Do Followers Equal Funds? - Heather's Experience Using Social Media To Raise Funds For Her Daughter’s Ewing Sarcoma

This chat with Heather was initially intended to talk about the difference between the US and Canadian health care systems and the cost of cancer, but more often than not, our talks veer into areas that go much deeper than what we originally planned.

Heather bravely and vulnerably shares how the financial pressures of her daughter’s treatment for Ewing Sarcoma made her feel like she needed to turn to social media for fundraising based on the success she’d seen when other families shared their child’s cancer journey.

The only caveat, she found, was that the more graphic and intense the photo’s, the more followers a family would have, which equates to more funds. Heather’s daughter wasn’t comfortable with sharing the more sensitive photos during her treatment, so Heather shares it impacted how many followers, and funds, they were able to raise.

This topic is VAST. There are so many opinions and strongly held beliefs when it comes to social media and how we, as a medical parent community, choose to share our child’s cancer.

There is no denying the value of social media when it comes to connecting parents, raising awareness for childhood cancer, and sharing with loved ones and our communities what our family is experiencing. But is there a line? Is there a place where we as parents have to consider what our kids might consent or agree to in the future?

Today we talk about Heather’s line, and what she felt comfortable with sharing. I would love to hear what your line is, and how it makes you feel to share, and what you feel comfortable sharing.

Thank you SO much Heather for starting this conversation with me, I really want to keep having it with all of you.

ALSO! You'll (not in a peaceful way) meet all my dogs in our episode today. They all send their deepest apologies for barking like crazy 🐕💛

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