About IBD

About IBD

Inflammatory bowel disease (IBD, Crohn’s disease or ulcerative colitis) is not only isolating but it also affects every aspect of the lives of those who live with these diseases. It touches relationships, finances, and careers. On About IBD, Amber talks to caregivers and people living with IBD to get their stories so that they can share what they’ve learned from their journey.

Episodes

How Storytelling Fosters Compassion for Kids with Chronic Illness

August 19, 2025 • 35 mins
A children's book leads to this conversation, which bridges the worlds of chronic illness, creativity, and connection. I talk with MB (Britt) Mooney, author of "The Mouse Who Couldn't Eat Cheese," a children's book inspired by a young woman named Alex who lived with severe Crohn's disease. MB, a science fiction and fantasy author, stepped outside his usual genr...
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How Propel a Cure is Transforming Crohn's Disease Research

August 5, 2025 • 39 mins
Episode transcript and more information at: https://bit.ly/AIBD180
 
Grassroots organizations are an important part of the IBD ...
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From Privacy to Advocacy: Balancing Faith and Chronic Illness Featuring Hindy (Tauber) Klein

July 22, 2025 • 30 mins
Amber speaks with Hindy Klein, a member of the Orthodox Jewish community living with Crohn’s colitis. Hindy shares how she manages IBD while observing Jewish laws, discussing challenges with diet, fasting, and hospital care during Shabbat and holidays. She also talks about overcoming stigma, the importance of community support, and how her faith helps her cope....
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The Mind-Body Connection in IBS and IBD Featuring Ali Navidi, PsyD

July 8, 2025 • 44 mins
Amber interviews Dr. Ali Navidi, a gastropsychologist specializing in mental health for people with gastrointestinal disorders. They discuss the importance of addressing mental health alongside conditions like IBD and IBS, highlighting the stigma surrounding these issues. Dr. Navidi explains cognitive behavioral therapy (CBT) and clinical hypnosis, emphasizing ...
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Better Health With Breathwork for IBD Featuring Elizabeth Coldrick of Wildly Brave Wellness

June 17, 2025 • 48 mins
Elizabeth Coldrick, a nutritional therapist and breathwork facilitator living with IBD and a permanent ostomy shares her experiences living in Bali, the challenges and benefits of managing IBD abroad, and the importance of nutrition and breathwork for mental and physical health. She explains how breathwork can reduce stress and inflammation, offers a simple bre...
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Getting Outdoors With IBD Featuring Jonathan Stewart of EverGreen Adventures

June 3, 2025 • 40 mins
Jonathan Stewart, co-founder of Evergreen Adventures, a nonprofit focused on connecting the chronic illness community with outdoor activities, shares his journey with type one diabetes, ulcerative colitis, and sarcoidosis. Jonathan emphasizes the importance of staying active despite health challenges, describes the need for planning outdoor adventures, and enco...
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GetYourBellyOut: Picturing Hope for IBD Featuring Victoria Marie

May 20, 2025 • 52 mins
In this episode, Victoria, founder of GetYourBellyOut, shares her journey with ulcerative colitis and the importance of community support for those with inflammatory bowel disease (IBD). She discusses her diagnosis experience, the challenges of navigating healthcare, and the need for better patient advocacy. Victoria highlights the organization's growth, its in...
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How Tech is Changing Gastroenterology

May 6, 2025 • 27 mins
Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology.
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Reclaiming Joy in Eating with IBD Featuring Stacey Collins, MA, RDN/LDN

April 22, 2025 • 57 mins
People with Crohn's disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn't affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative col...
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Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee

April 8, 2025 • 33 mins
IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn's disease at just 13 years old. She turned her experiences with IBD into a mission to help others by founding Infusion Hero, a company that designs innovative hood...
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Freelancing Freedom: Crafting Your Career While Caring for Your Health

March 25, 2025 • 46 mins
It's not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn's disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey ...
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    Declutter Your Life While Living with Chronic Illness

    March 11, 2025 • 64 mins
    Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest ...
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    Embracing Life with an Ostomy Featuring Danielle Barlieb

    February 25, 2025 • 31 mins
    Danielle Barlieb was diagnosed with Crohn's disease in childhood. She discusses her experiences with diagnosis, surgeries, and becoming a mother, including the challenges of a permanent ileostomy. Danielle emphasizes the importance of mental health, sharing her struggles and the support she received from her family. She also talks about dating with an ostomy, e...
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    Why Representation Matters for the LGBTQ+ Community

    February 11, 2025 • 51 mins
    There's a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that inter...
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    How to Thrive as a Parent with IBD Featuring Jaime Holland

    January 28, 2025 • 40 mins
    Amber hands over hosting duties to Jamie Holland, a patient advocate with Crohn's disease. They discuss their personal experiences with inflammatory bowel disease (IBD). They focus on Amber's decision to have j-pouch surgery after being diagnosed with dysplasia and the effects it had on her fertility. Jamie asks Amber to share about the emotional and physical challenges of mother...
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    Navigating Hernia Surgery Featuring Mike Tresca

    January 7, 2025 • 82 mins
    Amber is joined by her husband, Mike, who recently underwent robotic hernia surgery. In this candid conversation, they explore the entire experience—from the initial discovery of the hernia to the surgery itself and the recovery process that followed. Mike shares his insights on the challenges he faced, including unexpected pain, dietary adjustments, and the importance of having ...
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    Amber's 2024 in Books

    December 22, 2024 • 24 mins
    Amber shares some of the books she read over the previous year including biographies, young adult fiction, bestsellers, and romance. Hear about Amber's reading list from 2024, which was truly a mixed bag. The good news is that it contains something for everyone. Plus: learn about how you can read or listen to books for free using your local library — maybe without even leaving yo...
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    "Fine" Dining With Crohn's Disease Featuring Michael Ornelas

    December 10, 2024 • 62 mins
    What's the difference between ulcerative colitis and Crohn's disease? We talk about them like they're two distinct sides of a spectrum, but there are people who don't have a firm place on that continuum. Amber Tresca talks with Michael Ornelas, host of the "Fine" Dining podcast, about his journey with IBD. Michael was first diagnosed with proctitis, then Crohn's disease, and late...
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    "3 Kidneys, No Colon" With Dave Piontkowski

    November 26, 2024 • 40 mins

    For people living with inflammatory bowel disease (IBD), the path to pursuing our dreams can look different from that of our peers. Stand-up comedian Dave Piontkowski, lives with not only ulcerative colitis, but also chronic kidney disease. He developed a one-man show called "Three Kidneys, No Colon," which describes his journey with both of these conditions. Dave talks about how and why his comedy actually improved while he was fi...

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    The Hosts of Bowel Moments

    November 12, 2024 • 36 mins
    Alicia and Robin, co-hosts of the "Bowel Moments" podcast, join Amber for a discussion about podcasting in the IBD community. Robin shares her IBD journey, including her diagnosis of ulcerative colitis, the complications that led to an ileal anal anastomosis, the later diagnosis of Crohn's disease, and evebtyak J-pouch surgery. They also talk about the challenges of producing the...
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