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In this heart-wrenching yet profoundly uplifting episode, we walk through the unimaginable journey of Ashley Jones, a mother who faced the devastating loss of her infant daughter, Skylar. Ashley's story is one of unimaginable grief, but also of extraordinary resilience and purpose.
Ashley was a young wife and mother when her daughter Skylar was diagnosed with spinal muscular atrophy (SMA), a terminal illness. Despite the prognosis, Skylar lived for 21 months, during which Ashley and her husband Kyle embraced every moment with her, learning invaluable lessons about life, love, and purpose.
Through our conversation, Ashley shares the profound impact of Skylar's life and how it led her to found the Momento Foundation, formerly known as Love Not Lost. This nonprofit organization provides free portrait sessions for families facing terminal diagnoses, offering a tangible way to remember and process their grief.
We explore the transformative power of photography in Ashley's healing journey and how these cherished mementos have helped other families navigate their grief. Ashley's insights into the layers of grief, the importance of community support, and the need for empathy in the workplace are both enlightening and deeply moving.
Whether you're a parent, a caregiver, or someone seeking to understand the complexities of grief, this episode offers a beacon of hope and a reminder that even in the darkest times, love and purpose can shine through.
Resources
- Learn more about the Momento Foundation
- Join the Momento Collective for community support and resources
- Explore all WNTU episodes
- Subscribe to the WNTU weekly newsletter
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