In Sixteen Years of Endometriosis
Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing “did-that-really-just-happen?!” endo stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time! (2) Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide! Remember, the info presented here is educational info only and NOT medical advice.
Episodes
July 14, 2024 • 64 mins
Today I speak with Dr Cabrera about:
-how bowel endometriosis can be safely excised with very low complication rates and isn’t “too risky” to remove when in expert hands
-what types of endometriosis advanced disease mapping can detect signs of
-how the outcome of surgery or disease mapping is dependent on the operator (the surgeon doing the surgery or the sonographer doing the mapping)
Who is Dr. Ramiro Cabrera?
Dr. ...
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June 29, 2024 • 67 mins
Amy and Brittany talk about:
-the difficulties of adjusting to a new, unwanted reality as illness impacts every aspect of our lives.
-finding ourselves again, finding joy again, finding a life worth living again.
-celebrating the small wins and being able to see how far we’ve come.
CONNECT WITH US! INSTAGRAM: @in16yearsofendo
WEBSITE AND RESOURCES: insixteenyears.com
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June 15, 2024 • 52 mins
Today I’m speaking with Dr. John Dulemba about:
-How surgeons need to understand the limitations of their skills if they don't have a lot of experience yet.
-How colostomy rates for bowel endo are extremely low in hands of an expert.
-Risks and other considerations when thinking about excision surgery.
Who is Dr. John Dulemba?
A now retired excision surgeon who was in private practice in Denton, Texas, from 1986-2023...
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February 13, 2024 • 44 mins
Today I’m speaking with Kimether Redmon about:
-Trauma-informed medical care.
-Some biases a person may face in the medical setting.
-Personal biases that Kimether has faced.
Who is Kimether Redmon?
She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research...
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January 26, 2024 • 66 mins
Today I’m speaking with Kimether Redmon about:
-Tips to improve our medical appointments
-How to maximize the short amount of time we have with the practitioner.
-How to be more specific when describing our symptoms
-Our personal experiences with uncomfortable medical settings.
Who is Kimether Redmon?
She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in he...
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January 11, 2024 • 56 mins
Today we speak with Dr. Shilpa Rao, who is a dentist by profession and an endo crusader by passion. Shilpa has a YouTube channel called The Endometriosis Crusader in which she interviews patients and professionals about various topics related to endometriosis and reproductive health.
Shilpa shares about her personal experiences with cultural and social barriers to care, as well as her hopes for endometriosis care in the future i...
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December 4, 2023 • 67 mins
We continue to talk about work accommodations under the Americans with Disabilities Act. In part 2, we discuss medical documentation, examples of what are reasonable vs unreasonable accommodations, and telework.
DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to...
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November 9, 2023 • 59 mins
We are going to talk about work accommodations under the Americans with Disabilities Act. In part 1, we discuss what accommodations are vs accessibility in general, who qualifies for accommodations under the ADA, and some ideas on how and when to request accommodation.
DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual wo...
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October 27, 2023 • 50 mins
Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physici...
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114: Interview: Endo Coaches, Naturopaths, Functional Medicine, and Wellness Culture with Kate Boyce
October 12, 2023 • 80 mins
Many people regret having spent thousands of dollars on naturopathy, coaches, and functional medicine that didn’t help them, that they could have instead spent on excision surgery, a registered dietitian, pelvic floor therapy, SIBO treatment with a gastroenterologist, or other types of doctors/treatment.
Today Amy speaks with Kate Boyce (she/her) on common red flags to look out for in wellness culture. Kate is a board certified ...
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September 26, 2023 • 46 mins
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. For the past 20 years, he’s been testing the hormone receptors of endometriosis lesions. Today we discuss his findings and thoughts on endometriosis and hormones.
Dr. Dulemba also joined us in episode 106 on robotic excision surgery and 109 on adhesions, so if you missed those, please check them out!
Also I’d like to th...
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September 7, 2023 • 61 mins
Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention effo...
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August 24, 2023 • 75 mins
We talk about the grief that can accompany having a chronic illness. When endometriosis causes us ongoing losses in multiple aspects of our life, over and over again, it’s absolutely heartbreaking. We talk about some reasons why we might grieve due to chronic illness, what we personally grieve, and how our grief has impacted our lives.
Clickable links at insixteenyears.com/episode111
--Grieving Chronic Illness and Injury — In...
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August 11, 2023 • 47 mins
We speak with Arti Shah (she/her), a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is to positively impact the narrative of living with endometriosis through self-advocacy, play therapy and personal engagement. Arti advocates so that the next generation doesn’t have to battle this debilitating condition as we have and can have a ...
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July 26, 2023 • 74 mins
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot of insight on endometriosis. Dr. Delumba offers a second look surgery for adhesions just a few days after his original excision surgery. He brings his knowledge to this episode to answer various questions related to adhesions!
Dr. Dulemba also joined us in e...
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July 12, 2023 • 74 mins
We’ve had this podcast for over 4 years! Recently, I listened to our episodes 1-50 to update them where necessary, and I saw how much our advocacy has changed and how much we’ve grown over these years. Today we talk about some of our mistakes and what we wish we’d known when we began advocating.
Clickable links at insixteenyears.com/episode108
--Ellis K, Munro D, Clarke J. Endometriosis Is Undervalued: A Call to Action. Front...
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June 28, 2023 • 73 mins
We speak with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself.
Excision surgery is operator dependent, meaning that it depends on the surgeon’s skills. There are very few excision surgeons in the world with the top level skill, and many regular OBGY...
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June 14, 2023 • 76 mins
We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 5000 standard laparoscopic endometriosis cases and over 2300 robotic endometriosis cases! He's been performing robotic surgery since 2007, and now all his surgeries are done via robotics.
Dr. Dulemba has published papers addressing pelvic pain, laparoscopy, endometriosis, and robotic surgery. Today, he...
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May 30, 2023 • 64 mins
Ableism is prevalent in society, and it’s systemic, just as racism and other forms of oppression and discrimination are. We discuss what ableism is, and give a brief recap of the medical vs the social model of disability before diving into some ableist comments we’ve heard as people with chronic illnesses and dynamic disabilities. We also touch briefly on the ableism of wellness culture and the lack of disability accommodations thr...
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May 19, 2023 • 84 mins
Ableism is prevalent in society, and it’s systemic, just as racism and other forms of oppression and discrimination are. We discuss what ableism is, and give a brief recap of the medical vs the social model of disability before diving into some ableist comments we’ve heard as people with chronic illnesses and dynamic disabilities.
Note: we are only speaking for ourselves and not for the disability community at large. If our limi...
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