All Episodes

November 22, 2022 41 mins

In this episode we discuss:

* The history of the Beighton Score - how did a tool used for epidemiological studies come to be used to test for EDS? And should it have been?

* The limitations of the current EDS criteria (and what the hell happened with the HSD diagnosis)

* The difficulties of creating a diagnostic criteria for hEDS

* What’s the deal with “the gene”?

* More about Sabeeha’s current work and the exciting future for EDS research…

….and much more!

It was truly fascinating to hear about some of the science that’s going on behind the scenes and I left our conversation feeling hopeful that some of the mysteries surrounding the Ehlers-Danlos Syndromes are one step closer to being solved. 

--

READ THE TRANSCRIPT: http://natashalipman.com/what-happens-when-diagnostic-criteria-arent-fit-for-purpose

SUPPORT THE REST ROOM: https://natashalipman.substack.com/

--

You can learn more about Sabeeha’s lab by visiting their website, read her paper on the Beighton Score, and follow her on Twitter

Thanks to my brilliant producer Philly Guillou at OG Podcasts, to Lucy Dove for the episode art, and to Amit Rai for my intro music. 

If you missed my last episode on making the most out of your medical appointments, you can check it out here



This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit natashalipman.substack.com
Mark as Played

Advertise With Us

Popular Podcasts

United States of Kennedy
Stuff You Should Know

Stuff You Should Know

If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.

Dateline NBC

Dateline NBC

Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Follow now to get the latest episodes of Dateline NBC completely free, or subscribe to Dateline Premium for ad-free listening and exclusive bonus content: DatelinePremium.com

Music, radio and podcasts, all free. Listen online or download the iHeart App.

Connect

© 2025 iHeartMedia, Inc.