When dementia is the diagnosis, end of life discussions can be intense and heartbreaking. Hospice social workers Lisa Pahl and Jessica Empeno shed light on how to make things easier. Whether the dementia diagnosis is the primary (or terminal) diagnosis, or it is happening alongside another serious illness, the topics to be considered are complex. Everything from incontinence management to feeding tubes to ventilator support needs to be addressed. Talks about advance care planning should happen early and often, and include healthcare teams, family members, and anyone who might be involved in the caregiving group.
The Dementia Deck is one of the great tools out there to facilitate advance care plan conversations when there’s a dementia diagnosis in the mix. You can connect with Lisa Pahl (co-creator of The Dementia Deck) at thedeathdeck.com. Purchase your The Dementia Deck here. Check out The Death Deck here. Get a copy of The EOL Deck here. Follow The Death Deck: Insta Facebook TikTok
Visit the Compassion and Choices website to access the Dementia Values and Priorities Tool here. Read more about the Dementia Values and Priorities Tool at compassionandchoices.org Follow Compassion and Choices: Insta Facebook YouTube LinkedIn Bluesky
Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.
Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.
Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com
More podcast episodes: The Heart of Hospice Podcast
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