Disability News You Can Use

Disability News You Can Use

Join Deanne Gagne and Andrew McQuaide as they discuss topics impacting Rhode Island’s Disability Community and share practical ways you can use information from each episode in your life. Disability News You Can Use is sponsored by Advocates in Action Rhode Island - Rhode Island’s statewide self-advocacy organization.

Episodes

July 22, 2025 41 mins

July is Fragile X Awareness Month, and July 22nd is National Fragile X Awareness Day as designated by the 106th US Congress. Join us as we speak with Barbara and Charles as they raise awareness about Fragile X, build community, and share how you can support someone living with Fragile X.

 

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Join us as we interview Donna Martin, Vice President of State Partnerships and Innovation, with the American Network of Community Options and Resources (ANCOR). We discuss changes in federal policy, the potential impacts of budget changes, and what individuals can do to have a voice in the conversation. 
 
Resources mentioned during the episode:
Ancor Amplifier
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Join us as we have a candid conversation with Joanne Malise, Director of Living Innovations, Judy Niedbala, the recently retired Chief Executive Officer of Perspectives Corporation, and David Reiss, the Chief Executive Officer of The Fogarty Center. We discuss their days at the Ladd School, the impact they have had on the Developmental Disability (DD) system since then, how to build a good life,...

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Join us as we interview Maggie Sebastian, a resident at Ladd School, and Joanne Malise, a former employee. We will discuss their experiences at Ladd and their lives since it closed. 
Best Judgement: Ladd School Lessons will air on Rhode Island PBS on May 8th at 8:00 pm. 
 
You can le...
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Join us as we interview Jim Wolpaw, Academy Award-nominated documentarian and co-director of Best Judgements: Ladd School Lessons, and Scott Hopkins, Peer Menotr at Advocates in Action and one of the film crew members, as we discuss the history of Ladd with the making of the film. 
Best Judgement: Ladd School Lessons will air on Rhode Island PBS on...
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Join us as we interview Kate Sherlock, a lawyer and consultant for Sargent Rehabilitation Center’s Regional Resource Center, and Torry Flis, an Inclusive Community Living Administrator at Looking Upwards, Inc., as we discuss Supported Decision-Making (SDM). 
You can learn more about SDM at ridecisionmaking.org. To learn more about the Supported Decision Making Coalition or if you have a story about SDM you would lik...
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Join us for our interview with Dr. Christopher Ottiano, Medical Director for Neighborhood Health Plan of Rhode Island, to learn more about benefits and how your insurance can work with you to provide the best care. 
You can learn more about Neighborhood Health by visiting their website (https://www.nhpri.org/). If you ...
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Join Disability News You Can Use for an insightful interview with Jackie Camilloni, Coordinator of Self-Direction at the Division of Developmental Disabilities (DDD). In this episode, we delve into goods and services, the process for requesting them, and any changes, providing a comprehensive understanding of these crucial aspects. 
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Join us for our interview with Anne LeClerc, Associate Director of Program Performance at the Division of Developmental Disabilities (DDD), and learn more about individual budgets, service changes, and more.
You can contact the division with questions by emailing (BHDDH.AskDD@bhddh.ri.gov). You can check out their website for more about these changes and updates. To get the latest updates, consider joining to receive the DD (Devel...

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Listen to our co-produced episode of Disability News You Can Use with RIPIN's Susan Donovan and Sharon Kochan and learn more about their new Self-Directed Supports Program (SDSP). You can contact RIPIN about this program by calling the main number at 401-270-0101 or email (info@ripin.org) mentioning the Self-Directed Program. You can check out their website at https://ripin.org/selfdirectedsupport/.

We want to thank RIPIN, especial...

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Enjoy this exclusive interview with the RI Director of Medicaid, Kristin Sousa. Director Sousa provides listeners with information, tips, and techniques for navigating RI's Medicaid renewal process. Links to resources referenced in the episode: Healthy Rhode RI website (https://healthyrhode.ri.gov/HIXWebI3/DisplayHomePage), Healthy Rhode RI iOS and Android apps (https://healthsourceri.com/healthyrhode-mobile-app/), Health Source RI...

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Join us as we interview RI General Assembly members Representative Tina Spears and Senator Louis DiPalma, take a glimpse into their tireless disability inclusion work, and learn how you can get involved in their efforts. Links to resources referenced in the episode: RI Legislature (https://www.rilegislature.gov/Pages/Default.aspx), Secretary of State (https://www.sos.ri.gov/), Open States (https://openstates.org/)


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This month, Deanne Gagne speaks with Ed Laurenzo, a certified personal trainer and person with a disability. Ed has conquered his self-doubt and strives to encourage others to reach their full fitness potential. Contact Ed via email at Eplpersonaltraining@gmail.com or phone: 401-226-5048.
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Listen to episode 1 of the Sherlock Center’s brand-new podcast, “Disability News You Can Use!” Join Deanne Gagne and Andrew McQuaide as they discuss topics impacting Rhode Island’s Disability Community and share practical ways you can use information from each episode in your life. This month Deanne and Andrew discuss the Division of Developmental Disabilities’ Technology Fund with Jennifer White, CEO of Able Opportunities.
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Listen to the trailer for the Sherlock Center’s brand-new podcast, “Disability News You Can Use!” Starting next week, join Deanne Gagne and Andrew McQuaide as they discuss topics impacting Rhode Island’s Disability Community and share practical ways you can use information from each episode in your life.
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