Bowel Moments
Real talk about the realities of IBD...On the rocks! Hosts Robin and Alicia interview people living with Crohn's disease, ulcerative colitis, or indeterminate colitis (collectively knows as Inflammatory Bowel Diseases or IBD) and the medical providers who care for our community. Join us to meet people affected by IBD- we laugh, we cry, we learn new things, we hear inspiring stories, and we share a drink.
Episodes
A ninth inning ballpark burger. Days of relentless diarrhea. Then blood. John Capodilupo’s ulcerative colitis diagnosis didn’t arrive slowly, it hit like a truck, and it sent him into a crash course on what living with IBD really demands. We talk through the early fear and uncertainty, the 28-day hospitalization, and the chaos of juggling treatment while also battling infections like C. difficile and CMV...
Sara Herring lived with stomach pain so long she thought it was just life, then at 21 she finally got the word that changed everything: Crohn’s disease. Sara joins us for a raw, funny, and unexpectedly tender conversation about what it’s like to be dismissed as a kid, spend months chasing negative tests, and reach the point where you’re writing goodbye letters because you’re not sure you&rsqu...
Five years post J-pouch surgery sounds like a finish line, but our bodies do not read the brochure. We’re together in person for a live catch-up with our favorite recurring guest and IBD Registered Dietitian, Stacey Collins, and we get real about what changes with time and what still blindsides you when you live with a J-Pouch after IBD.
We talk through the wins that matter most day to day: more capacit...
The word “surgery” can feel like a threat when you’re young and already worn down by Crohn’s disease. Michael Morgan, author of *The Secret Life of Crohn’s*, joins us to talk about being diagnosed at age 10, cycling through medications, and living with the kind of urgency that forces you to plan every minute around toilets, school schedules, and the fear of being noticed. We get into th...
Medical care can be doing everything “right” and you can still feel wrecked, anxious, and trapped in a never-ending cycle of symptoms, appointments, and fear. That gap is where GI psychology lives, and it’s why we wanted Dr. Anna Katherine “AK” Black. AK is a licensed clinical health psychologist at GI Psychology, with a focus on gut-brain therapies, trauma-informed care, and medical fa...
A Crohn’s diagnosis at eight can shrink a kid’s world down to fatigue, fear, and the nearest bathroom. Nicole Thornton took that same reality and built something bigger: community, advocacy, and a blueprint for how young people with IBD can lead without pretending it’s easy.
We talk through Nicole’s early health journey and the moment Camp Purple Live in New Zealand changed everything ...
A lot of IBD news sounds like it should change your care tomorrow and then… nothing changes at your next appointment. We wanted to close that gap, so we invited back Dr. Victor Chedid and Dr. Iris Wang from Mayo Clinic in Rochester, MN for a Research Rroundup that’s honest about what’s exciting, what’s early, and what still has major caveats for real people living with Crohn’s disease ...
Your baby is bleeding, no one has a clear answer, and you’re expected to make high stakes decisions while running on zero sleep. That’s the reality Andrea Potvin lived when her daughter developed bloody stools at five months old and was ultimately diagnosed with ulcerative colitis at just 10 months old, a form often described as very early onset IBD (VEO-IBD).
We talk through the winding road to d...
Ever been told your pain is “just a flare,” even when your labs look calm? We sit down with Mayo Clinic gastroenterologist Dr. Xiao Jing (Iris) Wang to unpack why symptoms can linger after inflammation is under control—and what to do about it. From constipation myths to the real mechanics of bloating, this conversation reframes gut discomfort through muscles, nerves, and breath, not just meds.
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When your scope looks great but your day still falls apart, something’s missing. We sit down with Dr. Dawn Beaulieu, a Vanderbilt IBD specialist certified in functional medicine, to unpack a root-cause approach that complements biologics and brings relief where patients feel it most: sleep, fatigue, bowel consistency, and energy.
We get specific about what functional medicine actually is—science-b...
Remission rates don’t rise by accident—they rise when people, data, and purpose align. This week we were joined by our friend Becky Johnson Rescola, Executive Director and President of Improve Care Now (ICN), to unpack how a learning health network is transforming pediatric IBD care through shared data, quality improvement, and genuine partnership with families.
We trace ICN’s journey from t...
A mouse who can’t eat cheese and an owl who loves her anyway—sometimes the simplest stories hold the biggest truths. We welcome author MB Mooney to share how The Mouse Who Couldn’t Eat Cheese grew from the life and legacy of Alex, a bright, owl‑loving kid who lived with Crohn’s disease and inspired a foundation, Beautiful Beyond the Pain. Instead of a medical explainer, MB wrote a friendship-...
What if the decision you feared most was the one that finally set you free? We sit with Gaylyn Henderson—writer, model, and founder of Gutless and Glamorous—to trace her path from a swift, severe Crohn’s diagnosis at fourteen to an ostomy that gave her health, energy, and a voice loud enough to change minds.
Gaylynn opens up about the early years when prednisone and 6MP were the only options...
What does great IBD care look like when the system won’t make it easy? We sit down with Dr. Adam Ehrlich, Section Chief of Gastroenterology at Temple Health and GI fellowship program director, to explore how he builds patient-centered care in an underserved setting—where insurance denials, missing records, and real-life logistics collide with complex disease.
We talk about health literacy, trust, ...
The hardest part isn’t always the pain; it’s the fog—those days when the labels keep changing, the meds blur together, and the bills are louder than your body. That’s where Stephanie A. Wynn stepped in, transforming her Crohn’s journey into a movement for clarity, access, and equity.
We sit down with Stephanie—author, podcaster, and founder of the Stephanie A. Wynn Foundati...
Welcome to episode 1 of our series- IBD Can Eat Me guest hosted by Stacey Collins, IBD RD. In this series, Stacey will interview other Dietitians who also specialize in IBD. This week we welcomed Venus Kalami- board-certified pediatric Dietitian Nutritionist!
What if the strict diet you’re told to follow does more harm than good? We sit down with pediatric dietitian Venus to unpack how nutrition in IBD ca...
Want a clear, human guide to modern IBD care without the jargon? We’re joined by Janette Villalon, a physician assistant at UC Irvine’s IBD Center, who brings a front-line view of what truly helps patients: personalized therapy choices, honest safety talk, and practical plans that fit real life. She traces the evolution from a handful of anti-TNFs to a wider toolkit—anti-integrins, IL-12/23 and IL-...
A boxer in training. A terrifying spiral of symptoms. A life-saving surgery that changed everything. Jose Torres joins us to share how ulcerative colitis pulled him out of the ring and propelled him into purpose—building community, advancing equity, and living well with a J‑pouch in a city that isn’t designed for urgent needs.
We trace Jose’s path from misdiagnosis in Brooklyn to specialized...
Imagine being able to turn down the volume on gut pain, food fear, and medical anxiety—without white-knuckle coping or guesswork. We sit down with Dr. Ali Navidi, co-founder of GIpsychology.com and past president of the Northern Virginia Society of Clinical Hypnosis, to unpack how clinical hypnosis and gut-focused CBT help people with inflammatory bowel disease interrupt the gut-brain loop that keeps symptoms ...
Comedian Ian Goldstein takes us through his journey with Crohn's disease, beginning with his diagnosis at 16 when he was just trying to navigate the already challenging world of high school, SATs, and planning for college. With candid humor, he recounts the moment he realized something was seriously wrong – not just from frequent bathroom trips, but when a coworker pointed out his dramatic weight loss.
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