In Sixteen Years of Endometriosis

In Sixteen Years of Endometriosis

Well-researched, accurate information on endo delivered with a sense of humor! Feel supported, get inspired, be understood.

Episodes

November 25, 2021 59 min
We discuss finding meaning in our lives. What gives us meaning? Why is meaning important? How can we find more time for the things that give us joy? AMY'S BOOK: Finding Peace with a Devastating Disease, by Amy Corfeli. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
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We discuss HRT, everything from what it is, the type of doctor you may see for HRT, hormone testing, to how you take it (oral, pellet, patch, etc). We also discuss the studies on the safety of HRT. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
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We talk about the life transition from having regular cycles to going through perimenopause to being in menopause. We discuss what perimenopause is, how we may know if we are in it, what symptoms we may have during this time, and the potential benefits progesterone can have. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review!
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We are back with Wendy Bingham DPT, founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals. In this episode, we speak about thoracic endometriosis: what it is, the symptoms, the treatment, how it’s diagnosed and more. Wendy also tells us ...
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September 30, 2021 78 min
CW: Brief mention of suicidal ideation. // What is happiness? Is it possible to have while living with endo and other chronic illnesses? If so, how can we find it? We explore the idea that happiness is a skill that can be learned and share our experiences trying to find happiness anyways in spite of the many challenges that living with endo brings. AMY'S BOOK: Finding Peace with a Devastating Disease, by Amy Corfeli. CONNECT WI...
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CW: Removal of the uterus, hysterectomy and what that means for pregnancy and for us as a person, body dysphoria, invasive medical procedures, discrimination, trauma. // We speak with Bee Lynn on the topic of why inclusion and representation are important within the endometriosis community. Bee (they/them) is a patient advocate as well as social activist. They are the creator of the Mean Patient Advocate, and a co-founder of the En...
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September 1, 2021 49 min
In our final episode on the basics of hormone health, we talk about some common supplements that may help support hormone health, the importance of sleep and healthy fats, and progesterone and anovulatory cycles. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com
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August 19, 2021 53 min
Continuing our talk on hormones from the previous episode, we talk about how stress, gut health, and exercise habits can affect our hormones. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com
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August 4, 2021 69 min
This will be a 3 part series on hormones, with a 2 part series on HRT after that. In this episode, we talk about how we may find ourselves in the hormone jungle (or tundra!) and the role hormones play in various bodily functions. We go over the basics of steroid and nonsteroid hormones. We explain about the importance of ovulation in relation to progesterone and overall health, and explains ways to know if you are ovulating. LIKE O...
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Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physici...
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Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website www.endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and phy...
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CW: Eating for comfort. As we continue to examine our relationship with food here in part 2, we talk about the general and common practice of “eating our feelings” and using food to soothe our feelings instead of actually being with them. We discuss the importance of learning to be with our feelings, and some tips for paying attention to food cravings to see if there is actually an “emotional craving” behind them. LIKE OUR SHOW? Pl...
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CW: fear of food, reluctance to eat, being obsessive and controlling with food. For many with endo, eating can be a struggle as it may lead to digestive symptoms, constipation, diarrhea, nausea, pain, fatigue, and other horrible symptoms. This may lead us to change our diet, which can feel restrictive, limited, or depriving. Or it may cause us to begin to fear eating, since eating often causes us a terrible flare. For Amy, eating i...
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While endometriosis primarily affects people assigned female at birth (AFAB), not everyone who has endometriosis and is AFAB identifies as a woman. We speak with Lori Johansson about gender, gender identity, and ways to be more inclusive in our endometriosis advocacy. Lori is a nonbinary endo advocate with both endo and adeno, and as part of their position at public university, they facilitate a community engaged learning course th...
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We talk about how we can have strong relationships, in general and especially as people living with chronic illness. We discuss some keys to relationship success (especially romantic relationships) and what Amy learned from her divorce. We also talk about how we are ALL worthy of love, which is something we want everyone to take away from this episode. Even though we have endo, we are not unlovable. Having endo doesn’t doom a relat...
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April 28, 2021 77 min
We give an overview of estrogen in the bodies of people assigned female at birth, including the different types of estrogen and where they are made in the body. We talk in depth about the process of estrogen metabolism, the role of the liver and the gut, what we can do to help this process, and why it’s important. LIKE OUR SHOW? Please rate it or leave a review! CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES...
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Is it possible to find peace with the pain, the symptoms, and the countless ways endo devastates our lives? We discuss our own journeys of searching for peace - what ‘finding peace’ means to us, what benefits it has brought us, and where we are in terms of acceptance. While there is no ‘correct way’ to find peace, we give some ideas on how a person could start, especially if the idea of acceptance currently seems out of reach. We a...
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Wrapping up Endometriosis Awareness Month, we are back for part 2 with Wendy Bingham DPT, founder of the non-profit ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics, and appropriate treatment referrals. In this episode, we speak about what different cases of endometriosis in animals could mean ...
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As a part of Endometriosis Awareness Month, we speak with Wendy Bingham DPT, the founder of the non-profit called ExtraPelvic Not Rare, which is dedicated to starting conversation about extrapelvic endometriosis, while providing correct, up-to-date information about the signs and symptoms, diagnostics and appropriate treatment referrals. In this episode, we speak about why the definition of endometriosis desperately needs an overha...
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In honor of March and Endometriosis Awareness Month, we are thrilled to speak with Heather Guidone, Board Certified Patient Advocate, and Program Director of the Center for Endometriosis Care in Atlanta, GA. Heather is responsible for the CEC’s comprehensive multidisciplinary care program, clinical research facilitation, disease education and legislative/public policy endeavors to promote better care for endometriosis and pelvic pa...
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