Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and why we should let go of the Super Mom ideal.
In this episode:
2:05 – Dance programs for kids with special needs
4:45 – Moving from feeling helpless to feeling more empowered as a mom
9:20 – Explaining rare genetic disorders and little-known conditions, like CVI, to doctors #CVIsplaining
11:30 – What CVI means for Evalyn (late Phase II CVI) in her day-to-day life
13:20 – Advocating for CVI needs in an IEP meeting
18:30 – Participating in The Miracle League and making baseball adaptations
23:50 – What our kids teach us about resilience, positive outlooks and perspective
26:19 – How her blog has changed her life
Resources:
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