Tom's Hirschsprung's Podcast

Tom's Hirschsprung's Podcast

Starting in 2024 🎧! I provide a look into the remarkable experiences of some of the most inspiring people around #hirschsprungsdisease and sport. I will be sharing my own thoughts, with over 30 years of lived experiences with #hirschsprungsdisease Join us in 2024!!! #hirschsprungsdisease #hirschsprungs #hirschsprungsdiseaseawareness #hirschsprungsdiseasesport

Episodes

Episode 147 - With Kiran Mann

October 29, 2026 • 58 mins
A combination of Short Bowel Syndrome and a rare form of Hirschsprung's Disease, has led doctors to believe that this is a case that may never be seen again.
Kiran's daughter is believed to be one of only 4 people in the world with this combination, and chances of seeing this to be roughly 1 in 2,000,000,000!!!
Hear the extraordinary journey thus far, beginning in 2025 and running through to the present day.
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Episode 146 - With Tiffany Dwyer

October 22, 2026 • 40 mins
With over 50 procedures for her son Arlo, Tiffany talks through the first 16 months of her son's eventful life. We talk about the impact of Long Segment Hirschsprung's Disease and 5 rounds of Botox, as well as a bright look towards the future.
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Episode 145 - With Shabana

October 15, 2026 • 45 mins
Shabana joins me to talk about her son's Hirschsprung's journey, and the frustrating early stages of not being listened too by her GP. This episode shows that not all Hirschsprung's diagnosis are the same, and not everyone has the same 'classic' symptoms.We also have an interesting discussion on diet and what has worked for Shabana's son.
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Episode 144 - With Helen

October 8, 2026 • 46 mins
An excellent account of a very complex Hirschsprung's case as Helen talks about her adult son, who competes internationally as a Powerlifter. Stay tuned to the end to hear about the foundation that Helen is involved with 'A Bear Named Buttony'.We chat through family dynamics, as Helen also has two daughters, and how she balanced family life whilst caring for a child with Hirschsprung's. Another aspect of family life that's discusse...
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Episode 143 - With Bee

October 1, 2026 • 40 mins
Bee chats about her son and his story with Hirschsprung's, a condition that doesn't run in her family, making his chances of having Hirschsprung's around 1 in 5000.An episode full of emotion, that involves difficult conversations around illness, Bee bravely shares the ups and downs of her hospital visits.Withing this episode Bee also mentions her dedication to research and how having this thurst for knowledge led her to being a bit...
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Episode 142 - With Rachel Peichl McGee

September 24, 2026 • 42 mins
As an incredible high achiever, Rachel shares her story through all of the ups and down from 55 years of experience. We chat about how medicine and surgery has evolved over time, as well as the tips and tricks Rachel has used to help her over the years.
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Episode 141 - With Da'Veon and Vonney

September 17, 2026 • 48 mins
Da'Veon and his mum Vonney join me to talk through Da'Veon's incredible Hirschsprung's journey.Da'Veon shares his story from both a physical and spiritual point of view, as well as very honest recount of his school struggles.We also talk about how diet and exercise have really helped him Da'Veon in controlling his Hirschsprung's symptoms.
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Episode 140 - With Stephanie Dolak

September 10, 2026 • 49 mins
Fellow radio host Stephanie talks about her extremely rare Hirschsprung's diagnosis as well as how her quality of life has differed over the years.Diagnosed with TCHD+ Stephanie remains one of the rarest forms of Hirschsprung's ever known, from this she has been able to work in radio and is in the process of writing a book.
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Episode 139 - With Aimee Morrisby (Part 2)

September 3, 2026 • 48 mins
Two and a half years on from her first appearance Aimee rejoins the show to chat about everything she has achieved in that time, including new information and a global book tour!In the first part of her story Aimee shares her extraordinary life with one of the rarest forms of Hirschsprung's ever seen, which left her with just 60cm of small bowel, on the face of it, a medical impossibility! We chat about how despite her illness, Aim...
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Episode 138 - With Kaytlin Slaughter (Part 2)

August 27, 2026 • 43 mins
Kaytlin rejoins the podcast, a year after her first episode, to talk about her daughter Isabella and how she is progressing with her condition.A completely different episode from part 1, Kaytlin chats about the clubs that Isabella has now joined, and the need for these activities to be as inclusive as possible.We also talk about how Isabella is doing medically and look positively towards the future.
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Episode 137 - With Lex

August 20, 2026 • 45 mins
Lex talks about her son Frankie's complicated Hirschsprung's story as well as being diagnosed with short gut/intestinal failure.We also chat about surgery, as Frankie has already had 14, and the impact this can have on young children. Lex also explains her way of advocacy through her excellent social media account the documents her son's Hirschsprung's life.
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Episode 136 - With Megan Wallis

August 13, 2026 • 47 mins
After her local hospital had no idea what was wrong, Megan became increasingly concerned about her son Oaklee when he was diagnosed with Hirschsprung's Disease.We also chat about Megan and her families involvement in the Every Step Campaign, an organisation that supports patients and parents across Newcastle, and how the whole family was involved in the promotion.Megan explains that even though Oaklee's story hasn't been straightfo...
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Episode 135 - With Jodie

August 6, 2026 • 39 mins
Jodie talks about her 8 month old daughter Libby and her variety of medical conditions, including Hirschsprung's Disease and Mowat-Wilson Syndrome.We talk about the need for advocacy and how Jodie and her husband have had to learn a lot in the first 8 months, when it comes to these conditions. Jodie also explains the importance of seeing the glass half full when it comes to seeing what Libby can achieve.
Follow Jodie - @growingw...
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Episode 134 - With Megha (Part 2)

July 30, 2026 • 45 mins
Megha comes back on the show to give us an update on life after 18 months. Although not without its challenges, this is a wonderfully positive episode focusing on how Anya is progressing with her Hirschsprung's.
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Episode 133 - With Nicole Voss

July 23, 2026 • 68 mins
Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the hospital, as well as how her mothers instinct was critical in helping her son to receive the correct diagnosis.Follow Nicole on TikTok - @nicolevoss
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Episode 132 - With Natalie Little

July 16, 2026 • 49 mins
Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives us an insight into juggling hospital and family life.Natalie also talks about how strong and resilient her daughter is and how, even at the age of 1, she knows her own body incredibly well.
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Episode 131 - With Katie Thomson

July 9, 2026 • 39 mins
In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk.After her son was born, Katie had an unfortunate time with misleading care, which led to confusion and increased anxiety. Later in the episode we talk about how having a community and support around can really help.
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Episode 130 - With Andrea Guse

July 2, 2026 • 60 mins
A very moving and varied Hirschsprung's journey, as Andrea shares all about her son's Total Colonic Hirschsprung's. During the episode Andrea talks about the complexities of having a child with a weakened immune system and how she navigates public places to give him the most 'normal' life possible.Follow Andrea - @andrearguse
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Episode 129 - With Jodie Mulrainey

June 25, 2026 • 61 mins
Jodie talks about her son Ollie, who has long segment Hirschsprung's Disease. In this episode we talk about plenty of challenges that Ollie has faced over the last 10 years, including multiple bouts of enterocolitis and stoma issues. Later on we talk about how Ollie is getting on with his ACE stoma and how it has improved his quality of life.
Follow Jodie - @jodie_mulrainey28
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Episode 128 - With Stephanie Luster

June 18, 2026 • 43 mins
An episode full of twists and turns awaits, as Stephanie joins me to talk about her daughter with Total Colonic Hirschsprung's Disease, this is most certainly not a straightforward case.In this episode we discuss the power of faith to get through difficult moments , as well how a supportive community is incredibly beneficial.Enjoy the episode
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