Awkward Story: A Dementia Podcast

Awkward Story: A Dementia Podcast

Awkward Story is a Dementia Education Podcast focused on supporting individuals touched by dementia related diagnoses. We wish to address the stigma and isolation often beset upon patients and their families by bringing their poignant, tragic, beautiful, awkward stories into the open. We will speak to insightful professionals that regularly assist individuals in their fight against dementia. We will also share our own insight as Clinical Social Workers specializing in dementia care. Most of all, we hope to be a lifeline, a resource, and maybe even a brief respite for those doing all the work at home. We understand that the various forms of dementia often leave families desperate for knowledge and resources concerning available care and best practices. We will provide short, concise, 10-20 minute podcasts on specific dementia related topics, so that families can eventually navigate our podcast history for specific guidance.... Show More

Episodes

August 22, 2019 40 min

Dr. Gabrielle Mahler, D.M.D, is a Los Angeles based dentist specializing in older individuals with cognitive impairment. In this episode, Dr Mahler shares some of her experience and insight regarding oral care for older adults living with dementia symptoms. 

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Ymkje Dioquino, MS, LMFT is the Chief Operating Officer of the Presence Care Project in San Francisco, CA. She is also a Family Care Therapist at the Ray Dolby Brain Health Center in San Francisco, where she provides psycho-therapeutic services and support to persons with Dementia and their families and friends. She has practiced mindfulness since age 19 and started teaching Mindfulness Based Dementia Care (MBDC) in 2014. She was k... Read more

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Anne Hanenburg is a landscape architect specializing in Dementia Design and Healing Gardens. She was gracious enough to speak with us about the significance of the physical environment in dementia care settings. Whether your loved one is living in a memory care community or at home, these dementia design principles can be very insightful.

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PK Beville is the founder of Second Wind Dreams and the creator of the Virtual Dementia Tour.  ​In this interview, PK discusses the Virtual Dementia Tour and the research behind it. The VDT is a dementia sensitivity training designed to educate and empower caregivers by offering better understanding of their loved one's experience. The training involves a simulation of the dementia experience, as well as an opportunity to reflect o... Read more

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July 17, 2019 18 min

In this podcast, we interviewed Rick Lauber, author of The Successful Caregiver's Guide. Rick discusses his personal experience as a caregiver, and the issues that he finds most pertinent as a dementia care author. A link to Rick's website can be found on our resources page. 

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July 15, 2019 17 min

We are back with another interview! This week, Thomas interviews Lisa DiPalma, Physical Therapist Assistant. Lisa has been working in the field of Physical Therapy for ten years, with the majority of her work being with the geriatric population. During our interview, she discusses the benefits of physical therapy for individuals living with dementia.

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July 15, 2019 17 min

We are back with another interview! This week, Thomas interviews Lisa DiPalma, Physical Therapist Assistant. Lisa has been working in the field of Physical Therapy for ten years, with the majority of her work being with the geriatric population. During our interview, she discusses the benefits of physical therapy for individuals living with dementia.

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June 21, 2019 28 min

It is difficult to know whether an individual with dementia will reap benefits from activities traditionally designed for individuals without cognitive impairment. Because of this, we often hear loved ones say "My mother won't be able to do that because she is confused." However, this may not always be the case. In this episode, we speak with Emilie Rosanvallon regarding her experience teaching Mindfulness Meditation to individuals... Read more

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With the rise in dementia diagnoses over the past several years, wandering has become much more common among seniors. In communities throughout the US, individuals have tragically gone missing after wandering away from their homes. Whether individuals are at home or living in a facility, wandering can happen at any time. In this episode, we discuss efforts being made by the County of Los Angeles to educate caregivers and provide su... Read more

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This is the second part of our interview with Mariette Salama, in which we continue to discuss her work as a Skilled Nursing Facility Administrator.  Skilled Nursing Facilities (SNFs) are a vital part of our healthcare system, and are often misunderstood. Social workers often find that families are misinformed concerning a SNF's ability to accept Medicaid and Medicare for long term care, particularly with dementia care patients.

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Skilled Nursing Facilities (SNFs) are a vital part of our healthcare system, and are often misunderstood. They are often used for post acute care (after a hospitalization), but can occasionally be used for long-term care as well. However, social workers often find that families are misinformed concerning a SNF's ability to accept Medicaid and Medicare for long term care. During this episode, we speak to Mariette Salama regarding he... Read more

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May 22, 2019 27 min

In this episode, we speak with Dr Adria Navarro concerning decisional capacity.

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 In this episode, we speak with Catherine Jonas, Certified Aging Life Care Manager, LMFT, who discusses the role of a geriatric care manager. We discuss the plight of individuals and families impacted by dementia, and their options.

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April 30, 2019 20 min

This is the second part of our interview with Monica R. Moore, MSG, and Dr Sarah Kremen, MD, of the Mary S. Easton Center for Alzheimer's Disease Research at UCLA. In this episode, Dr. Kremen discusses the work of the Easton Center in conducting clinical trials and Alzheimer's Disease research.

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April 29, 2019 17 min

This is the first segment of a two-part interview with Monica R Moore, MSG, and Dr. Sarah Kremen MD. We discuss their incredibly important work within the field of Alzheimer's research, education, and resource provision at the Mary S. Easton Center for Alzheimer's Disease Research at UCLA. 

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This is the final segment of a three-part interview with Christine Chester, LCSW, who discusses her work in hospital emergency rooms. 

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This is the second part of a three-part interview with Christine Chester, LCSW, who discusses her work in hospital emergency rooms.  For individuals living with dementia, the emergency room visit can be both common and traumatic. Christine discusses the difficulties of coming home from the hospital, focusing on family expectations, resources available, and the need for an Advanced Directive. Download here, or wherever you get your ... Read more

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April 11, 2019 16 min

Have you or your family members ever found yourselves in the emergency room due to consequences of dementia symptoms?  In this week's episode, Thomas and Maggie interview Christine Chester, LCSW, regarding her work in hospital emergency rooms. The emergency room visit, which Thomas calls "the crisis moment," is common among families dealing with dementia symptoms.

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April 5, 2019 7 min

In this week's episode, Thomas and Maggie discuss the value of psychotherapy for individuals living with dementia. Dr. Alan Hess has been working for over 20 years as a psychologist, specializing in psychotherapy with elderly adults. He works with individuals diagnosed with dementia, and was willing to answer some of our questions regarding this work.

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March 29, 2019 17 min

In the very first episode, Maggie and Thomas discuss Awkward Story and their reasons for starting the podcast. Thomas briefly discusses his history in hospice care and Maggie reviews her own work history in the health care field. Both discuss their current observations regarding dementia care. In the coming weeks, they will be exploring various dementia related subjects through interviews with expert professionals in the field of d... Read more

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