Go Shout Love Podcast

Go Shout Love Podcast

Go Shout Love tells the stories of amazing kids on rare medical journeys and sells creative apparel inspired by the kids to benefit their families. In the GSL podcast, we interview the parents of these amazing kids and offer other conversations designed to inspire and encourage anyone who listens.... Show More

Episodes

May 26, 2020 41 min
Josh talks with Cassie, the mother to Jack who was one of four feature kiddos in October of 2019. Jack has a rare medical diagnosis called Lissencephaly Miller-Dieker's Syndrome. Cassie opens up and shares about the extreme ups and downs of life with Jack’s diagnosis, especially during a time when the world is dealing with COVID.


Connect with Cassie
https://www.instagram.com/jcgrass/
https://www.facebook.com/TheJackOfOurHearts/

Co...
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May 19, 2020 59 min
Josh interviews Tameka, the amazing mother of Evely who was our feature kiddo in September of 2019. Evely has a rare medical journey includes being born without eyes. Tameka gives us an update on her family and Evely’s medical journey.
She also talks about dealing with COVID and surviving with a child on a rare medical journey and gives us great insight on what really matters in life.


Connect with Tameka
http://instagram.com/housegy...
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May 12, 2020 41 min
The conversation with Kevin and Jess continues in the second episode of this two part interview. They are the parents of Molly, our featured kiddo for May from Celina, Ohio. Molly is a beautiful and joyful two-year-old who is lovingly referred to as ornery. In part two of the conversation, Kevin and Jess open up and talk about their marriage, their relationships, and their community as they continue to raise and care for their beau...
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May 5, 2020 35 min
Josh chats with Kevin and Jess, the parents of Molly, our featured kiddo for May from Celina, Ohio. Molly is a beautiful and joyful two-year-old who is lovingly referred to as ornery. In part one of the conversation, Kevin and Jess introduce us to Molly's personality, share openly about the difficulties of the unexpected complications at Molly's birth, and the rollercoaster months that would follow as they looked for answer...
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April 28, 2020 56 min
At 20 years-old, Marcela survived a fatal car accident. New to the United States and knowing very little English, her life took a tragic turn that night as she lost her boyfriend in the car accident as well as her ability to function physically as she always had.

Today she leverages the power of social media to document what traveling looks like for people with disabilities and highlights opportunities for communities to become mor...
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In this week's episode, Josh interviews Dr. Gerald Nebeker, a social enterprise entrepreneur with an incredible resume of meaningful work. But at the top of his list of accomplishments he put his family, his wife Laurel and their eight terrific kids, the youngest of whom has Down Syndrome.

In his professional experience and the personal experience of having a child with a disability, Dr. Nebeker recognized a gap that comes for p...
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Mindy Scheier was in the middle of a successful career in the fashion industry when the realities of her son’s rare medical journey exposed a challenge in clothing for people with different abilities.

This moment launched Mindy in a completely different direction that would advocate for all people to have the confidence that comes with adaptive clothing.

In 2014 she launched Runway of Dreams which is reshaping the fashion industry,...
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Josh chats with Shane Burcaw and Hannah Aylward of the popular YouTube Channel, Squirmy and Grubs. Shane and Hannah use their platform to shift the narrative and dispel myths around interabled relationships by sharing openly and honestly about their life together.

This conversation covers real feelings on the topic of receiving and giving care. They also discuss the work being done by Laughing at My Nightmare, a nonprofit organizat...
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March 31, 2020 24 min
Quickly leaving the pool to get to the restroom only to have to wrestle a wet swimsuit for several minutes... If you're a parent with a child on a rare medical journey, you likely understand this scenario.

In this episode, Josh chats with a mom who believed there had to be a better way. Nikki Green is the founder of Victory Adaptive Collection, a company offering fashionable and functional adaptive swimsuits. Listen in to learn ...
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An organization that means a lot to Maddy (this month's featured kiddo) is a nonprofit called Team IMPACT which has given her the opportunity to be part of the Syracuse University Women's Lacrosse team. In this episode, Josh chats with Ali Peters and Shanna Gershman, two staff members of Team IMPACT, who give us an overview of the organization and insight into the amazing work they are doing.


Connect with Team IMPACT:
https:...
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Josh chats with disability inclusion educator, Tina Beauvais. A mom of five, including one on a rare medical journey, you will hear how the passion behind her work is an extremely personal one. Tina B. shares extremely helpful insights for kids and adults in creating equitable spaces.

Connect with Go Shout Love:
https://www.instagram.com/goshoutlove
https://www.facebook.com/goshoutlove

Connect with Tina B.:
https://disabilitieseducator...
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March 10, 2020 42 min
look into a planner that is uniquely designed to meet the needs of families and caregivers loving little ones with special needs and the story behind the company making it happen. In this episode, Josh chats with Amanda Cunningham, founder of The Glory Days Co.

After receiving a diagnosis for her daughter, Amanda quickly realized the difficult realities of juggling multiple appointments, a new level of stress, and the importance of...
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March 3, 2020 42 min
Maddy is a spunky, brave, amazing five-year-old girl from Liverpool, New York. But her journey started with significant complications and difficult decisions for her parents coming at birth. This conversation with Maddy's parents, David and Erin, will walk you through the unexpected challenges they faced and what life has looked like for their family after receiving a diagnosis.

Maddy loves to spend her days making those aroun...
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February 25, 2020 49 min
Josh & Kristin have a chat with our first official family, the Jacobsens. We featured their son, Silas, back in June 2014. This was the first month we designed a t-shirt inspired by a kiddo’s story. We’ve been connected with Si and his family for six years now. It’s been beautiful to watch Silas grow up and see his Allison and Sol blossom into parenthood. In this episode, Allison gives us an authentic look into their journey an...
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“We were never meant to journey this life alone. The power of community and being together-there is not much that comes close to the hope and strength that is needed to get through things.”

This episode is truly something special. We sat down with Katie and Jacque, the moms to Beckett and Miller, and talked about how the diagnoses of their boys brought them together. It is a conversation about loss and support, community, and friend...
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February 11, 2020 41 min
In February of 2019 we featured a sweet boy from Texas named Beckett. He stole the hearts of the entire Go Shout Love community. With the support raised through sales during the month, Beckett and his family were able to visit Disney World, checking off the top item on their bucket list for Beckett. Just a couple weeks after returning from their trip, Beckett passed away, ending an incredibly brave battle with Leigh's syndrome.

...
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February 4, 2020 41 min
In this episode we sit down with the Josh and Jacque, the parents of three-year-old Miller from Abilene, Texas. In this chat we learn about Miller's joyful and resilient personality, his diagnosis of Leigh syndrome, and a connection with a previous Go Shout Love family that nominated

Learn more about this family's journey and see the "See Beyond the Giant" t-shirt design that is inspired by Miller at www.goshout.lov...
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Josh and Kristin introduce the newest member of the GSL team, Julie Walls! The three of them talk about Julie's background in education and how the journey of a former educator and current medical mom have brought a desire to see classrooms be a place of inclusion and kindness. Also introduced in this episode is a brand new free resource, specifically designed for classroom use, as a complement to The Thin Skin Gang book includ...
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January 21, 2020 31 min
In this episode we hear from Allison, Samuel’s mom (August 2018), as we get an update on how they are doing and what has been going on since their time on Go Shout Love. The conversation covers surgeries Samuel has had, his experience with school and new friends, and becoming a big brother. Josh and Allison also chat about the power of leveraging social media as well as some precautions and boundaries to put in place to protect pri...
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January 14, 2020 38 min
Sofia is an amazing gal that our team was able to meet and feature in September of 2018. In this episode, Josh chats with Sofia's mom, Stefanie. They pickup from an earlier conversation on "inchstones" (episode two of the GSL Podcast), talk about the journey of Sofia starting school, and discuss the rollercoaster of processing pregnancy and family growth while on a rare medical journey.

See Sofia's video and original...
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