PodcastDX
PodcastDX is an interview based podcast series in a “peer-to-peer supportive format." We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ailments. Many of our guests are engaging in self-advocacy while navigating a health condition, many are complex and without a road-map to guide them along their journey they have developed their own. Sharing stories may help others avoid delays in diagnosis or treatment or just give hope to others that are listening. Sharing is empowering and has a healing quality of its own. Our podcast provides tips, hints, and support for common healthcare conditions. Our guests and our listeners are just like you- navigating the complex medical world. We hope to ease some tension we all face when confronted with a new diagnosis. We encourage anyone wanting to share their story with our listeners to email us at PodcastDX@yahoo.com .
Episodes
This week we have the honor of speaking with Brenda and Aaron Luter. They have been married 23 years and live in St. Louis with their 2 sons, Josh and Alex. Josh was in a motorcycle accident his freshman year of college at SIU Carbondale in April of 2021. Alex just completed his freshman year at University of Arkansas. Josh recently came home from the hospital in February of 2022. Josh has a severe traumatic brain injury, inc...
This week we will discuss the basics about Monkeypox. We will have Dr. Tiffany Najberg on the show in two weeks to go more in depth about this new form of pox quickly spreading around the world.
Symptoms of monkeypox can include:
In this episode we will discuss tick-borne illnesses with Dr. Richard Horowitz. Dr. Richard Horowitz, MD is a board-certified internist with 30+ years of experience treating over 13,000 patients for tick-borne disorders and complex autoimmune conditions. He is the author of two national best-selling books on Lyme disease (Why Can't I Get Better? St Martin's Press, 2013, NY Times Best Seller; How Can I Get Better? St ...
In this episode we will discuss Crohns Disease with those great Spoonies from "The Real Life Show: Living With A Chronic Illness"-
Cassie Da'Luz Vieira and Chelsea Sondergard!
Crohn's disease is a type of inflammatory bowel disease (IBD). It causes inflammation of your digestive tract, which can lead to abdominal pain, severe diarrhea, fatigue, weight loss and malnutrition.
Inflammation caused by Crohn's dise...
In this episode we will discuss Hypertrophic Olivary Degeneration (H.O.D.) once again, this time with a new guest, Brad Asher.
Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord. Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vision problems, muscle weakness, and ...
In this episode we will discuss Colon Cancer. Since we don't have a guest this week it will be just the hosts this week.
Colon cancer is a type of cancer that begins in the large intestine (colon). The colon is the final part of the digestive tract.
Colon cancer typically affects older adults, though it can happen at any age. It usually begins as small, noncancerous (benign) clumps of cells called polyps that form on the insid...
In this episode we will discuss "Magic Mushrooms" with our guest, Del Jolly.
Del Jolly, Co-Founder of Umbo, Unlimited Sciences and expert in functional mushrooms, states the research at Unlimited Sciences collects real-world data on psychedelic use so that we can more quickly understand how to use these drugs safely and effectively for our health and overall wellbeing.
Advocate & Educator. Focused on shifting the c...
In this episode we will discuss heat injuries and dehydration. As summer jumps in with both feet, so must we! Please listen, share, and take care of one another.
There will not be a guest this week, we will discuss the topic in forum. We hope you will listen and share this important topic.
Sometimes it's the simple things that make a difference in our healthcare. Getting a regular check-up is part of what can keep small things that are easily treatable from turning into a more difficult problem down the line! This episode is part one of two and will be discussing Oral/Dental Health. We will cover general health questions in a few weeks.
Preventive dentistry is the practice of caring for your teeth to keep the...
You have a chronic illness, new diagnosis, rare disease or are a caregiver for one of the above.... You really want to get your story told! There are others in the world that can benefit from understanding your story, but how do you even start?
One idea is to become a guest on a show like ours, another could be writing a blog, or a book, or an article! Want to know more? Listen to this week's episode!
Sandra Hamilton, Founder of Cure-Cancer @UCL Institute
We have the honor of speaking again today with Sandra Hamilton of the "Cure-Cancer Foundation" (CCF) which supports the University College London, Non-Hodgkin's Lymphoma Cancer Research Division. She will discuss how the financial toll of this disease has affected her and her family, and what she has found helpful in this journey. She is joined today by h...
This week we are talking about Hepatitis means inflammation of the liver. The liver is a vital organ that processes nutrients, filters the blood, and fights infections. When the liver is inflamed or damaged, its function can be affected. Heavy alcohol use, toxins, some medications, and certain medical conditions can cause hepatitis. However, hepatitis is often caused by a virus. In the United States, the most common types of viral ...
Medicines are used to treat diseases, manage conditions, and relieve symptoms. Medicines are generally safe when used as prescribed or as directed on the label, but there are risks in taking any medicine.
Each year in the United States, adverse drug events – harm resulting from medication use – cause more than one million visits to hospital emergency departments. Learning about medication safety can reduce and even prevent the risk...
This week we are talking once again with Anna, this time about Crohn's Disease and Gastroparesis. Anna is a 35 year old female who has an independent spirit inside of a body that holds an alphabet of health conditions. Anna worked as a case manager for individuals with intellectual and developmental disabilities where she loved to advocate for her clients. When her health forced her to take a step back from working things hav...
This week we are talking about organoids. Scientists have shown over the past decade or so that organoids—small, organ-like structures grown in culture from stem cells—can integrate into many organs, including the liver, lungs, and guts of mice, and repair defects. In a study published today (February 18) in Science, researchers have advanced this approach in human tissue, and demonstrate that organoids derived from adult cholang...
This week we're talking about FCCM or, Familial cerebral cavernous malformation, with Megan. [FCCM is] ..." a rare, capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures, non-specific headaches, progressive or transient focal neurologic deficits, and/or cerebral hemorrhages". (cred...
On today's show we are speaking with Christina Coates about Hypertrophic olivary degeneration (HOD) a rare neurological condition caused by degeneration in the brain stem, the structure that connects the brain to the spinal cord. Signs and symptoms include palatal tremors, lack of movement coordination (ataxia), Holmes tremor, vision problems, muscle weakness, and gait impairment, along with an MRI showing enlargement (hypertr...
On this episode we have the honor of speaking with Robyn A. Maguire. She is a mother to 3 wonderful children. Her oldest is learning how to drive and excelling in her academics as a freshman in high school. Her middle child’s super into sports and music. Right now he’s teaching himself how to play the guitar. Her youngest son Zeke, smiles like sunshine, he warms the room. Funny, because his condition, Shapiro’s syndrome gives him ...
This week marks four years as co-hosts on PodcastDX. For today's show we will be recalling some of our most memorable interviews from these past four years. We have had the honor of speaking with 151 guests and have posted 209 episodes so it wasn't an easy task but with input from everyone on the team, I think we had success!
I want to take the time to thank our listeners from around the world.
THANK YOU!!
There isn...
Factitious Disorder Imposed on Another (FDIA), also known as Munchausen Syndrome by Proxy (MSbP) is a very serious form of child abuse. The perpetrator, usually the mother, invents symptoms or causes real ones in order to make her child appear sick. Our guest today, Craig Lewis, not only survived the ordeal but has written a book on his experiences and is a Peer Counselor to help others.
Craig recently published his book ‘Bette...
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