All Episodes

October 28, 2024 13 mins

Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center's growth, and the importance of community and comprehensive care for individuals and families managing hemophilia.

 

Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by 2016, he assumed the CEO role. Under his leadership, the center has expanded significantly, serving an even larger patient population and providing crucial support and resources to those affected by bleeding disorders.

 

"I wanted to ensure that patients and families had the same care and services that I was offered in raising my son." ~ Jamison Buxton

 

Today on Beyond the Bleeds:

 

·     Early involvement with a hemophilia treatment center can provide essential information and support for navigating the challenges of a bleeding disorder.

·     It is important for parents to document everything to explain their child's condition and any bruises or injuries that may appear.

·     Opening a new clinic in Wausau provides patients with local access to care, reducing the need for long-distance travel.

·     The expansion of the Green Bay clinic was driven by a need to accommodate a growing patient population.

·     Strategic planning with the board of directors ensures that the center meets future demands and continues providing high-quality care.

·     Experiencing the challenges of having a child with a bleeding disorder gives Jameson a personal perspective that influences how he leads the organization.

·     Having a mix of employees with and without personal connections to bleeding disorders enriches the team and enhances patient care.

·     Finding a hemophilia treatment center near you is crucial for accessing specialized care and support.

 

Guest Contact Information:

 

Jamison Buxton: https://hemophiliaoutreach.org/contact-us

 

Resources Mentioned:

 

Hemophilia Outreach Center: https://hemophiliaoutreach.org

 

CDC Hemophilia Treatment Center Directory: https://www.cdc.gov/ncbddd/hemophilia/HTC.html

 

 

Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?

 

Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.

 

Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer

 

Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!

 

With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!

 

Visit:

 https://www.hemophiliaoutreach.org/events 

to register today.

Mark as Played

Advertise With Us

Popular Podcasts

My Favorite Murder with Karen Kilgariff and Georgia Hardstark

My Favorite Murder with Karen Kilgariff and Georgia Hardstark

My Favorite Murder is a true crime comedy podcast hosted by Karen Kilgariff and Georgia Hardstark. Each week, Karen and Georgia share compelling true crimes and hometown stories from friends and listeners. Since MFM launched in January of 2016, Karen and Georgia have shared their lifelong interest in true crime and have covered stories of infamous serial killers like the Night Stalker, mysterious cold cases, captivating cults, incredible survivor stories and important events from history like the Tulsa race massacre of 1921. My Favorite Murder is part of the Exactly Right podcast network that provides a platform for bold, creative voices to bring to life provocative, entertaining and relatable stories for audiences everywhere. The Exactly Right roster of podcasts covers a variety of topics including historic true crime, comedic interviews and news, science, pop culture and more. Podcasts on the network include Buried Bones with Kate Winkler Dawson and Paul Holes, That's Messed Up: An SVU Podcast, This Podcast Will Kill You, Bananas and more.

24/7 News: The Latest

24/7 News: The Latest

The latest news in 4 minutes updated every hour, every day.

Dateline NBC

Dateline NBC

Current and classic episodes, featuring compelling true-crime mysteries, powerful documentaries and in-depth investigations. Follow now to get the latest episodes of Dateline NBC completely free, or subscribe to Dateline Premium for ad-free listening and exclusive bonus content: DatelinePremium.com

Music, radio and podcasts, all free. Listen online or download the iHeart App.

Connect

© 2025 iHeartMedia, Inc.