colab.conversations

colab.conversations

colab.conversations, focused on facilitating meaningful and constructive dialogues between patient advocates and stakeholders in the cancer community. this initiative aims to provide a platform for patient advocates to share their experiences, insights, and the exciting work they are doing.

Episodes

June 20, 2024 49 mins

in this episode, we explore the evolving concept of patient centricity in Health Technology Assessment (HTA) with Kathryn Cowie and Ranita Tarchand from Nested Knowledge. while the integration of patient perspectives into HTA is indeed realistic and increasingly feasible, not all countries are doing this, but is patient input enough to make HTA patient centric. if not, is a patient centric apporach to HTA realistic without guidelin...

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in this thought-provoking episode, i speak with farah megdji and megan marsiglio from Unum Co. about the nuances of patient centricity versus patient centeredness. we untangle the threads of these concepts, exploring what it truly means to prioritize the patients in healthcare. confronting the misconceptions and ambiguities surrounding these terms, shedding light on the key distinctions and their implications for healthcare.

are w...

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we delve into the critical topic of transforming healthcare through effective change management. Our guest, Alvina Nadeem, a seasoned change management consultant, shares insights into her perspective on what necessary shifts are required within the healthcare industry. we explore the pivotal role of Equity, Diversity, and Inclusion (EDI) alongside the transformative potential of Artificial Intelligence (AI). discover how these com...

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April 18, 2024 42 mins

with the rapid evolution of technology, the ways in which advocacy groups and individuals can mobilize for change have transformed significantly. in this episode of colab.conversations we explore the intersection of advocacy and technology and how social media is transforming the landscape and the myeloma canada's role in bringing these online voices together at their health ematters conference. to learn more or for the applic...

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with healthcare costs escalating and resources becoming increasingly strained, is there a need to reassess how we measure success and allocate resources within the system?this episode's guest, eva villalba from the coalition priorite cancer au québec and co-chair of the resilient healthcare coalition offers compelling arguments for why a focus on value—rather than simply cost—can lead to more efficient, equitable, and patient-c...

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in this episode of colab.conversations i chat with bukun adegbembo and rebecca armstrong from the canadian breast cancer network. we explored the multifaceted approach required to improve women's health outcomes, highlighting the importance of education, equitable access to healthcare services, and fostering a supportive environment for women not only facing breast cancer, but across disease areas. additionally, we explored int...

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in this eye-opening episode we venture into the world of pediatric oncology, where the faces behind the heartrending commercials reveal a poignant truth- while pediatric cancer is an undeniable reality, the journey to access innovative treatments in canada is fraught with challenges. in this episode, i speak to keith mcintosh from ac2orn in a candid conversation that transcends the surface-level awareness of pediatric cancer, delvi...

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in this episode, anris kica discusses into the critical need for patient-centric approaches in cancer care and clinical research, exploring the complexities of regulatory processes and health technology assessments. join us as we navigate the fine balance between optimism and frustration, discussing the urgency of accessing life-saving therapies for those in desperate need. uncover the challenges that hinder our ability to provide ...

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in this episode we explore the paraadigm shift towards patient centricity in clinical trials. we discuss the transformative impact of putting patients at the heart of the research process. barry stein discusses why we need patient-centric clinical trials, how they can redefine the way studies are designed, conducted, and evaluated. and what this means for the pharmaceutical industry and most importantly for patients.

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December 23, 2023 52 mins

n this episode of colab.conversations lisa machado discusses the power of the patient voice, and exploring ways to embolden decision-makers to pioneer a healthcare system that truly caters to patients' needs. from bravery in decision-making to unwavering support for patient advocates, this episode rethinks a patient-centric future. #patientVoice #beBrave #colabconversations #patientadvocacy

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in this episode, we dive deep into the world of oncology and explore the crucial topic of endpoints beyond overall survival (OS) and their pivotal role in health technology assessment (HTA). our guest, bob bick will provide background on how these alternative endpoints are reshaping the landscape of cancer research, and how this will impact health technology assessment. we'll examine the far-reaching implications of this paradi...

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in this episode, we delve into a thought provoking conversation with Louise Binder, an advocate who began her journey in the HIV space. drawing insights from the roots of patient advocacy in the HIV community, we navigate the intricate distinctions between advocacy and activism and louise shares invaluable perspectives on how HIV advocates successfully spearheaded transformative changes for patients. we explore the nuances between ...

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