Boston Children’s Answers: Raising Celiac

Boston Children’s Answers: Raising Celiac

Boston Children’s Answers: Raising Celiac is a monthly podcast from the Celiac Disease Program at Boston Children’s Hospital dedicated to raising the standard of education, awareness, and research on celiac disease and related autoimmune conditions. In each episode, the program’s education director, Vanessa Weisbrod, speaks with national and international experts about the complexities of this chronic genetic condition and its connection to many other autoimmune diseases. Every episode of the Boston Children’s Answers: Raising Celiac podcast is accredited by Boston Children’s Continuing Education Department for 0.5 AMA PRA Category 1 Credits ™ for physicians, 0.5 contact hours for nurses, 0.5 ACE CE continuing education credits for social workers, and 0.5 CEUs for registered dietitians.

Episodes

April 18, 2024 32 mins
This episode of the Raising Celiac Podcast looks at best practices in biopsies for celiac disease. Historically, confirmatory biopsies were obtained from the distal duodenum only, rather than the duodenal bulb. However, researchers have observed that some patients with celiac disease have histopathologic mucosal changes limited to the duodenal bulb only. This subtype, called isolated bulb celiac disease, has been e...
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Advocacy efforts can lead to the development of legislation and regulations that protect the rights and well-being of people with celiac disease. This includes advocating for accommodations in schools, workplaces, and public spaces to ensure a safe and inclusive environment for those with celiac disease. Advocacy can also greatly impact research and disease understanding when it leads to increased funding for scien...
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Food insecurity is a massive problem in the celiac disease community. Currently there is no treatment for celiac disease except for the gluten-free diet. Without access to gluten-free food, there is no treating this autoimmune disease. A recent study from Boston Children’s Hospital found that 24% of pediatric celiac patients experienced general food insecurity during the COVID-19 pandemic and that when asked specif...
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October 19, 2023 50 mins
There are a number of drugs in clinical trials for celiac disease. Some of them are designed to help patients with ongoing symptoms of celiac disease. Others will protect against small amounts of gluten cross contact. And, one could allow individuals with celiac to eat a normal gluten-containing diet. But, how far away are these drugs from being approved by the FDA? Will they be available to all patients with celia...
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Studies have largely debated the extent of the connection between Crohn’s disease and celiac disease, but all conclude that Crohn’s is more common in those with celiac than in the general population. Overlapping symptoms include abdominal pain, diarrhea, iron deficiency anemia, and short stature. A diagnosis of celiac disease or inflammatory bowel disease alone can be life altering and a difficult adjustment for ch...
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There are approximately 74 million school-age children in the United States alone, thus an estimated 740,000 school children who require a gluten-free diet for celiac disease. Celiac can cause significant effects on children and their families, as well as on the school they attend. We know that many children and teens do not follow a strict gluten-free diet and most often consume gluten-containing foods during meal...
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Hashimoto disease is an autoimmune disorder that can cause hypothyroidism, or underactive thyroid. It’s closely linked to celiac disease. With Hashimoto, the immune system attacks the thyroid gland, with a large number of white blood cells building up and causing inflammation in the thyroid. This damages the thyroid and prevents it from making enough thyroid hormone. The hormone is important because it helps contro...
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Living with a chronic disease is extremely challenging, especially when every single bite of food every single day of your life requires thought and care. Hypervigilance in relation to celiac disease is when someone is severely afraid of gluten exposure and may go beyond the necessary measures to prevent contact with gluten. It can lead to extreme anxiety, depression, and social isolation. Sometimes the patient wit...
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Dermatitis herpetiformis in an intensely itchy skin condition caused by a reaction to gluten ingestion. Most patients with dermatitis herpetiformis (DH) also have celiac disease. Though, oddly enough, DH patients sometimes have a normal intestinal biopsy and normal celiac blood tests but will still respond to a gluten-free diet. About 15% of people with celiac disease also have DH, though this population tends to n...
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April 20, 2023 36 mins
There is a well documented increased risk of experiencing headaches with celiac disease. One study found the prevalence of headaches in adults with celiac disease was 26 percent and in children with celiac 18 percent. The good news is that the gluten-free diet appears to help the headaches with up to 75 percent of adult patients and 70 percent of children with celiac reporting their headaches improved when they fo...
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The association between eosinophilic esophagitis (EOE) and celiac disease is still controversial and its prevalence is highly variable. Like celiac disease, one of the treatments for EOE is the elimination of specific food groups from the diet. But unlike celiac disease where the known trigger is gluten, with EOE, it takes some deeper investigation. It’s fair to say it’s complicated...So, how does a patient wit...
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February 16, 2023 36 mins
There is a well-established link between type 1 diabetes and celiac disease that was first discovered over 60 years ago. The estimated prevalence of celiac disease in patients with type 1 diabetes is approximately 8%, compared to about 1% in the general population. Due to the significantly higher prevalence of celiac disease in diabetes’ patients, many physicians recommend getting screened for celiac disease after ...
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Like celiac disease, ulcerative colitis is a chronic autoimmune disease where the body mistakenly attacks itself. Similarly to celiac, it may be triggered by a combination of genetic and environmental factors. Recent research links celiac and inflammatory bowel diseases like ulcerative colitis, but which comes first? Does one cause the other? If a patient tests positive for celiac disease should they be automatical...
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December 15, 2022 26 mins
Celiac disease is a genetically-mediated autoimmune disease that can affect any system of the body. The only treatment is a lifelong gluten-free diet. In people with celiac disease, gluten damages the lining of the intestines. This can prevent them from absorbing important nutrients from food and cause a variety of symptoms like abdominal pain, nausea, diarrhea, vomiting, fatigue, weight loss, mouth ulcers, and gro...
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December 5, 2022 1 min
Raising Celiac is a podcast from the Celiac Disease Program at Boston Children’s Hospital dedicated to raising the standard of education, awareness, and research on celiac disease and related autoimmune conditions. Hosted by Education Director Vanessa Weisbrod, each month the podcast will feature experts from across the United States and around the world to discuss the complexities of this chronic genetic condition...
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