Always Looking Up

Always Looking Up

A podcast dedicated to telling honest and real stories about living in a world that was not necessarily designed for us.

Episodes

May 19, 2025 15 mins

Dear Diary,


We have some housekeeping to do, and then let's start a conversation about how the world see's (or doesn't see) dwarf bodies.


This episode is the newest in my Jillian's Diary series on Patreon available to my "Second Step-Stool" tier.

Join The Patreon: Click ⁠⁠⁠Here⁠⁠⁠


Follow Me: Instagram: ⁠⁠⁠@jill_ilana⁠⁠⁠ , ⁠⁠⁠@alwayslookingup.podcast⁠⁠⁠ TikTok: ⁠⁠⁠@jillian_ilana⁠⁠⁠ Website: ⁠⁠⁠http...

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In this week’s episode I sat down with Liz Gutman. Liz is the Head Audio Description Writer at International Digital Centre in New York City. She has written award-winning AD for 850+ hours of movies and TV, and proudly works as an instructor with Audio Description Training Retreats. We discuss making and creating content that is digitally accessible, how she explains and defines access f*ckery and much, much more.

Editor’s Note: Th...

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In celebration of May being Mental Health Awareness Month I am honored to have sat down with Kirsten Ferguson. A successful career woman turned Peloton fitness instructor, Kirsten wholeheartedly embraces the changes that life brings. After seven years of working with the NFL, she shifted her focus to family. Her journey to motherhood was not easy, and fitness helped Kirsten strengthen her body and soul during difficult times. She i...

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In this week’s episode I sat down with Peet Montzingo. Peet Montzingo is one of the top social media content creators who has over 21.5M subscribers on his YouTube channel, 14.2M followers on his TikTok, and 3.1M followers on his Instagram. Known for his comedic videos that feature his family and daily life, his content also dabbles in the supernatural, where he formerly lived across the street from the infamous Cecil Hotel and doc...

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In this week’s episode I sat down with Keah Brown. Keah is an award winning journalist, author, and screenwriter. Her work on disability, identity, and pop culture has appeared in Town & Country Magazine, Teen Vogue, Elle, The LA Times, Marie Claire UK, And The New York Times, among other publications. We discuss the connection between disability and celebrity, not having time for imposter syndrome, the pressure of writing an a...

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In this episode I sat down with Anna Pakman, Margo Gignac and James Ian, the writer/director and stars of Emergency Plan, a new short film for the Easterseals Disability Film Challenge. Emergency Plan stars Margo and James as a disabled couple forced to send their young son out alone after a catastrophic East Coast earthquake — when it becomes clear no one is coming to help them evacuate. Ali Stroker voices the radio anchor whose w...

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In this episode I sat down with Rachel Handler. Rachel is a filmmaker and actor known for her stint as Peg Leg Doris on AMC’s “Interview With the Vampire” and her award-winning Slamdance films “Committed” and “HOW MUCH AM I WORTH?” We discuss the magic of theater and storytelling, her creative processes as both an actor and a writer, the importance of something like the Easterseals Disability Film Challenge for disabled artists and...

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In this week’s episode I sat down with Mariadeliz Santiago. Maria is a NYC-based disabled content creator, speaker, and advocate who uses her platform to champion authentic representation and accessibility in media. As a Latina with an upper limb difference and chronic conditions like Wolff-Parkinson-White syndrome and new daily persistent headache (NDPH), she creates impactful content that bridges beauty, lifestyle, and disability...

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In this week’s episode I sat down with Makenzie Morgan Gomez. Makenzie is a Mexican-American, queer, dynamically disabled performer based in Brooklyn, NY. She is a member of Actors' Equity Association and recently made her Off-Broadway debut starring as Libby in Neil Simon's I Ought To Be In Pictures at Theatre Row, where she used both a cane and a manual wheelchair on stage. We discuss going against society’s expectations ...

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In this week’s episode I sat down with Mark Povinelli. Mark is an activist as well as an actor on stage and screen. He is currently portraying Benjamin Lay, shepherd, sailor, revolutionary, the British Empire's first revolutionary abolitionist, and someone whose story for too long has not been told, in the Off-Broadway production of The Return of Benjamin Lay. We discuss who Benjamin Lay was, how this show came to be, the importanc...

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In this week’s episode I sat down with Rachel Wherley, Erin Elswood, and Shelby Holloway, the co-directors of the Mascots Matter campaign. Mascots Matter is an independent grassroots advocacy initiative calling for the retirement of offensive disability mascots. We discuss the origins of the “m” slur and its continued, harmful use through to present day, the founding of Mascots Matter and its advocacy efforts thus far, why discrimi...

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In this week’s episode I sat down with Felicia Gans Sobey. Felicia is a deputy editor of content strategy at The Philadelphia Inquirer. She is also a retired theater kid, an avid watcher of 90s/early 2000s TV, a Kindle obsessive, a dark chocolate lover, and a longtime friend of yours truly. As we are two Pisces girls turning 30, celebrating a friendship that has lasted half our lives thus far, I invited Felicia to ask and answer mo...

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In this week’s episode I sat down with Melanie Waldman. Melanie is a multi-award-winning filmmaker with the Easterseals Disability Film Challenge, a member of SAG-AFTRA, an on-air talent member at QVC, host of the Disability Reality Podcast (which, yours truly, will be making an appearance on very soon talking all things on Bravo), and she STILL somehow finds time to teach adaptive yoga to the disability community & beyond! We disc...

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For context, this episode was recorded on February 19, 2025.

In this week’s episode I sat down with Eliza Orlins. Eliza Orlins is a career public defender who has represented close to 4000 people charged with crimes in Manhattan over the last 13+ years. She’s an outspoken advocate and can be found raging against injustice on her social media platforms. We discuss the misunderstandings and misrepresentations of the criminal legal sy...

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In this week’s episode it is just me and the microphone as I sit down to answer your questions about my ongoing surgery recovery journey, healing in a world that was not necessarily designed for me, ending the chapter that was my twenties and preparing to enter the chapter that will be my thirties.

Relief For Disabled People Impacted By The Los Angeles Fires:

Richard Devylder Disaster Relief Fund: https://disabilitydisasteracc...

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In this week’s episode I sat down with Allison Lang. Allison is a content creator, speaker, model, and a medal-winning Paralympian, having just competed in the 2024 Paralympics on Team Canada’s seated volleyball team. Her advocacy focuses on self love and body acceptance with the hope of helping others who may be on a similar journey. We discuss connecting with authentic stories, what can happen when you feel seen and heard by a br...

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In this week’s episode I sat down with Chuck Aoki. Chuck is an American wheelchair rugby, aka “murder ball” player, a 4-time Paralympic medalist and one of the most recognized and decorated athletes in the sport both on the court and off. He is also one of the co-founders of Culxtured, a media collective that is changing the ways in which the world views para sport. We discuss the evolution of wheelchair rugby and how he found the ...

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In this episode I sat down with Violet aka hi its vi. Violet is a disability advocate, filmmaker, and content creator with almost 100 thousand followers on TikTok. Violet’s advocacy focuses on the representation of people with dwarfism in the media. For context, we recorded this episode on February 3rd following remarks made by the President and the media about people with dwarfism. This is a conversation unpacking how society perc...

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In this week’s episode I sat down with Adam Ayers. Adam is the current president of the Dwarf Athletic Association of America, also known as DAAA. DAAA is a non-profit organization that provides athletic opportunities for people of short stature. The organization consists of a core Board of Directors who are supported by volunteers and philanthropic contributors. We discuss how DAAA has evolved since its founding in 1985, what happ...

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In this week’s episode I sat down with Keely Cat-Wells. Keely, a Forbes 30 Under 30 honoree and Presidential Leadership Scholar, has been a dedicated advocate for disability rights since becoming Disabled in her teens. She is the CEO of Making Space, a talent acquisition and learning platform and co-founded Making Space Media, producing content that centers Disabled voices. We discuss investing in disability, the success of creatin...

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