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August 13, 2023 14 mins

"Olá! Boa tarde, meu nome é Zilda Ribeiro. Sou mãe de uma paciente com fissura completa e céu da boca aberto. Minha filha tem a síndrome de West, escuto falar que quem tem essa síndrome não tem muito anos de vida, não quero perder a minha filha, já passaram o diagnóstico e a causa. Portanto, gostaria de ouvir novamente e mas detalhado sobre essa sidrome. Também queria saber se há cura e a causa dessa sidrome e o seu tratamento e a espetativa de vida com quem convive com essa doença"


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