Effie Parks hosts the Once Upon a gene podcast. Her son was born with a rare disease and it left her feeling completely isolated. She created the podcast to find other parents who are raising a kid with a rare disease. It's full of resources and personal stories from families who are navigating this unique lifestyle.
As Effie put it the phrase "Award-winning podcast" "is wild to say and even think this would be a thing when I started the show two years ago, out of desperation.
Wego health and Health Union have a yearly ceremony, where they honor digital advocates in the health industry. Your show first has to be nominated, then endorsed or voted on by the public for about a month.
And then you're taken to a finalist round and ultimately chosen by a panel of judges 15,000 Total nominations. And there's 16 winners.
When I watched the announcement ceremony online, I burst into tears. I didn't expect to win, obviously. But I also didn't expect to feel that much gratitude that the work I was doing was being recognized and making such an impact.
That's not all.
In the middle of the room at this massive event. I got to meet a woman who became a close personal friend to me online. Because we're both raising kids of rare disease. I got to meet her in person. I met other beautiful advocates and was just so honored to be in their presence.
The team itself who put on the event were there every step of the way. And they were so genuine and passionate. It was like a love fest. And I felt so incredibly lucky and special. I also made a lot of great connections that perhaps I will share later on because of my podcast segment.
Thanks for being such a champion for podcasters Dave and for always coming at it with a realness and heart. So, again, my name is Effie Parks host of the Once Upon a gene podcast. If you're a caregiver or you know someone raising a medically complex kid, please find me at onceuponagene.com
Dave's Thoughts
I met Effie on an episode of the Podcasters Roundtable. I don't know how to say it, but I just knew she was going to create something special. She had an underserved audience, and the courage to be vulnerable. She's made caregivers all over the world feel less alone and that is HUGE.
Find her at www.onceuponagene.com
Who knows, maybe in two years they will be flying you to Boston to receive an award
Mentioned in this episode:
Is Your Podcast Not Growing?
Struggling to grow your podcast beyond friends and family? You're not alone. I've been there too. That's why I created "10 Proven Strategies...
Stuff You Should Know
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.
Dateline NBC
Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Special Summer Offer: Exclusively on Apple Podcasts, try our Dateline Premium subscription completely free for one month! With Dateline Premium, you get every episode ad-free plus exclusive bonus content.
On Purpose with Jay Shetty
I’m Jay Shetty host of On Purpose the worlds #1 Mental Health podcast and I’m so grateful you found us. I started this podcast 5 years ago to invite you into conversations and workshops that are designed to help make you happier, healthier and more healed. I believe that when you (yes you) feel seen, heard and understood you’re able to deal with relationship struggles, work challenges and life’s ups and downs with more ease and grace. I interview experts, celebrities, thought leaders and athletes so that we can grow our mindset, build better habits and uncover a side of them we’ve never seen before. New episodes every Monday and Friday. Your support means the world to me and I don’t take it for granted — click the follow button and leave a review to help us spread the love with On Purpose. I can’t wait for you to listen to your first or 500th episode!