Jessica Patay is a full-time caregiver to her son with Prader-Willi syndrome—and the founder of We Are Brave Together, a global support network for caregiving moms. In this episode, she joins Heather to talk about the emotional toll of rare parenting, why self-care isn’t a luxury, and what it really takes to show up for yourself when you're constantly showing up for everyone else.
They get honest about burnout, identity loss, and the power of community when you feel like you're running on empty. If you’ve ever felt like you're disappearing inside the role of caregiver, this conversation is for you.
FIND JESS:
🌟Bite Size Self Care Suggestions: https://drive.google.com/file/d/1_oy2od5u7P9qyPEvrcR72yqF8J66RGFK/view
🌟We Are Brave Together: https://www.wearebravetogether.org
Find Heather and Jake's Help from Heaven:
❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/
❤️ Heather's Instagram: https://www.instagram.com/heathersstraughter/
❤️ Jake's Help from Heaven: http://jakeshelpfromheaven.org/
❤️ Jake's Help from Heaven IG: https://www.instagram.com/jakeshelp/
❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven
❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast
#raredisease #rarediseaseawareness #rarediseases #griefandloss #medicallycomplex
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