BARE IT ALL
BARE IT ALL is about the GOOD, the BAD, and the UGLY parts of Biliary Atresia and we discuss some of the most vulnerable experiences patients & caregivers go through. If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together.
Episodes
Join us in this emotional episode of BARE It All, Coffee Talk, as we sit down with Aaron to hear his poignant journey with biliary atresia and transplant. Aaron bravely shares the challenges and triumphs of living with biliary atresia as an adult, offering a candid look into his life.
The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-Am...
Join us in this episode of BARE It All, Coffee Talk, as we sit down with Jenna to delve into her son Alex’s journey with biliary atresia and transplant. Jenna bravely shares the challenges and complications Alex faced post-transplant, offering listeners a glimpse into their daily lives and resilience.
The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in As...
Join Stephanie and Maria as they delve into the crucial topic of newborn screenings with special guests Anna Grantham and Aman Dhami-Judge. Their insightful conversation sets the stage for the upcoming BARE 2024 Symposium, where experts will further explore this vital aspect of infant health.
To learn more about Hunter’s Hope and their mission, visit their website here or connect with them on Facebook. You can also tune in to their...
Samantha shares Kendyl's inspiring Biliary Atresia story and how the disease impacted their lives.
Stephanie & Jen have a coffee talk discussion about the upcoming 2024 Bare Symposium which will be hosted at Stanford in Palo Alto, CA on May 10th and 11th.
In this episode, we chat with Dr Mogul about itching and BA.
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen ...
In this episode, we will be discussing Will's Biliary Atresia story.
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families ...
In this episode, we will be discussing Stevie's Biliary Atresia story.
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with familie...
In this episode, we will be discussing Caleb’s Biliary Atresia story.
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to ...
In this episode, we talk with Dr. Ahmad Anouti.
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a...
Jordan and Steph discuss some topics pertaining to their B.A. journeys like only child vs. multiple siblings, guilt, depression, and a few more!
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your fam...
Jen and Jordan talk with Lorraine Stiehl, CEO of the American Liver Foundation.
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absol...
Jen and Jordan discuss friendships before, during, and after their child's transplant.
In the fifth episode of our Story Series, we focus on two people: Ezra's journey from diagnosis to Kasai and Jennafer, Ezra's mom, who while treating Ezra was diagnosed with stage 4 metastatic breast cancer. Jannafer talks about her journey with Ezra as being the caregiver and how it shifted when she learned she was sick. this episode also provides an honest prospective about life from the eyes of a mom who is staying stron...
The fourth episode of the Story Series provides a perspective not always seen in BA - Will not requiring a liver transplant until he was 12. We talk with Amanda and Dan, Will's parents, about their experience with Will's diagnosis and the social and emotional aspects of raising a child and pre-teen who eventually required a transplant. Dan, Will's father, talk about his experience as Will's living donor and Amanda g...
In our third episode of The Story Series, we speak with Natalie, the mom of Connor. Natalie talks about Connor's diagnosis, balancing major life choices at the same time as Connor's diagnosis and what life looks like as a mom to a kasai-only BA child. Natalie provides an optimistic and real perspective to the milestones in her and her family's life.
In the second episode of BARE's Story Series, we meet Briggs' mom, Brittany. Brittany talks about her experience with Briggs' BA diagnosis as well as his first, second and THIRD liver transplant. We explore the long-term impact organ donation has had on their family's life. In honor of Donate Life Month, BARE explores different organ donation journeys.
In honor of Donate Life Month, BARE explores different organ donation journeys. In our first episode of the Story Series, Jen talks to Stephanie and Arvid Skrede about the BA journey with their youngest daughter, Sophia. Music this episode courtesy of Michael Kobrin - The Introvert.
A discussion about mental health in the BA community with BARE's partner Liver Mommas!
Music clips
- I'm Fine by Ashe
- All I Really Want by Alanis Morissette
Book reference:
The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk M.D. - https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748
Popular Podcasts
The Podium: An NBC Olympic and Paralympic podcast. Join us for insider coverage during the intense competition at the 2024 Paris Olympic and Paralympic Games. In the run-up to the Opening Ceremony, we’ll bring you deep into the stories and events that have you know and those you'll be hard-pressed to forget.
In The Village will take you into the most exclusive areas of the 2024 Paris Olympic Games to explore the daily life of athletes, complete with all the funny, mundane and unexpected things you learn off the field of play. Join Elizabeth Beisel as she sits down with Olympians each day in Paris.
Listen to the latest news from the 2024 Olympics.
The 2024 Summer Olympics in Paris are here and have everyone talking. iHeartPodcasts is buzzing with content in honor of the 33rd Olympic Games and you can follow Paris Summer Games to stay up to date on all things Olympics. We’re bringing you episodes from a variety of iHeartPodcast shows to help you keep up with the action. Follow Paris Summer Games so you don’t miss any coverage of the 2024 Olympic Games, and if you like what you hear, be sure to follow each Podcast in the feed for more great content from iHeartPodcasts.
Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations.