Episode 409: From the International Progressive MS Alliance Digital Tools Workshop

Last week, I was in Philadelphia, attending the Digital Tools Workshop hosted by the International Progressive MS Alliance. Welcome to Part One of our coverage!

 

As we look around us, it's hard to imagine a single aspect of our lives that hasn't been impacted by the constant and rapid evolution of technology. Just consider the capabilities of the device you're using to listen to this podcast. This workshop highlighted the ways that emerging digital tools will accelerate MS clinical trials and enhance personalized MS care.

In this week's episode, you'll hear Dr. Robert Fox, the Chair of the International Progressive MS Alliance Scientific Steering Committee, and Dr. Tim Coetzee, President and CEO of the National MS Society, discuss some of the ways digital tools can impact MS research and care, as well as some of the issues that need to be addressed to ensure that everyone living with MS can benefit from these tools.

Then, you'll hear the workshop co-chair, Dr. Jennifer Graves, discuss her team's work in developing a digital tool that can accurately determine whether an individual has relapsing-remitting MS or progressive MS -- after a 5-minute test that consists of tapping their fingers and feet!

You'll hear Dr. Anne Helme, the Head of Research and Access at the MS International Federation, explain how digital tools can boost patient-reported outcomes in MS research.

And you'll hear Dr. Stefan Gold share the positive results of his study involving an at-home digital intervention designed to treat depression among people with MS. 

We have a lot to talk about! Are you ready for RealTalk MS??!

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This Week: From the International Progressive MS Alliance Digital Tools Workshop  :22

Dr. Tim Coetzee and Dr. Robert Fox discuss how digital tools will impact MS research and care  :54

Dr. Jennifer Graves talks about her team's work in developing a digital tool, and how MS research is being threatened by drastic cuts in federal research funding   9:56

Dr. Anne Helme discusses how digital tools will boost patient-reported outcomes in MS research  16:26

Dr. Stefan Gold shares the positive results of his study involving an at-home digital intervention designed to treat depression among people with MS.   24:06

Share this episode  37:38

Have you downloaded the free RealTalk MS app?  37:58

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