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July 3, 2025 28 mins

When Ben Davies was born, he had difficulty breathing. He also suffered from recurrent infections. It took five years of being in and out of hospitals, and the persistence of his mother Traci Davies, who brought him to different doctors, before a physician diagnosed him with primary immunodeficiency. The rare condition leaves people with weakened immune systems. Years later, Traci herself would discover that she too suffered from the same rare condition. We spoke to Ben Davies and Traci Davies about their experiences with primary immunodeficiency, what it's like to be both a caregiver and patient, and why they have both become patient advocates. 

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