Have you ever wondered how your last name connects to your cultural identity? In this episode, hosts John Viola and Patrick O'Boyle, alongside co-host Dr. Marcella Martin, dive into the deep ties between Italian heritage and personal identity.
The conversation takes a powerful turn with guests Janice Cenzoprano and Ralph Colasanti from the Cooley's Anemia Foundation, who guide us through the genetic story of thalassemia. Together, we trace its Mediterranean roots, its links to malaria zones, and even its surprising historical connections to explorers like Marco Polo.
Through a moving firsthand account, we hear what it was like to grow up with thalassemia in its early days of treatment — from demanding regimens to the life-changing arrival of oral chelators. Along the way, we highlight the often-unsung community heroes: organizations like Sons of Italy and UNICO, whose unwavering advocacy and support have been vital in this journey.
We also revisit the grassroots philanthropy that helped pave the way for today's progress, celebrating figures like Joe Polari and Pat Acasella whose tireless efforts fueled awareness and research. Patient advocacy and breakthroughs in genetic therapy point toward a hopeful future, where advanced treatments could transform patient care.
Join us for an episode rich with history, resilience, and community spirit — a testament to how cultural identity and collective action can shape both personal journeys and medical advancement.
THEIR SOCIALS
Instagram: @cooleysanemia
TikTok: tiktok.com/cooleysanemia
Facebook: https://www.facebook.com/CooleysAnemiaFoundation
X: @cooleysanemia
Threads: @cooleysanemia
LinkedIn: Cooley's Anemia Foundation
THEIR WEBSITE:
Thalassmia.org
NOTES FROM THE FOUNDATION: Our Thalassemia Care Walk Fundraiser is ongoing throughout the year.
Check bit.ly/CAFCareWalk25 for upcoming walks in your city or simply to donate and help us find a universal cure for all patients.
Care Walk T-shirts are available at bit.ly/CAFCareWalk25 with registration!
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