BARE IT ALL

BARE IT ALL

BARE IT ALL is about the GOOD, the BAD, and the UGLY parts of Biliary Atresia and we discuss some of the most vulnerable experiences patients & caregivers go through. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together.

Episodes

March 26, 2024 29 mins

Samantha shares Kendyl's inspiring Biliary Atresia story and how the disease impacted their lives.

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Stephanie & Jen have a coffee talk discussion about the upcoming 2024 Bare Symposium which will be hosted at Stanford in Palo Alto, CA on May 10th and 11th.

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December 1, 2023 32 mins

In this episode, we chat with Dr Mogul about itching and BA.


Connect with us:

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen ...

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November 20, 2023 44 mins

In this episode, we will be discussing Will's Biliary Atresia story.

Connect with us:

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families ...

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November 13, 2023 32 mins

In this episode, we will be discussing Stevie's Biliary Atresia story.

Connect with us:

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with familie...

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November 6, 2023 19 mins

In this episode, we will be discussing Caleb’s Biliary Atresia story.

Connect with us:

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to ...

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In this episode, we talk with Dr. Ahmad Anouti.

Connect with us:

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a...

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Jordan and Steph discuss some topics pertaining to their B.A. journeys like only child vs. multiple siblings, guilt, depression, and a few more!


Connect with us:

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your fam...

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Jen and Jordan talk with Lorraine Stiehl, CEO of the American Liver Foundation.


If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absol...

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July 14, 2023 38 mins
Interview with local OPO. --- Send in a voice message: https://podcasters.spotify.com/pod/show/bare-inc/message
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May 27, 2023 25 mins

Jen and Jordan discuss friendships before, during, and after their child's transplant.


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In the fifth episode of our Story Series, we focus on two people: Ezra's journey from diagnosis to Kasai and Jennafer, Ezra's mom, who while treating Ezra was diagnosed with stage 4 metastatic breast cancer. Jannafer talks about her journey with Ezra as being the caregiver and how it shifted when she learned she was sick. this episode also provides an honest prospective about life from the eyes of a mom who is staying stron...

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April 14, 2023 45 mins

The fourth episode of the Story Series provides a perspective not always seen in BA - Will not requiring a liver transplant until he was 12. We talk with Amanda and Dan, Will's parents, about their experience with Will's diagnosis and the social and emotional aspects of raising a child and pre-teen who eventually required a transplant. Dan, Will's father, talk about his experience as Will's living donor and Amanda g...

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In our third episode of The Story Series, we speak with Natalie, the mom of Connor. Natalie talks about Connor's diagnosis, balancing major life choices at the same time as Connor's diagnosis and what life looks like as a mom to a kasai-only BA child. Natalie provides an optimistic and real perspective to the milestones in her and her family's life.

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April 7, 2023 41 mins

In the second episode of BARE's Story Series, we meet Briggs' mom, Brittany. Brittany talks about her experience with Briggs' BA diagnosis as well as his first, second and THIRD liver transplant. We explore the long-term impact organ donation has had on their family's life. In honor of Donate Life Month, BARE explores different organ donation journeys.

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In honor of Donate Life Month, BARE explores different organ donation journeys. In our first episode of the Story Series, Jen talks to Stephanie and Arvid Skrede about the BA journey with their youngest daughter, Sophia. Music this episode courtesy of Michael Kobrin - The Introvert.

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March 12, 2023 52 mins

A discussion about mental health in the BA community with BARE's partner Liver Mommas!

Music clips

- I'm Fine by Ashe

- All I Really Want by Alanis Morissette

Book reference:

The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk M.D. - https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748

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March 12, 2023 55 mins

Jordan and Jen talk with Jenny Tice about her journey with BA and transplant as an adult. 

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March 12, 2023 59 mins

Jen and Jordan discuss love and marriage and how going through a pediatric liver transplant affected both, with special guest Morgan Hill.

If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA.  The COTA crew are looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life...

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BARE's Jen and Jordan discuss center rankings with Dr Saeed Mohammad and Riccardo Superina from the BARE Medical Advisory Committee  --- Send in a voice message: https://podcasters.spotify.com/pod/show/bare-inc/message
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