Treatment for schizophrenia is a tough journey for people with the illness but also for caregivers and loved ones. Due to cognitive symptoms, hallucinations, and delusions, a person with schizophrenia may not be able to make decisions on treatment or take care of themselves.
When should caregivers step in to legally take control over a person with schizophrenia?
What are the types of involuntary treatment?
What are the other options available to people with schizophrenia and caregivers?
Host Rachel Star Withers, a person with schizophrenia, and co-host Gabe Howard discuss involuntary treatment options in schizophrenia and the moral issues around forcing treatment on a person.
Guest Nicole Drapeau Gillen joins the discussion. Nicole was an IT executive and chief marketing officer turned caregiver and the author of “Schizophrenia & Related Disorders: A Handbook for Caregivers.” Nicole recognized that caregivers like herself often find themselves thrust into this challenging, complex, and stressful situation with little guidance on how to help a loved one with a serious mental illness.
In this episode, Rachel speaks about psychiatric advance directives. You can find more information at the National Resource Center on Psychiatric Advance Directives at www.NRC-PAD.org.
To learn more -- or read the transcript -- please visit the official episode page.
Our guest, Nicole Drapeau Gillen, is a caregiver and the author of “Schizophrenia & Related Disorders: A Handbook for Caregivers.”
Nicole began her journey as a caregiver in this world of schizophrenia in 2020 when her daughter became sick. After thrashing about for a few years, finding herself frustrated and desperate for information, she wrote the book on caregiving for someone with a serious mental illness.
In her book, “Schizophrenia & Related Disorders: A Handbook for Caregivers,” Nicole addresses a myriad of issues caregivers face, including:
• From the Beginning of the Journey: Treatment — medication primer, treatment primer, etc.; hospitals, case managers, and more; and doctors (working with, talking to, finding)
• Ongoing: Communication, definitions, family and friends; support groups — for yourself and your loved one; and creating your ongoing paper trail
• Could Happen Anytime: Housing/homelessness; navigating jail and police; and crisis — suicidal ideation, arrests, run away, etc.
• Getting The Right Support Setup: Legal — advanced directives; legal — power of attorney, conservatorship, guardianship; and financial — SSI, SSDI, other government services
• Long-term issues: Budgeting — estate planning, trusts and letter of intent; and transition to self support for your loved one
• And so much more!
As a caregiver, our journey is ever-evolving and fluid. No sooner do we get our loved one on a good path, then things take another twist and turn. This book aims to give you the fundamentals on how to help your loved one no matter where they are on their road to recovery. With clear steps and compassionate insights, you'll find a lifeline in your caregiving journey.
https://schizophrenia-caregiver.com/
Schizophrenia & Related Disorders: A Handbook for Caregivers
Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators. To learn more about Rachel, please visit her website, RachelStarLive.comm.
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