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June 19, 2024 35 mins

Language can have a powerful impact on the patient experience and our perspectives on illness. Claudia Cometa, author, pharmacist, and founder at Peace Advocacy Group explains why to Jim Cagliostro. 

 

Episode Introduction

Claudia explains how her passion for advocacy arose following her father’s illness, and how moving away from images of a cancer ‘’battle’’  helps us to see our bodies as allies, rather than adversaries. She also highlights the barrier to healing created by the language of competition, how she found inspiration from the Princess of Wales, and why no patient should feel like they are a burden.        

      

Show Topics

 

  • ‘’How is this the patient experience?’’

  • Seeing our bodies as allies, not adversaries

  • Moving away from an ‘’illness identity’’

  • Overcoming the language of competition 

  • Creating a more peaceful patient experience

  • Leadership tip: Twofold knowing 

 

 

02:44 ‘’How is this the patient experience?’’

Claudia said it was her father’s cancer diagnosis that prompted a heart-centered decision towards advocacy. 

‘’…my father was diagnosed with cancer in 2016, and I quickly was in crisis resolution mode. I was on the other side of the equation, jumped headfirst into that side as it just made sense. I was the only one in my family who was medically trained. And so I saw the other side of the system for the first time of any significance and was mortified like, "How is this the patient experience? How did I, number one, not know this was the patient experience and how am I just now coming to grips with what is happening on the other side of where I'm working?" And it was very discouraging. Obviously helping my father, you want the best care for your loved ones. And so to not be able to get that, to be dismissed, I ended up firing several hospital systems. It was a really, really negative experience. And that was with my oversight. That was with my deep understanding of the medical system, how to navigate it. …. And so I vowed at that point that I have to do for others what I did for him. There's just no other way around it. …. It was a feeling that I've never felt before. It was a heart-centered decision-making I had never done before…’’

 

06:32 Seeing our bodies as allies not adversaries 

Claudia said using ‘’battle’’ language around cancer makes it sound like our bodies are the enemy. 

‘’… if I go back to when I was helping my dad, I hadn't really come to this realization yet. And so I was the daughter who was posting on social media, "We're going to fight this, cancer chose the wrong girl." I just fell into the trap of what sounded like what I'm supposed to say. Like, "Yeah, I'm going to win this battle." And it wasn't until years later, well beyond when he passed away that I really started to question, some of this being part of my spiritual growth too and personal development, but how are those words really helping us? If we are really talking about whether it's cancer or another illness as if we're going into battle, and ultimately, we're going into battle with our own body. So if we are going into battle, there has to be a winner and a loser. It's no different from any war that we're used to in history class or any wars that happen right now. There's going to be somebody who's goin

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