home? If you're, if it's an option for you, would you like to die at home? Or would you prefer to go into some kind of like an assisted living situation? Some people want to be removed from their home and they say I don't wanna die in my home because I don't want my partner to wake up in the house every day in the same place where I died.
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Or I don't wanna burden my children with my full-time care when I become in feeble.
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So I really feel strongly about going into assisted living.
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Other people are like, I was born in this house.
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I'm gonna die in this house.
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00:32:35,860.9090909 --> 00:32:37,300.9090909
People can come to take care of me.
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00:32:37,630.9090909 --> 00:32:39,310.9090909
I'm staying put, you move around me.
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00:32:40,310.9090909 --> 00:32:41,540.9090909
And all choices are valid.
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It's just what you want for yourself.
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00:32:44,480.9090909 --> 00:32:47,570.9090909
And then from there it just expands and gets more detailed.
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00:32:47,570.9090909 --> 00:33:04,860.9090909
And it's do you want your pet in the room? Is there anybody you don't want in the room? Is it important for you to be remembered in a particular way, whether that's a certain type of service, an annual contribution to a research fund, or a community organization.
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00:33:05,430.9090909 --> 00:33:10,740.9090909
Something that you want people to gather and do in your memory every year, even if it's just having a party.
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Do you wanna have a living funeral? Meaning do you wanna have a funeral that you get to be with and experience while you're alive? Or do you want that to just be the responsibility of the people who survive you and whatever serves them? These are all things you can begin to think about at any time in your life.
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The paperwork stuff, I feel that the sooner you can get that completed, you can always update it, but at least that part's done.
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00:33:36,720.9090909 --> 00:33:39,660.9090909
And then the more expansive thinking around death and dying.
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It's not easy.
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It's available to you.
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00:33:44,265.9090909 --> 00:34:12,485.9090909
And there are people like death doulas, who can do an extraordinary job of creating a space that feels non-judgmental and secure enough for you to say out loud some things that might be difficult for you to say at this point to other people and help you figure out, or help you to arrive in a place where you feel that you can then vocalize these desires to your beloveds, because that's the necessary step, right? It's one thing to know what you want for yourself.
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It's another thing entirely to announce that to people and say, please do what I wish, not what you wish.
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It's really hard because there's sometimes conflict.
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Okay.
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00:34:25,325.9090909 --> 00:34:28,535.9090909
Seekers, I think this is a really great place to take a break.
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00:34:28,805.9090909 --> 00:34:30,95.9090909
We'll be right back with the episode.
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00:34:31,145.9090909 --> 00:34:31,985.9090909
Hey Seekers.
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00:34:32,525.9090909 --> 00:34:35,495.9090909
So healing isn't always pretty, but you don't have to do it alone.
311
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And now back to the episode.
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00:35:12,765.9090909 --> 00:35:23,925.9090909
I can't, as you're talking, I can't help feeling anxiety come up for me in contemplating all of these things, like it feels like a heavy task to do.
318
00:35:23,955.9090909 --> 00:35:32,565.9090909
That's also very scary to contemplate what do I want when I die, and I can understand why it's so necessary.
319
00:35:34,185.9090909 --> 00:35:36,195.9090909
I guess this is gonna be a two part question.
320
00:35:36,255.9090909 --> 00:35:57,805.9090909
The first part is how do we even begin that process and then how do we let go of the fear of it? 'cause it's, it, I'm literally feeling like I can feel my insides closing up and I know that I'm not alone in that, Not by far, so many folks share this death anxiety.
321
00:35:58,105.9090909 --> 00:36:00,445.9090909
So firstly, if you'd like to take a big breath together.
322
00:36:00,475.9090909 --> 00:36:00,985.9090909
Yes.
323
00:36:01,765.9090909 --> 00:36:02,455.9090909
Okay.
324
00:36:02,725.9090909 --> 00:36:03,355.9090909
In and out.
325
00:36:10,405.9090909 --> 00:36:10,825.9090909
Yes.
326
00:36:10,855.9090909 --> 00:36:11,635.9090909
Goosebumps.
327
00:36:11,735.9090909 --> 00:36:14,885.9090909
Your body's telling you something by giving you an anxious response.
328
00:36:15,585.9090909 --> 00:36:18,945.9090909
It's telling you that this is gonna be difficult and there's some stuff to grapple with.
329
00:36:20,295.9090909 --> 00:36:20,895.9090909
That's okay.
330
00:36:21,225.9090909 --> 00:36:21,885.9090909
That's normal.
331
00:36:22,255.9090909 --> 00:36:27,655.9090909
Even the people who appear to be the most involved with death and dying or the best adjusted to it.
332
00:36:27,755.9090909 --> 00:36:32,315.9090909
If you think I'm not on some level afraid of the unknown, you are wrong.
333
00:36:33,245.9090909 --> 00:36:35,495.9090909
I have trepidations around my own death.
334
00:36:35,525.9090909 --> 00:36:36,455.9090909
Of course.
335
00:36:36,505.9090909 --> 00:36:44,725.9090909
Few people view death as something that they are looking at with zero reservations.
336
00:36:45,185.9090909 --> 00:36:48,365.9090909
Like it's a field full of flowers that they're just gonna, go peacefully into the night.
337
00:36:50,375.9090909 --> 00:36:54,645.9090909
Part of that, I think is acculturation, part of it I think is our media representations of death and dying.
338
00:36:54,805.9090909 --> 00:36:59,855.9090909
There are a lot of factors our family heritage around that, our faith traditions around that.
339
00:37:00,15.9090909 --> 00:37:01,605.9090909
Our own personal experiences.
340
00:37:01,605.9090909 --> 00:37:09,985.9090909
I like to say that every death that we have witnessed informs the next step that we will experience, and ultimately this, some of those comes home to roost when it is our turn.
341
00:37:10,345.9090909 --> 00:37:19,315.9090909
So the way that we perceive and have experienced death and dying up to that point really plays a key role, I think, in how we are experiencing it for ourselves in that moment.
342
00:37:20,575.9090909 --> 00:37:27,35.9090909
But in terms of how do you begin this process and then how do you come to grips with this? I think that they're interrelated.
343
00:37:27,305.9090909 --> 00:37:35,945.9090909
So I think that this kind of work, you can titrate it depending on your own comfort or the other side of that anxiety level.
344
00:37:37,505.9090909 --> 00:37:39,335.9090909
For me, the.
345
00:37:39,695.9090909 --> 00:37:55,705.9090909
Most valuable practice I have to continue to increase my comfort and familiarity with death and dying is to create a more expansive definition of death, a more expansive definition of dying.
346
00:37:56,125.9090909 --> 00:38:09,175.9090909
So rather than limiting it to the last moments of someone you love or yourself dying, and then that's the end of their life and it really gets attached to the grief experience.
347
00:38:10,135.9090909 --> 00:38:16,345.9090909
For me, death is one of an infinite number of transitions.
348
00:38:18,145.9090909 --> 00:38:33,955.9090909
You're crossing a threshold, you're changing state, you're moving from here to there, and we experience that and we have the opportunity to witness that every single day if we start to pay attention and look for those things.
349
00:38:34,540.9090909 --> 00:38:43,940.9090909
So for me, my personal practice as frequently as I can, I aim for at least once a week more if the weather's good and I can to walk the land.
350
00:38:43,970.9090909 --> 00:38:46,940.9090909
There's a trail that's near my house that I love to visit.
351
00:38:47,600.9090909 --> 00:38:50,40.9090909
It's walkable in about 45 minutes.
352
00:38:50,40.9090909 --> 00:38:52,10.9090909
So it's a, it's a reasonably short loop.
353
00:38:52,490.9090909 --> 00:38:54,350.9090909
It's not particularly strenuous.
354
00:38:54,650.9090909 --> 00:38:59,960.9090909
It's in a mountain preserved, so it's beautiful and I've been walking it for years, so I know it intimately.
355
00:39:00,650.9090909 --> 00:39:04,880.9090909
And when I go out to walk the land, I connect with what's happening seasonally.
356
00:39:05,750.9090909 --> 00:39:09,290.9090909
I connect with what's happening weekly, monthly, daily.
357
00:39:10,340.9090909 --> 00:39:14,840.9090909
So I'm noticing because I pass the same uas every time I go out on that trail.
358
00:39:14,930.9090909 --> 00:39:25,280.9090909
Right now it's May the uas are budding and they're starting to bloom, but a couple of months ago, they just look like the Soros that you see represented.
359
00:39:25,310.9090909 --> 00:39:30,520.9090909
Most of the time when you think of a cactus, no flowers, just these big green shapes.
360
00:39:31,360.9090909 --> 00:39:36,250.9090909
But they bloom, and then those blooms turn black and they die and they fall to the ground.
361
00:39:37,390.9090909 --> 00:39:38,230.9090909
That's transition.
362
00:39:38,290.9090909 --> 00:39:39,880.9090909
You are watching dying.
363
00:39:40,270.9090909 --> 00:39:44,650.9090909
You're watching birth life, dying and death in plant life.
364
00:39:45,160.9090909 --> 00:39:46,450.9090909
You see it in animals.
365
00:39:46,450.9090909 --> 00:39:55,930.9090909
Anytime that you kill a fly in the house, you're participating in the dying experience, you're witnessing a death, you're causing it true, but you're in death, right? Yeah.
366
00:39:56,110.9090909 --> 00:39:57,610.9090909
Our cells turn over every day.
367
00:39:57,910.9090909 --> 00:40:02,360.9090909
So even in an internal way, we're experiencing transition continually.
368
00:40:02,580.9090909 --> 00:40:08,130.9090909
The synapses and our brains, right? We're creating new neural connections and other neural connections are breaking apart.
369
00:40:08,830.9090909 --> 00:40:15,100.9090909
From an internal systems perspective, for people who might be a little bit more, let's say, like scientifically minded, that's one way to go about it.
370
00:40:15,730.9090909 --> 00:40:16,720.9090909
Or to think of it like.
371
00:40:17,785.9090909 --> 00:40:20,375.9090909
Water can be, a solid, a liquid and a gas.
372
00:40:20,435.9090909 --> 00:40:39,465.9090909
It's just a state change, right? So that's one way to think about transitions and for people who are more nature minded, going out and observing the seasonal patterns even keying in on say like one particular bush, right? Even a rock, maybe at certain times of the year you're seeing lichen or moss on that rock.
373
00:40:40,185.9090909 --> 00:40:48,255.9090909
And then at other times of the year, it's changing shape, color, size, or dying off completely, right? So just looking for the changes and just remembering that change is everywhere.
374
00:40:48,255.9090909 --> 00:40:49,335.9090909
Change is constant.
375
00:40:49,935.9090909 --> 00:40:51,615.9090909
Change is transition.
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00:40:51,615.9090909 --> 00:40:52,605.9090909
Transition is death.
377
00:40:52,815.9090909 --> 00:40:53,805.9090909
Death is transition.
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00:40:54,885.9090909 --> 00:41:09,545.9090909
Whether or not you believe that we are transitioning into another realm, a reincarnation into a different life no matter what your feelings or thoughts are about the barrier, there is a threshold that we cross from being a living body to a dead body.
379
00:41:10,760.9090909 --> 00:41:25,650.9090909
So I think if we diffuse the concept of dying into the world around us, that can help us realize that firstly, this is a universal experience, so it's not all on your individual shoulders.
380
00:41:26,760.9090909 --> 00:41:32,470.9090909
And that is a natural experience and it's also an unstoppable experience.
381
00:41:32,765.9090909 --> 00:41:37,975.9090909
And there's no way, no matter how hard you grip onto this life, there's no way to hold onto it forever.
382
00:41:38,245.9090909 --> 00:41:45,145.9090909
So relaxing the grip and realizing that you are in perpetual motion towards your end, and that's okay.
383
00:41:45,505.9090909 --> 00:41:53,755.9090909
So just going back to the practical aspect of preparing for the dying process.
384
00:41:54,790.9090909 --> 00:42:11,465.9090909
How do we start the process? How do we start the preparation? Like you talked about what we need to do, but how do we even what's step one? What do, how do we do to help me? Okay.
385
00:42:12,645.9090909 --> 00:42:16,580.9090909
So often it is your secretary of state.
386
00:42:16,670.9090909 --> 00:42:22,90.9090909
You can either go to your state's, Department of Health Services or the Secretary of State's office.
387
00:42:22,210.9090909 --> 00:42:38,240.9090909
Or if you have an area Council on aging, any of those resources should be able to point you to your state's individual forms for the practical stuff, your advanced medical directive, naming your powers of attorney those kinds of elections, that kind of paperwork.
388
00:42:38,450.9090909 --> 00:42:41,0.9090909
Some states you can file your paperwork with the state.
389
00:42:41,0.9090909 --> 00:42:44,910.9090909
It's not a requirement, but it's an option if you wanna make sure that someone's got it.
390
00:42:44,970.9090909 --> 00:42:50,850.9090909
And also your paperwork should be, your advanced medical directive should be on file with your physicians.
391
00:42:51,120.9090909 --> 00:42:57,540.9090909
So once you complete that, it's not just for you to keep in the house, your doctors should know so that they can provide you the kind of care that you want.
392
00:42:57,960.9090909 --> 00:43:09,370.9090909
There are also websites like Compassion and Choices dot org, that's a nonprofit that can give you a state by state link to figure out what forms are available in your state.
393
00:43:09,790.9090909 --> 00:43:11,980.9090909
Just know that a couple of things here.
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00:43:12,30.9090909 --> 00:43:14,130.9090909
I think compassion and choices is great.
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00:43:14,180.9090909 --> 00:43:15,140.9090909
There are also.
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00:43:16,250.9090909 --> 00:43:19,670.9090909
Companies like My directives.com,
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00:43:20,420.9090909 --> 00:43:21,710.9090909
five wishes.
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00:43:22,100.9090909 --> 00:43:26,950.9090909
There are websites that are dedicated to helping walk you through this process with prompts.
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00:43:27,280.9090909 --> 00:43:34,150.9090909
So you fill it out on a screen and it auto fills the forms for you, and then you can have them sign and then notarized so that they're legal.
400
00:43:34,550.9090909 --> 00:43:41,840.9090909
So there are ways to get some assistance with this if you're not the kind of person who is comfortable sitting down and just filling out a paper form.
401
00:43:42,50.9090909 --> 00:43:42,320.9090909
Okay.
402
00:43:43,850.9090909 --> 00:43:49,700.9090909
Something that I think is important to keep in mind that I didn't know or I didn't really think about until my mom was dying.
403
00:43:50,900.9090909 --> 00:43:58,10.9090909
My mom was dying in Ohio, so she had been an Ohio resident for two decades.
404
00:43:58,10.9090909 --> 00:44:05,810.9090909
I think by that point, Ohio's choices are different than Arizona's choice.
405
00:44:05,930.9090909 --> 00:44:07,880.9090909
So the choices with which I am familiar.
406
00:44:08,405.9090909 --> 00:44:21,310.9090909
We have a, you're either a full code, meaning, if I go into cardiac arrest or respiratory arrest, that means do everything, employ all the lifesaving measures possible from a medical perspective to keep my body alive.
407
00:44:22,90.9090909 --> 00:44:27,400.9090909
Or there's a DNR a do not resuscitate order, which means no life sustaining treatment.
408
00:44:27,460.9090909 --> 00:44:31,360.9090909
And, you can make some elections in between like I do or don't wanna be intubated.
409
00:44:31,360.9090909 --> 00:44:31,960.9090909
For example.
410
00:44:32,470.9090909 --> 00:44:48,40.9090909
However, in Ohio there's this kind of half measure where your DNR, it's like it's a halfway point between a full code and a DNR, where like your DNR status doesn't kick in unless a particular series of events has occurred.
411
00:44:49,240.9090909 --> 00:45:03,700.9090909
So you can choose that option where you're like, try it until it gets here and then stop resuscitation efforts rather than saying never try any resuscitation efforts with a do not resuscitate versus do everything with a full code.
412
00:45:05,140.9090909 --> 00:45:05,980.9090909
That was new to me.
413
00:45:06,60.9090909 --> 00:45:14,640.9090909
So it was something I needed to learn in order to help my mom make the decisions that she wanted for herself in the context of her cancer.
414
00:45:15,270.9090909 --> 00:45:26,700.9090909
And it's important, I think, for those of us who might have residences and other states or happen to spend a lot of time visiting somebody.
415
00:45:26,700.9090909 --> 00:45:40,670.9090909
So maybe, I don't live in Ohio, but if I had been going out there for six months out of the year just to hang with my mom and my stepdad, then it would do me well to have an advanced medical directive prepared for Ohio.
416
00:45:40,670.9090909 --> 00:45:57,610.9090909
Also, not all states are necessarily reciprocal, so it's important to just like drill into your specific state's regulations and their paperwork, and then also the state in which you are spending a lot of time and then start asking questions within those departments to figure out.
417
00:45:58,360.9090909 --> 00:46:15,870.9090909
Do you honor my a MD from Arizona when I'm in Pennsylvania? Or do I need to have Pennsylvania paperwork for you to honor my choices if I were to suddenly succumb to, a life-threatening event while I'm there? And I've been there for several months and, I'd be comfortable dying there.
418
00:46:16,170.9090909 --> 00:46:21,245.9090909
So it really is a little bit tricky because it's not a clean federal, thing across the board.
419
00:46:21,245.9090909 --> 00:46:22,265.9090909
It is state by state.
420
00:46:22,745.9090909 --> 00:46:31,745.9090909
So locating through your Secretary of State's office area Council on Aging or Department of Health Services is a good place to start looking for that information.
421
00:46:32,75.9090909 --> 00:46:32,765.9090909
Amazing.
422
00:46:33,35.9090909 --> 00:46:35,225.9090909
And then having them notarized is gonna be important.
423
00:46:35,545.9090909 --> 00:46:47,125.9090909
You are, there's another kind of form that comes into play when you have a terminal illness and you have elected to not pursue any life sustaining or resuscitative treatment.
424
00:46:47,515.9090909 --> 00:46:53,605.9090909
So if you have that DNR in place, there's another form that's called a pulses or a M form.
425
00:46:53,785.9090909 --> 00:46:58,795.9090909
Either a physician's orders for life sustaining treatment or medical orders for life sustaining treatment.
426
00:46:58,975.9090909 --> 00:47:04,645.9090909
It's called different things in different states, but that is a doctor signed order, signed by your physician.
427
00:47:04,645.9090909 --> 00:47:05,635.9090909
It's signed by you.
428
00:47:05,965.9090909 --> 00:47:13,195.9090909
That's usually on like an orange piece of paper that gets put up on the fridge that clearly states don't do CPR.
429
00:47:13,325.9090909 --> 00:47:14,435.9090909
Don't intubate me.
430
00:47:15,5.9090909 --> 00:47:26,555.9090909
So that if somebody calls 9 1 1, because people do panic, even at end of life, even when people are on hospice, they still sometimes call 9 1 1 because it's habit and EMTs come into the door.
431
00:47:26,795.9090909 --> 00:47:32,525.9090909
They're looking for that piece of paper because if they don't see it, they're gonna do everything because that's their job.
432
00:47:33,155.9090909 --> 00:47:38,45.9090909
So the physician's order means they absolutely have to do what it says on the piece of paper.
433
00:47:38,45.9090909 --> 00:47:43,325.9090909
They don't make elective decisions for you, but that doesn't come into play unless you are terminally ill.
434
00:47:43,955.9090909 --> 00:47:44,495.9090909
Got you.
435
00:47:44,595.9090909 --> 00:47:47,205.9090909
I honestly I wish that they taught us this in high school.
436
00:47:47,305.9090909 --> 00:47:49,555.9090909
The same way they're like, okay, register to vote.
437
00:47:49,555.9090909 --> 00:47:51,295.9090909
You're 18, register to vote now.
438
00:47:51,345.9090909 --> 00:47:53,985.9090909
I wish that they would teach people two things in high school.
439
00:47:53,985.9090909 --> 00:47:56,895.9090909
I wish they would teach them how to fill out these forms.
440
00:47:57,900.9090909 --> 00:48:03,720.9090909
Maybe a little bit about how to initiate these difficult conversations with their family members or their circle of care.
441
00:48:03,720.9090909 --> 00:48:05,580.9090909
Maybe it's not their family, their immediate family.
442
00:48:05,890.9090909 --> 00:48:17,290.9090909
And I wish that they would teach people how to do the basic tasks of caring for someone who is bedbound, because it doesn't matter if you're dying or if you're in a full body cast or if you've got the flu.
443
00:48:17,770.9090909 --> 00:48:42,10.9090909
If somebody can't get out of bed, how do you change the sheets? How do you help them to stay clean and comfortable? These very basic things when someone goes onto hospice service, I didn't grow up knowing how to safely roll another human being to the side and remove the sheet from underneath them and put, the chuck, which is the absorbent layer that goes between the human and the, the sheet and the mattress underneath there.
444
00:48:42,10.9090909 --> 00:48:42,820.9090909
That's changeable.
445
00:48:43,60.9090909 --> 00:48:48,40.9090909
I didn't learn how to do that stuff until I was in the middle of just.
446
00:48:49,315.9090909 --> 00:48:55,975.9090909
Acute grief and confusion and feeling just so imperiled by my mom's rapid decline.
447
00:48:56,545.9090909 --> 00:49:06,175.9090909
All of a sudden she's on home hospice, and now I have to learn how to do all these things with this brain that is just not my usual sharpness.
448
00:49:06,245.9090909 --> 00:49:09,575.9090909
I'm preoccupied, I'm not in a learning brain place.
449
00:49:10,205.9090909 --> 00:49:13,25.9090909
So I wish that they would teach these kind of skills to us when we were younger.
450
00:49:13,655.9090909 --> 00:49:13,865.9090909
Yeah.
451
00:49:13,895.9090909 --> 00:49:19,25.9090909
So that we would be more prepared for, even if somebody is just taken out by the flu.
452
00:49:19,538.604774 --> 00:49:26,648.604774
How does your work differ or compliment the traditional hospice model? Our work compliments the hospice model.
453
00:49:26,648.604774 --> 00:49:29,408.604774
It does not replace it, and it's not a substitute for hospice care.
454
00:49:29,408.604774 --> 00:49:33,588.604774
If hospice care is what somebody wants that is because we are non-medical.
455
00:49:34,218.604774 --> 00:49:35,988.604774
So while there are non-medical.
456
00:49:36,798.604774 --> 00:49:39,288.604774
Staff involved in hospice care.
457
00:49:39,438.604774 --> 00:49:42,828.604774
The primary function of hospice is to look out for the physical body.
458
00:49:43,158.604774 --> 00:50:03,228.604774
So you are assigned a hospice doctor, you're assigned a hospice rn, usually who's your case manager, and you are assigned a certified nurse's aide, right? So you're CNA who comes in to do hygiene care for you on an, usually on an increasing basis as somebody becomes closer to their end and is able to care for themselves less and less.
459
00:50:03,588.604774 --> 00:50:06,198.604774
You also have a chaplain and you also have a social worker.
460
00:50:06,468.604774 --> 00:50:22,8.604774
So while those two folks are not medical in the sense that they're not providing medications or doing body care and they're providing more practical, logistical, emotional, and spiritual care and comfort, we're not there to do their jobs.
461
00:50:22,608.604774 --> 00:50:31,348.604774
So I'm not coming in and saying that I am that I've had a pastoral education and that I am the end all, be all of every spiritual practice.
462
00:50:31,498.604774 --> 00:50:38,398.604774
What I can do is sit with you and pray with you, or worship with you if that's what you desire.
463
00:50:38,608.604774 --> 00:50:41,938.604774
If you'd like some companionship in that process, I am here for you.
464
00:50:42,238.604774 --> 00:50:51,118.604774
But I'm not here to come in and say that I am the chaplain and I'm fulfilling this very specific spiritual role that is like very deep in their training and their knowledge.
465
00:50:51,358.604774 --> 00:50:52,528.604774
Same thing with social work.
466
00:50:52,648.604774 --> 00:50:56,578.604774
So I might be helping you to assess your needs, let's say.
467
00:50:57,8.604774 --> 00:51:00,868.604774
So social workers will help with things like deciding what you want done with your body.
468
00:51:00,928.604774 --> 00:51:18,778.604774
Do you wanna be flame cremated? Do you wanna be acclimated, alkaline hydrolysis? Do you want natural organic reduction? What's that? What's, what is that? Yeah, it's alkaline hydrolysis is a process by which the body is broken down in a solution rather than.
469
00:51:19,183.604774 --> 00:51:23,713.604774
Put into the retort, which is the name of the machine for a traditional flame cremation.
470
00:51:23,953.604774 --> 00:51:35,133.604774
And then there's also what is called natural organic reduction, AKA human composting, where the body is broken down through the microbes that are present in soils and organic matter.
471
00:51:35,313.604774 --> 00:51:38,823.604774
So then you turn into dirt that you can plant things in.
472
00:51:38,823.604774 --> 00:51:40,203.604774
You can grow things in for food.
473
00:51:40,203.604774 --> 00:51:42,513.604774
You can grow them for just aesthetics.
474
00:51:42,843.604774 --> 00:51:55,243.604774
Those are some options, right? You can have a traditional burial where you're in a casket that goes into a vault in a, you're like standard image of what a burial looks like situation.
475
00:51:55,243.604774 --> 00:51:56,623.604774
Or you can have a green burial.
476
00:51:56,623.604774 --> 00:51:59,803.604774
Maybe that means that you're buried in a place that doesn't require a vault.
477
00:51:59,863.604774 --> 00:52:02,773.604774
Maybe that means that you're just in a shroud and you're just in the dirt.
478
00:52:02,803.604774 --> 00:52:05,383.604774
Maybe that means you're in a more eco-friendly casket.
479
00:52:06,13.604774 --> 00:52:07,33.604774
Lots of different options.
480
00:52:07,33.604774 --> 00:52:13,813.604774
So a social worker will be able to tell you, here are your options, and they may help you, let's say, to locate a funeral home.
481
00:52:14,773.604774 --> 00:52:21,463.604774
Services we can do that as well, but they, their resources are much deeper than ours are, and they have relationships.
482
00:52:21,553.604774 --> 00:52:43,573.604774
Typically, the hospice organizations have relationships with people in the community, so they may know more about each individual provider than I would as a doula, but I think the number one thing that we do is reinforce the care that's already being given in those situations, including things like education for the caregivers around the signs and symptoms of active dying.
483
00:52:43,933.604774 --> 00:52:53,103.604774
Meaning what do you look for in terms of changes in the body that can alert you to the fact that you are getting to the stage where someone is going to be very near death.
484
00:52:54,33.604774 --> 00:53:00,873.604774
The nurses are gonna be your go-to from the medical perspective of that, and they will teach you all of these things to look for.
485
00:53:00,873.604774 --> 00:53:03,123.604774
And as doulas, we can come in and reinforce that.
486
00:53:03,343.604774 --> 00:53:09,553.604774
We can be a source of information if maybe your RN isn't talking with you about that yet.
487
00:53:10,153.604774 --> 00:53:11,443.604774
We always point the medical.
488
00:53:12,358.604774 --> 00:53:14,398.604774
Questions back to the medical professionals.
489
00:53:14,858.604774 --> 00:53:28,238.604774
But I think that there are things that we learn in our training that help to act as signposts that we can share with people so that it both reassures them so they're not surprised when someone's breathing changes or they're not surprised when they're noticing a skin change.
490
00:53:28,488.604774 --> 00:53:33,678.604774
But also because it just reinforces it in a cohesive way, information they're getting from these other sources.
491
00:53:34,428.604774 --> 00:53:38,568.604774
But really back to Angie Buchanan's example of the water flowing between the boulders.
492
00:53:38,928.604774 --> 00:53:51,918.604774
I think that the biggest asset that doulas have to offer is our flexibility because we are not covered under Medicare and therefore not covered under the hospice benefit.
493
00:53:52,578.604774 --> 00:54:00,618.604774
We don't work in hospice in a paid capacity in the same way that social workers, chaplains, CNAs, nurses and doctors do.
494
00:54:01,218.604774 --> 00:54:07,873.604774
So while I think that there are administrators now maybe who are running.
495
00:54:08,748.604774 --> 00:54:13,578.604774
Doula programs in hospice organizations that are perhaps paid in that role.
496
00:54:14,178.604774 --> 00:54:20,928.604774
I don't in this moment know of any doulas who are being paid for doula work through hospices.
497
00:54:21,118.604774 --> 00:54:24,808.604774
That doesn't mean that they don't exist, but if they do, exceedingly rare.
498
00:54:24,868.604774 --> 00:54:34,108.604774
Right now, most doulas who are working in the hospice organizations are either just volunteering as volunteers, regular volunteers.
499
00:54:34,258.604774 --> 00:54:47,8.604774
So the doula work that they do is subtle, or they are volunteering under a doula program in a hospice organization where like my badge for one of the hospices I volunteer with says volunteer doula on it.
500
00:54:47,668.604774 --> 00:54:52,168.604774
As a volunteer, I'm beholden to the hospices rules and regulations.
501
00:54:52,228.604774 --> 00:54:54,478.604774
I meet their protocols and their standards of training.
502
00:54:54,908.604774 --> 00:54:59,348.604774
So if they have limits on how much time I can spend with a family, I respect those limits.
503
00:54:59,528.604774 --> 00:55:01,898.604774
But generally speaking, you're more available.
504
00:55:02,508.604774 --> 00:55:05,508.604774
So everybody else who's working in the hospice model.
505
00:55:06,123.604774 --> 00:55:07,233.604774
They have caseloads.
506
00:55:07,893.604774 --> 00:55:10,203.604774
They can see, many different patients in one day.
507
00:55:10,203.604774 --> 00:55:13,203.604774
They can't spend several hours with someone a lot of the time.
508
00:55:13,253.604774 --> 00:55:21,923.604774
Folks who work in hospice, just sidebar some of the biggest hearted, most compassionate, dedicated, incredible humans I have ever met.
509
00:55:22,463.604774 --> 00:55:23,723.604774
I'm so grateful for them.
510
00:55:24,173.604774 --> 00:55:24,773.604774
Incredible.
511
00:55:25,593.604774 --> 00:55:30,613.604774
Really the service they provide I think is for so many people, absolutely indispensable.
512
00:55:30,613.604774 --> 00:55:36,433.604774
I have had nothing but positive experiences with the hospice staff, with whom I have had the opportunity to interact.
513
00:55:36,883.604774 --> 00:55:39,348.604774
But they can only see so many people.
514
00:55:39,648.604774 --> 00:55:40,938.604774
They can only spend so much time.
515
00:55:41,458.604774 --> 00:55:46,408.604774
Your doula can come at your pleasure.
516
00:55:46,408.604774 --> 00:55:52,228.604774
You mesh the doula's availability with your desires and then you settle on an arrangement that works, that's bespoke for you.
517
00:55:52,648.604774 --> 00:55:55,918.604774
So I can come in the middle of the night a social worker's, I.
518
00:55:56,653.604774 --> 00:56:01,153.604774
Not likely to be able to be on call for you at, 10:00 PM on a Tuesday.
519
00:56:01,363.604774 --> 00:56:03,973.604774
Right? There are, there is the element of operating hours.
520
00:56:04,543.604774 --> 00:56:08,173.604774
The nurses are different, there's always somebody available in hospice if you need a nurse.
521
00:56:09,103.604774 --> 00:56:20,683.604774
And it's not to say that people won't make exceptions or step outside that, or that every organization has the same structure, but generally speaking, the doula is there to work with you in whatever way best suits you.
522
00:56:21,133.604774 --> 00:56:22,723.604774
So I can be there more often.
523
00:56:22,963.604774 --> 00:56:25,603.604774
We can have maybe different kinds of conversations.
524
00:56:25,783.604774 --> 00:56:31,33.604774
I can be providing care as the hospice team does as well for the circle of people who surround you.
525
00:56:31,433.604774 --> 00:56:36,793.604774
We can just do things a little bit more flexibly and reinforce the care that you're getting from other people.
526
00:56:37,93.604774 --> 00:56:40,783.604774
Again, we're not there to replace, we're not there to substitute.
527
00:56:41,3.604774 --> 00:56:42,953.604774
And we're not even there to modify.
528
00:56:42,953.604774 --> 00:56:46,488.604774
I'm not there to contradict or modify, a treatment plan or anything like that.
529
00:56:47,28.604774 --> 00:56:49,758.604774
I'm really there to companion you.
530
00:56:50,202.5204595 --> 00:56:56,132.5204595
You as a, you, as a still whole living, breathing, unique individual in the world.
531
00:56:56,672.5204595 --> 00:57:02,312.5204595
You're not a patient, you're not a case, you're a person.
532
00:57:04,862.5204595 --> 00:57:07,112.5204595
So I think this is a great place to pause for now.
533
00:57:07,182.5204595 --> 00:57:14,412.5204595
This is just part one of our conversation with Kim Stravers, and trust me, there is even more wisdom and perspective shifting coming your way.
534
00:57:15,72.5204595 --> 00:57:22,272.5204595
In part two, we're gonna go deeper into the practical side of death, and Kim is gonna walk us through the dying process that drops next week.
535
00:57:22,422.5204595 --> 00:57:25,992.5204595
So be sure to follow, share, and come back for the rest of this powerful dialogue.
536
00:57:26,892.5204595 --> 00:57:28,962.5204595
Until then, hang in there Seekers.