In this deeply moving episode, we sit down with Libby Perna, a remarkable woman whose journey as a mother to her daughter Quincy with Leigh Syndrome is nothing short of inspiring.
Leigh Syndrome, is a rare and progressive neurological disorder, it presents daunting challenges for both the child and their family.
Yet, amidst the struggles, Libby and her husband have found unwavering strength and resilience.
Throughout our conversation, Libby shares candidly about her family's experiences, from the initial diagnosis to navigating the complexities of medical care and daily life.
She delves into the rollercoaster of emotions, from heartbreak and fear to hope and joy, offering invaluable insights into the realities of parenting a child with special needs.
But perhaps most remarkable is Libby's unwavering determination to empower her daughter and create a life filled with love, laughter, and purpose.
Through her unwavering advocacy and boundless love, she has become a fierce advocate for awareness and support for those affected by Leigh Syndrome.
Join us as we delve into Libby's remarkable journey, filled with courage, resilience, and the unbreakable bond between a family.
This is a story of love, hope, and the extraordinary strength found within the human spirit.
If you'd like to learn more about Quincy or to follow the Perna Family journey please connect with the on TikTok: @thepernafamily
or on Instagram: @thepernafamily
If you'd like to share your story, or feel stuck or defined by your circumstances please reach out!
I'm here to share our voices, and help guide and support any parents struggling in their journey.
You can connect with me on Instagram @felicia.sheline, find me at www.feliciasheline.com
or email at support@feliciasheline.com
*Subscribe today, and let's reinforce that every story deserves to be heard and we are here to embrace the extraordinary within the ordinary.
*Intro and Outro Music Composed and Produced by Hudson Sheline
Popular Podcasts
Stuff You Should Know
If you've ever wanted to know about champagne, satanism, the Stonewall Uprising, chaos theory, LSD, El Nino, true crime and Rosa Parks, then look no further. Josh and Chuck have you covered.
24/7 News: The Latest
The latest news in 4 minutes updated every hour, every day.
Crime Junkie
Does hearing about a true crime case always leave you scouring the internet for the truth behind the story? Dive into your next mystery with Crime Junkie. Every Monday, join your host Ashley Flowers as she unravels all the details of infamous and underreported true crime cases with her best friend Brit Prawat. From cold cases to missing persons and heroes in our community who seek justice, Crime Junkie is your destination for theories and stories you won’t hear anywhere else. Whether you're a seasoned true crime enthusiast or new to the genre, you'll find yourself on the edge of your seat awaiting a new episode every Monday. If you can never get enough true crime... Congratulations, you’ve found your people. Follow to join a community of Crime Junkies! Crime Junkie is presented by audiochuck Media Company.