Let's Talk MND
You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.
Episodes
The Firies Climb for MND was created in 2015 by firefighter Matt Pridham after his best friend, Adam Regal, was diagnosed with MND. After learning that there was no known treatment or cure, they became determined to join the fight to find one. Together, they pledged to raise as much money and awareness for MND as possible.
All funds raised go to Prof. Dominic Rowe's Macquarie University Centre for Motor Neurone Disease Research. It...
On June 22, 2023, Ron “Hobbo” Hobden’s life changed in a single sentence: You have motor neurone disease. No cure. No treatment. Just a brutal countdown he never saw coming.
...Damian Andrews was 42 years old when he was diagnosed with MND.
Damian says he is going to "ride until he dies"
He and his wife Jane & their 3 boys live in Hervey Bay in QLD.
They are a dynamic family. Living every day the best they possibly can with MND.
They are also absolute champions, raising awareness of MND through their Facebook page which you can join here and throughout the media.
Dr. Christen Chisholm is a post-doctoral research ...
Victoria University are conducting a trial called "The neuroprotective potential of exercise in individuals with Motor Neuron Disease – the ProtEx-MND project". It is in collaboration with Calvary Health Care Bethlehem and received funding from the National Health and Medical Research Council (NHMRC).They would lik...
Professor Bradley Turner is Head of the Motor Neuron Disease Group and Research Lead of the Brain Health and Repair Mission at The Florey Institute. His group has a broad research interest in neurodegenerative diseases affecting the voluntary motor system in the brain and spinal cord. His team focuses on MND.
This is a very brief summary but if I spoke of all the research and publications we would be her...
In 2022, Peter’s life took an unexpected turn when he was diagnosed with MND. While initially confronting, this diagnosis became a catalyst for transformation. Rising above feelings of helplessness, Peter stands as a testament to the strength of the human spirit, embracing a renewed sense of purpose: to turn his personal journey into a platform for advocacy and hope.
As an Ambassador for MND Australia, Peter is passionately committ...
Dr Rowan Hearn is the Clinical Director Palliative Medicine at Calvary Health care.
Rowan supports the improvement of quality and safety in palliative care, having served as a member of the Governance Committee for the Palliative Care Clinical Network for the Department of Health, and Co-Chair of the Network’s Expert Working Group for Care of the Dying Person.
...Michael Schnieder is the Managing Director of Bunnings Group,
Mike is also the Chair of Fight MND.
Andrew Danson is a Director of The Leasing Collective. He is a board member of the South Melbourne Market. Andrew is also President of Motor Neuron Disease Australia
He has lived experience with the disease, with his father having passe...
Tim Baker is the best-selling author of The Rip Curl Story, Occy, High Surf, Bustin’ Down The Door, Surf For Your Life, Century of Surf Read more
Andrew Denton is an Australian Gold Logie nominated television presenter and former radio host amongst the many, many, things that Andrew has done. He was the host of the ABC's brilliant interview program and my favorite show ever, Enough Rope. Andrew founded Go Gentle Australia in 2016.
Go Gentle is a charity which promotes end of life choices. including the option of voluntary assisted dying. Go Gentle is instrumental in passing...
Emma Vulin is a Member of the Victorian Parliament.
She is the Member for Pakenham.
Emma was diagnosed with MND in April of 2024.
Emma is so open and honest about her diagnosis with MND and the changes that are happening to her and her family.
Emma is smart, funny, loving and loyal.
Enjoy her Podcast.
https://www.parliament.vic.gov.au/members/emma-vulin/
Welcome to the 2025 "Let's Talk MND" Podcast.
Mark Puls was diagnosed with MND in 2022.
Like many people living with MND, he is doing for others. He is raising funds for Prof Domonic Rowe at Macquarie University. Last year, they raised $13k. They are planning another event this October.
This year, members of his family and some friends will climb Mt Fuji in Japan to raise awareness of MND.
In this podcast we talk to Mark and his wi...
Barry Werth is a pharmacist. His wife Trean died of MND.
Barry has so much experience and is bringing his wealth of knowledge to many MND research projects.
He has also written a fabulous article on MND for Pharmacists so they can better care for their clients.
https://www.australianpharmacist.com.au/role-of-the-pharmacist-in-motor-neurone-disease/#:~:text=MND%20is%20a%20fatal%20disorder%20of%20motor,and%20improve%20a%20patient'...
Prof. Paul Tallman is a Neurologist who specialises in MND.
Paul also is one of the leaders of the MiNDAUS Registry, he explains it to us, how it can help and how we can help.
https://www.mindaus.org
Let's celebrate the first year of our Podcast
Troy Sachs is one of the world’s most recognised and awarded Paralympians. He led the Australian Wheelchair Basketball team, the Rollers, to win two gold and one silver medal in five Paralympic Games from 1992 to 2008.
In 1997 he was awarded an Order of Australia Medal and Australian Sports Medal in 2000. He is also inducted into the Sport Australia and Basketball Australia Halls of Fame.
Since retiring from sport, Troy has focused...
Matt Stickland has been LIVING with MND for 9.5 years.
He is a husband and dad, he has had to stop working, but is lucky to live on a rural property.
Matt has a beautiful attitude to life, is an amazing support to others with MND and is a demon at fundraising too.
I loved chatting to Matt.
Finn Cadman is 10 years old.
He is an MND champion, he is MND Vic's youngest ambassador.
Finn is unhappy about the discrepancy between NDIS and Aged Care.
Finn is "schmoozing" Politicians to make a change for his Glampa and others.
Julie Labra is a Project Manager with MNDA.
Julie has worked with people with MND for the past 19 years.
Julie was the project manager on the new Lived Experience Network (LEN) which brings together people with Lived Experience and people who wish to research different aspect of MND.
Working on projects with people who have Lived Experience is teaching her more about what it's like to live with MND and thier priorities.
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