Unas cuatro mil personas sufren esclerosis lateral amiotrófica en España y a pesar de los avances científicos a día de hoy la ELA no tiene cura. La reciente ley ELA de 2024 supone un avance para mejorar las condiciones de vida de los enfermos, los cuidadores y las familias de estas personas.
Esta semana hablamos de la ELA con Aníbal Martín, miembro de la junta directiva de la Asociación Española de Esclerosis Lateral Amiotrófica (adELA); Estela Área Gómez, responsable del grupo papel de las membranas de RE asociadas a mitocondrias (MAM) en la homeostasis celular en el Centro de Investigaciones Biológicas Margarita Salas (CIBMS-CSIC); Alberto García Redondo, director del Laboratorio de Diagnóstico Genético e Investigación en ELA, Unidad de ELA - Servicio de Neurología, Instituto de Investigación Sanitaria Hospital 12 de Octubre "i+12"; Alejandra Menassa, doctora internista y especialista en Salud Integrativa, directora médica Centro de Medicina Integrativa en Madrid, y Marta Millá, actriz, escritora y terapeuta Gestalt, autora del libro El azul imposible.
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