In this episode of BARE It All Coffee Talk, Stephanie sits down with fellow board member Maria to explore the crucial role of advocacy in the biliary atresia journey. Whether you're a parent or a patient, effective advocacy can significantly impact your medical experience. Join us as we share our insights and experiences to support and guide others on their journeys.
The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.
Biliary Atresia - UCSF transplant surgeons.
If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at contactus@bareinc.org. Let's amplify our voices and foster understanding together."
Music by Magnetic_Trailer from Pixabay
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If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to www.cota.org/getstarted to learn more about how they can help.
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