In this episode of Unlocked, Skot Waldron and Pam Cusick discuss the significance of Rare Disease Day, the importance of connecting patients with research opportunities, and the role of Rare Patient Voice in advocating for those with rare diseases. They explore how patients can engage in research, share their experiences, and contribute to the development of treatments and services that can improve their lives. The conversation emphasizes the need for awareness and education about rare diseases and encourages listeners to take action on Rare Disease Day.
Website: rarepatientvoice.com
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