S02.6: Jennifer Yashari: Coping with an Ever-Evolving Disability and Living with Presence along the way

In this moving episode, Samantha Paige reunites with her childhood friend, Jennifer Yashari, who opens up about living with hereditary inclusion body myopathy (HIBM), a rare degenerative disease that causes muscle cells to weaken progressively. Diagnosed in her early 30’s, Yashari, a psychiatrist, has learned to cope with the massive loss delivered with the disease and all the subsequent losses that have come in its wake over time. She started a blog, “Living with HIBM,” in 2011, and writes beautifully and with a piercing rawness about the experience of a living with an ever-evolving disability that affects how she moves, parents and interacts with the world. Yashari details the importance of mourning each and every loss fully, so that we can then do our best to be present in life, and fostering strong, loving relationships to support us on the ride. In telling her own story, she provides guidance and vision for how to speak with others about differences and how to maintain a connected mindfulness in the process. For more information on Jennifer Yashari, please visit her website, www.jenniferyasharimd.com, and her blog, www.livingwithhibm.com.