Season 2, Episode 10: Stimulating the Senses; Hospice massage and aromatherapy

Episode Transcript
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(00:00):
And I need to be open to how
we can elevate their experience, enhance it, and
alleviate some of these layers of suffering that
they're experiencing. And and if I can do
that in a hands on way with massage,
then then that's
that's great. That's lovely.

(00:23):
Welcome to the death happens podcast, an insider's
guide to dying.
We're your insiders. I'm hospice nurse Penny.
And I'm Hallie, hospice social worker. Today, we're
going to be talking to Tiana Joy. She
is a hospice massage therapist,
and she practices aromatherapy.
So I'm excited to get into that. And
I love love that her last name is

(00:43):
Joy because she probably brings joy to so
many people, especially dying ones. She definitely does.
I am very excited to hear her stories.
I know she's got a lot. And in
honor of talking to a massage therapist, I
thought it might be a good time to
talk about all of the other ways that
hospice can be beneficial to folks besides your
core team of clinicians. So we've talked a

(01:05):
lot about nurses and social work and chaplains
and our spiritual
care and volunteers
and all the ways that we have built.
Aids. Don't forget our call list. CNAs.
Sorry.
I I think I got lost in my
spiritual counselor. Absolutely, CNAs. I think you should
be number 1.
But we don't talk anything a lot

(01:26):
about integrative therapies. So, obviously, we're gonna be
talking to Tiana about massage and aromatherapy.
But what are some of the other the
integrated therapies and alternate
therapies that you've seen in hospices?
Thanatology,
music therapy, and they are actually
different. You have to go to a thenatologist

(01:48):
training to be a thenatologist,
and I have seen pet therapy
a lot. Mhmm. My favorite pet therapy was
when I worked at a hospice care center
and the lady had a canary
in a cage. Fun.
A male singing canary, and she would bring
him in and set him on the table
in the patient's room.

(02:10):
And he would sing for the patients, and
it was so so cool. I just loved
that.
That's very cool. Very unique.
I haven't seen
any other animals besides dogs for animal assisted
therapy. I'm sure there are.
But the canary and the dogs are really
all I've ever seen.
The cats are probably too unpredictable

(02:32):
to I would I mean, honestly, I would
love to see cats. I know there are
cats that are social and go out on
leashes, and that's probably the one I've had
the request for the most
that I have to say.
I'm sorry. We don't have any.
We do have access to animatronic
cats,
which are fairly new, and they're actually
pretty freaking cool.

(02:53):
Really?
This company that makes animatronic cats and dogs,
the dogs are,
in my opinion, not nearly as much fun
and they're annoying because they bark.
But the cats,
they purr and you can feel the vibration.
So you can turn the sound off
and just feel the purring,
and they, like, move their head around, blink

(03:15):
their eyes, lick their paw, roll over so
you can pet their stomach. It's very cool,
especially they're specifically were made for folks with
dementia.
Wow. That is really cool. I you know,
cats do
There are people who don't
like cats, and I don't trust them. But
I always say, I don't trust somebody who
doesn't like cats.

(03:36):
What are you hiding? You know how cats
will, like, gravitate to a person that doesn't
like cats? They all do that. It's like
they know.
But I mean, cats bring
so much comfort and,
you know, my my cat sleeps with me
and she lays right here and purrs,
and it's just so soothing
and kind of total sidebar because it's not
about hospice, but,

(03:57):
they're they're actually doing some programs in prisons
now where they bring kittens in. I've seen
that. I've seen that? Yeah. Yeah. That's very
cool.
The guy the the prisoners have to go
through,
like, training, and they have to be,
like, stellar model prisoners, but they get these
kittens, and then they they take care of
them, and it really

(04:19):
softens them and, you know, it's really cool.
I love it. To find the story. I
saw a similar one, but it was
I wanna say cats out of a shelter,
and they brought in it was a lot
of cats. I mean, it was, like, 50
cats or something onto this
unit in prison,
and they were worried that of course, they
were worried about the safety of the cats,

(04:40):
but then they were worried about other things.
It actually lowered the instances of violence.
It gave the prisoners a purpose. It it
really
transformed, and, of course, none of the cats
got hurt.
So
Right. I think people that don't like cats
just haven't
been around a cat that's been socialized. That's
my

(05:01):
opinion.
Right. Well, when you were talking about the
cats
have to be, you know, like, they're trained
on a leash and social to be able
to be cat therapy
Mhmm. You know, part of the cat therapy
program.
My cat's trained on a leash, but she
is not social.
Well, and speaking of unusual or other animals,

(05:22):
I've also seen I've seen videos of full
grown horses, which is amazing, but I've also
seen in person
miniature horses Woah. Come out. They've heard of
that. Heard of that. I haven't seen it,
but I've heard of that. And
llamas pigs.
Pot potbelly pigs too. Oh, potbelly pigs are
cute. Mhmm. Yeah. So llamas are great because

(05:43):
their necks come around.
And when you're sitting in a wheelchair, you're
in a bed, they're much more accessible to
you.
Aren't they mean, though? I thought llamas are
are mean. Don't they spit on people?
Misconception.
They only spit when they're in kind of
a rut like breeding season
or,
you know, if they're therapy llama, they're gonna

(06:04):
be trained just like any other animal, so
behave themselves. The ones that we've seen are
very kind.
Another type of comfort therapy that I have
seen is
virtual reality. So my agency has a peds
program, and they do virtual reality for the
kiddos. They put the little virtual reality things
on, and

(06:25):
that's cool. I think that's very cool, and
I would like that.
You know? Yeah. I mean, because people who
I wish it was more accessible to more
people. So in my agency, it's just like
part of the pediatrics program. Not everybody can
have that.
But, you know, for somebody whose last
wish is to go
to the beach

(06:46):
and
they can't get there Mhmm.
To be able to bring the beach to
them in that way, you know, would be
really cool.
We definitely
did explore some VR options.
I I didn't really go anywhere. There were
some logistics issues and, of course, cost.
Yeah. It's expensive.
VR would will eventually I think the price

(07:07):
will come down. It'll be more accessible, and
that'll definitely be
awesome to integrate.
Just trying to think of some other things.
Music and memories for people with dementia.
I think we've all seen those amazing videos
where people will,
you know, act out dancing or conducting or
things or have memories when they're listening to
music because it's just such a fundamental part

(07:28):
of your memory.
The ballerina, have you seen that one? I
I stitched that and played that in, on
YouTube, I think. But, yeah, they play Swan
Lake and she starts dancing to Swan Lake
and she's got severe dementia, but she does.
It's amazing. I love that. I think it's
I think there's so much more that we
could be doing for people who have dementia,

(07:50):
but unfortunately,
it's just not it's cost prohibitive and Mhmm.
You know, it's really a bummer. But
Reiki is another. I don't know if Yeah.
Just because of energy work. Mhmm. Mhmm. Energy
work. Acupuncture is another one I've seen. Acupuncture.
Yep. Acupuncture
is another one that's common. What else?

(08:13):
I'm sure we'll talk with her about the
aromatherapy.
That's been something that,
is important when somebody has
wounds, bad smell smelling wounds. That's Mhmm.
Important.
Works better than cat litter under the bed,
which is what we used to do in
the care center. It didn't really work.
I haven't heard that before.

(08:34):
Now we put a pan of cat litter
under the bed to try to absorb some
of the odors. It probably absorbs some, but
not enough.
Alright.
Getting out there to find unique solutions for
things. That's what hospice does.
Yeah. We're MacGyvers.
We're MacGyvers.
Absolutely. We I think that's an important thing
for folks to think about when they are

(08:55):
exploring the different options of hospices. If they're
fortunate enough to not be so rural that
they only have one option,
then some of the things you can be
asking when you're looking at different hospices is,
what else do you offer besides the core
clinicians?
Yeah. And let's just speaking of the core
clinicians, let's just kinda
dip our toe in the regs and talk

(09:16):
about the core clinician. The core actually,
doesn't include
the core is the social worker,
the doctor, the nurse. Those are the required
members of the IDG,
But then we all all are also required
to provide
volunteers, CNAs, and spiritual,
services. So Mhmm. The there's the core team

(09:38):
and there's the required disciplines that are Well
and it's funny because there's requirements,
like, I know you know all the regs.
The requirements for volunteers,
it's you don't have to have a volunteer
on your team, but the hospice has to
have a certain amount of hours per
patient or per clinician or something?
5%.

(09:59):
Yeah.
5% of our patient interaction or patient care
has to be provided by volunteers. I I
don't think a lot of people know that
about hospice when they're saying, you know like
we're all about the money, we make so
much money,
we have to have a very robust volunteer
program,
we have a volunteer coordinator, we have volunteer

(10:19):
managers, they have this training that they do
their recruitment, all this stuff to support
these volunteers.
We don't get paid for that. Oh, yeah.
We don't get paid for bereavement. We're required
to provide bereavement. We don't get paid for
that. Yeah. So like when people are saying,
oh, hospice makes so much money. No. We
really don't.
We actually don't when you look at all

(10:40):
of the things that we are required to
provide
for everybody who's on service equally
and how much they actually pay us, which
is one flat rate per day.
You know, it doesn't add up to, like,
we're breaking the bank. So That's why it's
incredible that the hospital has ever come up
with,
you know, alternate therapies or other things because

(11:02):
Right. A lot. It costs a lot. People
aren't just out here
doing massage for free. They gotta make a
living too. So Right. Exactly.
Yeah.
Yep.
Alright. Oh, goodness. Going off the soapbox. We
have I know. Scared of you. I'm done
getting on the soapbox.
I have so many soapboxes. It's hard not

(11:23):
to massaged.
Alright. Let's get to our massage therapist. Let's
do it.
Welcome, Tiana. We're so glad to have you
with us. Welcome.
Thank you for having me.
Inviting me to talk about this stuff is
exciting.
And we're excited to talk about it. So

(11:44):
we know you're doing massage and aromatherapy, but
tell us a little bit about yourself.
Well,
I am Tiana Joy. I have been
well, I do a lot of other things
besides just massage and hospice stuff.
But I live out here on Whidbey Island,
and I've been working in massage for about

(12:05):
30 years now, almost 30 years, and I've
had a
exciting and interesting career along the way. In
the last,
oh, 10 plus, maybe 13 years, I've been
working in hospice,
and,
I love it. And in a lot of
I meet a lot of great people, and
I hear a lot of great stories. And

(12:26):
some I can tell and some I can't
tell.
Yeah. What what else can I tell you
about myself? Because I like,
I like music. I like art. I like
nature.
I love to you know, you'll find me
in the woods staring at the leaves and
hugging trees a lot.

(12:48):
But I think you've already won over Penny
saying that you're on Whidbey Island. Yeah. I'm
from Whidbey Island. Oh, you are. Yep. Mhmm.
Yeah. I grew up in Oak Harbor.
Oh, yep. That's my turf.
I zip through Oak Harbor all the time.
My commute's not so bad on the island.
I mean, I service

(13:09):
other counties,
but, pretty much running up and down between
the south end of Whidbey and the and
Anacortes and beyond,
up 20,
my commute is like Deception Pass and and
all the trails and the beauty and the
ocean and
the toves and the this is lovely and
lush out here. I love it.

(13:31):
I think that's an advantage that we have
over here in western
Northwestern Washington is
between our visits, which may or may not
be challenging, we do get to have a
beautiful respite as we're driving through nature.
Oh, yes. I
try often
to time my,
travels across deception pass and that beautiful bridge.

(13:54):
If I get it at sunset,
it's you know, I gotta stop and pause.
How do you not stop and pause at
that? It's it's amazing.
I love it.
Well, maybe start by letting us know,
how did you end up getting into massage
in the first place? And then
in that journey, what led you to hospice?

(14:15):
Sure.
Well, I started doing massage out of necessity,
and I was receiving it. I was feeling
very,
broken down and working in I was a
bartender. And
and after years years, you know, that's fun
when you're young, but,
it starts to just just wears on you.
Working

(14:35):
with, you know, drunks every day, and
you just see that
and, you know, the choices that people are
making that maybe aren't helping themselves, and I
could've even applied that to myself. You know?
Mhmm.
So I started getting massage, and I found
this place that had float tanks
floatation tanks and massage. And

(14:56):
and I just once a week, I just
started I go straight from work,
you know, the bar all day on a
Saturday, Sunday afternoon,
and straight to this massage and do a
float. And it just started to heal me,
and I real I was in the float
tank one day, and I had a a
revelation that, you know, I'm the one that
needs to make the changes to my life,

(15:18):
make these improvements, really. So I started looking
into massage and found it really interesting. And,
I mean, in many ways, it might have
been a life raft that I jumped on
to, but it was a good choice. You
know, we gotta make good choices. Sometimes
when you're living in a world of lots
of bad choices,
you make the good ones and then you
keep making the good ones. And eventually,

(15:40):
you know, you're right yourself.
And
so that's that's how I started. And
from there, I had a twisty turn of
lots of different settings that I was doing
massage. I was working with chiropractors and in
pain clinics, and I had my own business
for a long while. And,

(16:00):
yeah, lots of different,
working in spas
and
just meeting people and and different venues. And
it was it was fun. It was great.
And I really love working on people and
they're and working on bodies and getting my
hands
on people.
It was pretty satisfying
and rewarding because I knew I was helping

(16:22):
people.
And,
yeah, so that's how I started. And I
I did that for many, many years.
I I'd also you know, I should say
that I had been
exposed to hospice for a long time in
my most of my life, honestly,
from a traumatic accident that I had when
I was a kid that left me in
the hospital. And I I had a in

(16:43):
that experience, I was in this children's hospital
for quite a while. And
during that time, I had a lot of
exposure to different
setting. I mean, the setting itself was kind
of tragic. We were there was a lot
of sadness and and suffering, and it was
a lot of children
like myself that were suffering. In fact, it
was all because it was a children's hospital.

(17:05):
But the experiences that I had there really
shaped me going forward in ways that I
didn't understand as I was much older. And
a lot of that was the compassionate
touch that I received from the volunteers that
was safe. And, I mean, it was I
was such a cranky, cranky patient. I feel
I am so sorry to any nurses that

(17:27):
might have ever worked with me, if you
remember me, or are still alive because 1980.
It was a long time ago. I'm really
sorry I threw that bedpan at you. It
was awful.
Or, you know, I have a I have
a long list of apologies to make to
people.
And I was it wasn't easy. And
the kids I was in a room with,

(17:49):
it was
6 beds in a room. That's that's a
lot of kids. A lot of girls
suffering together. And our experiences that we shared,
although they weren't happy times in our lives,
we we found a way to connect
while we were there, you know, together. And
especially,

(18:09):
you know, there were just there were complicated
things that we went through together. And
things I witnessed and things I experienced and
trauma,
trauma, trauma, which I don't wanna talk too
much about because
as we know,
we don't operate well when we're triggering ourselves
in our traumatic experiences. Right?

(18:31):
But I would like to talk Sounds like
gentle touch was a really good
venue for you to escape that at least
temporarily.
Yeah. And then
onward to make those better choices you were
talking about.
Yeah. Yeah. It was
yeah. There was just moments in all of
my
sourness that I was able to experience just

(18:52):
relief. And
and I didn't understand
compassion and gratitude back then, and I didn't
express know how to express it. That's for
damn sure. But
I,
you know, my but the experience stuck with
me. Those I would it might only I
might have only got, like,
a nurse or a volunteer to put lotion

(19:13):
on my back, like, once a week or
something. But when you're in the hospital for
months months,
it's like, you're looking forward to that.
I remember I had, like, nappy
dreadlocks because I wouldn't let anybody
touch me, like, cut my shampoo my hair
or
eventually, they just cut it all out.

(19:34):
But, you know,
it was a pretty
dark time in my life. There were
happy times too, but
I
I made it through those dark times and
and, gone out. And the lessons that I
learned and I took with me along the
way were what I what I hold on
to and I cherish from the experience now.

(19:54):
And
and that brings me to, you know,
my understanding of what people are going through.
I know what it's like to lay there
and be sad and lonely and in pain
and suffering
and
not be able to get out of bed
and be hooked up to machines
and
and what that really is like. And Be
grumpy with your nurses?

(20:15):
Grumpy. Yeah. Yeah. Yeah.
To be grumpy.
And
and that's
that's okay. So when I go into somebody's
room and I understand that that's how they
feel and and I need to be open
to how we can elevate their experience, enhance
it, and
alleviate some of these layers of suffering that

(20:35):
they're experiencing. And and if I can do
that in a hands on way with massage,
then then that's
that's great. That's lovely.
There's so many beautiful, lovely moments that I
have with people, and there's some really, you
know, not so pretty ones too that
are important to talk about and acknowledge. But
the trick is really being open to the

(20:56):
open to all the possibilities and sometimes being
very creative.
Because,
yeah, you know,
there was not any
positions. When I started this career,
this wasn't a paying
job out there. It was like volunteers
for hospice, and maybe you got a massage
once,
if you're lucky, in your journey with hospice

(21:17):
as a patient.
It really wasn't something that that I could
really
dig into as a career. Right? So I
kinda had to
pave my way
on my
own. And over time, I got a reputation
and as working with,
with Alzheimer's
and
dementia and hospice patients. And

(21:40):
then I found, you know, the serendipity of
working with the agency that I do now
and the fact that they embrace it and
love me
and respect me. Wow. That's something really new
for,
a massage therapist and a and a group
of doctors and nurses and medical professional
professionals to sit and sit together and treat
each other with respect

(22:01):
and listen and
really value each other and our insights and
inputs. That's a new experience I had never
had in my career.
I've been pooh poohed and dismissed
so often
that it's,
yeah, it's it's
been a challenge, but I don't experience that
anymore. I I it allows me room to

(22:24):
to grow and move
and be able to to, you know, do
what the patient needs, what they you know,
if I can just get my hands on
their back and find what they need. And
let's talk about preexisting
conditions and injuries that when you get to
the end of your life and you come
into hospice and
you, have a have had an active life,

(22:45):
you have a
lifetime of injuries
and experiences
that are are still in your body. And
many people that we deal with in our
communities have they're 80 90
years old. They have not had massage before.
They didn't know that they could get treatment
for these horrible
rotator cuff injuries that they'd had or

(23:08):
knees or
backs or
things like well, we have we're we work
in a service, a territory that is a
logging community.
And
I've met many, many folks out there that
have had trees fall on them.
Or
a a guy that he, like, lost his
finger at work one day in a job.

(23:29):
He went home and taped it up and
went back to work. And
that's the story of his finger when I
asked him, you know, tell me about this,
which
I've learned about scars that I don't always
really wanna ask too many questions because
but but sometimes it's important for me to
know why does a person have
this interesting
scar pattern and how can I gently get

(23:51):
in there to help it along?
And so it's important to know, but some
of the answers that I get are astonishing
sometimes. I've
met a fellow that was survived a bear
attack,
and his body had
once he told me the story of how
the bear, like, picked him up in his
jaws and shook him around by the torso

(24:12):
and how it what it did to his
his rib cage
and and he survived it. And the story
of his survival,
this was something that that's not why he
was in hospice. But he had had that
experience in his life when he was a
young man. And
wow, you know, and I get to put
my hands on that and feel it and,
you know, get to know it and ease

(24:33):
some of the pressure and the
everything that it's his connective tissues have been
holding for all these years. If I can
alleviate a little bit of that, then that's
great.
Same goes for people who have had all
kinds of devastating accidents in their lives or
if alleviating that kind of level and layer
of

(24:53):
pain and suffering in their bodies,
it's huge.
And our team recognizes that too and value
that. Like a lot of their pain that
they're experiencing sometimes is
pain from those injuries that they've held on
their whole lives, and they didn't know they
don't really know what it feels like not
to have that pain. And
when, they get that relief,

(25:15):
sometimes they feel great. And plus, the amazing
care that they're getting with our hospice
that is helping with their medications
and
and all of the things,
they I mean, I've heard many times people
say, you know, I feel great. I feel
better than I have in years. Why am
I in hospice?

(25:36):
Like, I wanna go out dancing.
Great. Go for it. You know?
Yeah.
So
there it's sometimes the scars are traumatic too.
You know? I remember working with a person
a couple people I've a couple people. I've
got my hands on a lot of people

(25:58):
in over the years. You know?
I was thinking about it last night.
When I was trying yeah. Uh-oh. I didn't
sleep too great last night. I was thinking
about it. I've had my hands on, you
know, in their dying experience.
Thousands of people perhaps when you add it
up and do the math and try and
I try to isolate, you know, who who

(26:19):
do I wanna talk about and who can
I share?
That's a lot of people.
And who do I not talk about and
who should I not share? Because that's important
to know too.
But I was saying about the scars,
these defensive wounds on the arms.
And I'm working on the arms, and I
need to understand what is this about. And

(26:42):
this person said that they had been attacked
with a knife
and slashed. And
the thing about that was their traumatic experience
was not a traumatic experience to them. I
mean, it happened, but they didn't have drama
about it. You know? They just
it was just a part of their life,
something that happened.

(27:03):
I think
that's interesting
and fascinating. And and I respect whatever their
attitude about their trauma is. That's that's theirs
to have or not have. Who am I
to decide what, you know, what they should
feel bad and or, you know, bad about?
Well, I can definitely understand you wanting to
know what the traumatic experience is because you're

(27:26):
like the CNAs. You're laying hands on someone
in an intimate way.
Yeah. Absolutely. I need to, understand,
and I need to understand it for the
sake of the tissue that I'm manipulating.
I mean,
gently, I will say, it's a gentle Mhmm.
Massage
90%
of the time, but still, that's important for

(27:48):
me to know, and I'm laying hands on
them. I'm that's an intimate thing. That's
sometimes the stories just come out and unfold,
and
I'm not,
I always defer to the other professionals on
my team when I feel the need that
it's needed.
That's important because I'm not
a counselor. I'm not certified in any capacity.

(28:11):
But when somebody starts to you know, their
cellular memory gets released and they start to
verbally process stuff that's garbage they've been carrying
with them their whole lives,
I'm not there to offer any
any anything other than to just
be present with them while they have their
experience and unload their garbage.

(28:32):
I think that's
that's the best I can do. There's no
way I'm gonna tell somebody that please stop
sharing with me right now
when they're having that experience.
So that's really powerful too. Just that and
the freedom that that can offer somebody
to move past that,
that's lovely. So yeah. Do you do,

(28:55):
do you do Reiki?
I I do. Yes. Or any other, energy
work? Yes. I do. Can you tell us
a little bit about that? Oh, how that
works? What is that for people who don't
know, and how does it work? Yeah.
Well,
without going
too deep into it because I'm not a
Reiki master, I but to,

(29:15):
but, yeah, I guess I am. I mean,
the way the system is set up, I
have been
certified as a master.
It's not it's something I always incorporate into
the my massage. My background is actually
treatment. And
craniosacral,
I do a lot of so
I've I've had a history of being a
jock, like a massage jock, working on

(29:37):
injuries and athletes and deep tissue.
That's my a lot of my background,
15, 20 years ago. But
when I got into learning more sensitive touch
like Reiki
and herniosacral, it was,
very helped me balance out my hands on
stuff. So Reiki,
for those who don't know, it's it's

(29:59):
connecting with the energy.
And, you know, I'm
I have a lot of feelings about it
that I'm
I don't always know. I'm I defer to
the mystery. Right? Like, I'm not gonna try
to explain exactly what
what this is because
I don't know. But I can tell you
one thing. I can feel it in my

(30:20):
hands.
I can tell you what it feels like,
and my my patients and clients that I
work with, they can experience it. And other
Reiki practitioners out there understand it and know
what I mean. But it is
channeling
light energy
through touch,
just best I can explain.
I have been honored to work with one

(30:43):
Reiki master that
in the course of my time with hospice,
and she as her cognitive function kind of
started to
wane and she had some,
dementia setting in, one of the best compliments
she gave me once was that she could
hear my hands thinking.

(31:03):
And I love that. She when it's true,
my hands were, like,
connecting with her on in a way and
and the fact that she could feel it
enough that she wanted to tell me, and
she wasn't very,
nonverbal,
at the time.
So I thought that was just beautiful and
a statement as to the connection that people

(31:24):
really feel when they experience Reiki.
The warmth and the light and the it's
kind of fuzzy and,
it's gentle. It's hands on. I can integrate
it with any work that I'm doing,
And I'm always on. I mean,
I sometimes I close off, and
I have to keep some for myself. That's

(31:45):
not true. It's very generous. It's a generous
light
and energy, and it's
palpable
in many ways, but sometimes I need
to hone it in. So is it like
an energy
would you say it's like an energy exchange
with that person?
Like yours and theirs commingling?
Yeah. Somewhat, but it's more like an like

(32:07):
infusing them
with light. And I only am,
functioning,
you know, for the greater good of what
they need.
You know, what their greater good is
is not for me to decide specifically, but
I let the work do its work with
them. It's not it's is it magic? I
don't know. You know? People say, magic hands.

(32:30):
She has magic hands. Well, a big reveal
is I'm I'm not a
magician. I'm not yeah. I mean, I'm not
magic
anymore than you are or you are or
anybody who,
leans into whatever their superpower is, I guess,
not
to compare me with a superhero. But we
all are, right, if we

(32:51):
if we lean into it. So let's see.
I could go really sideways on this. But
Hold that thought because I do wanna get
into some patient stories, but I think it'd
be important for the listeners to
understand what the difference is. The thing I've
run into a lot is thinking that they
have to get a if I say, hey,
would you like you know, are you interested
in massage to help with whatever?

(33:11):
They think they have to get naked and
get up on a table. So what does
massage
and Reiki and aromatherapy, what does that look
like in hospice versus private practice?
Well, yeah, let's talk about that. It doesn't
really look anything like going to a spa.
Right? It takes a lot of energy to
get undressed and dressed again and

(33:32):
if you're wearing clothes and and and to
get on a massage table and
all of that. There's it's usually working in
a recliner or a hospital bed or a
comfortable chair,
sitting,
side by side with somebody.
I work however that person is comfortable working
and
to whatever level. I may just be working

(33:53):
on neck and shoulders and maybe feet or,
or side lying,
on a hospital bed
is really popular, and that's,
ergonomically,
that's a much better choice than trying to
than some other ways. That was a trick.
You know? There was no,
I didn't I I had to teach myself

(34:14):
how to do this and how not what
to do and what not to do. It
looks really,
like, it would be really comfortable to stand
over somebody's hospital bed and get my hands
on their heads and do their neck and
shoulders and craniosacral
and reiki, and that looks like it would
be great. But the thing that I'm doing,
my shoulders and my head or in my

(34:35):
hands and my head,
it takes a toll on me. I can't.
I take it home with me, and the
next thing you know, I'm, like, locked up.
So it took me a long time to
figure out that that was the culprit to
some of my dysfunction that I was experiencing,
and I had to find different ways to
hold people
and be with people and get my hands
on them, you know? And I only work

(34:57):
how they're comfortable.
That's another thing. I it's important that I'm
meeting them where they are.
And
as far as the, oh, the aromatherapy,
now that's delightful.
I have been working with herbs and
oils and
aromatherapy
for most of my career because I was

(35:18):
always drawn to it. And that has always
appealed to me. But
working with the essential oils for hospice patients
is very different
than
it's I'm not I I get to make
the program work how it works for each
individual.
Perhaps
they might need something for symptom management. Like,
peppermint is a lovely oil, and it it

(35:40):
can be used for all kinds of things
like stomach aches and cognitive
enhancements.
I can make inhalers for people or spritzers
or
offer something in a diffuser to just kinda
keep the general tone of the room
relaxing.
I do some in some foot baths, and
that's lovely.

(36:01):
Because people can
design this however we can work together to
make it be what they need. Sometimes it's
a nice foot soak and a scrub and
and massage, and sometimes it's very
ceremonial. I follow their lead. Maybe we'll sit
down, have a cup of tea, and I'll
wash their feet while they talk and reflect

(36:21):
and reminisce or share it with share the
experience with their family.
I've had lovely, lovely
interactions with
grandmothers and granddaughters
that is just something that really builds a
bridge for people,
And
it's
just it's sweet and beautiful, and it's something
that that child can take with them in
their life that they had this lovely experience

(36:43):
with their
grandparents. And and,
I believe that people
need to somatically
and get out there and move their bodies
and
touch and get their grief, you know, involved
physically.
So by touching people, actively participating in their
their person's experience,

(37:04):
it's
it's a powerful
tool for them, I think, to connect with
their in their grief later on.
Yeah. Can you share one of your success
stories for symptom management with aromatherapy?
Oh, yes. I have many, many, many stories,
but
I have some lovely ones with I have
worked with a woman that was having she

(37:26):
was really sensitive to touch and she was
having so much pain and stress and tension
and she was pretty much bedbound. And
we used her we tried aromatherapy
because she was so sensitive to touch that
massage wasn't working, and
her and I together created this beautiful
scented
lavender and floral

(37:47):
massage oil for her scalp
because she did love to have her head
touched. And she had no hair, so
we would warm up the oil and do
these beautiful
scalp treatments with this oil. And I showed
all of her her family and her caregivers
how to do that.
And she loved it so much, it became
her favorite thing. Anybody who would come in

(38:08):
her room, she would ask them to put
this oil on her head. And I feel
like that is something
I feel like they treasured as that they
took with them. That was lovely.
I had this great experience when I was
first designing the aromatherapy program.
And
I was working with, another woman in hospice

(38:31):
who was also a massage therapist,
and
her and I worked together for quite a
while. And she helped me really dig into
it. She loved it. She loved the program.
We would do these elaborate
foot baths
and create
different
aroma therapy. She had she loved nature and

(38:53):
the woods just like I do. And we
made one fragrance that was I think it
was oakmoss and blacks. It was very woody,
and it smelled just like the forest. And
Mhmm. She would take these hits of it
in in, I made her a little inhaler
when she was feeling,
like, trapped and and meditate. And when she

(39:14):
it would help her meditate, she would,
like,
breathe these you know, those, they look like
Vicks Vaporub used to make these little bullets.
Right? So I can Mhmm. Infuse
different essential oils into the wicks there. And
and, man, she loved it. She had a
whole collection of of different ones that we
made together to suit her different moods and

(39:35):
needs. And when she's feeling nauseous,
that's
another one. I can it it's great symptom
management
for things like nausea,
headaches,
roller balls. I had one woman who had
a horrible
pancreatic pain, and the meds she didn't wanna
get touch the meds. And,

(39:55):
I made her a roller ball with peppermint
oil, and it became her go to. It
was it was nice for her because she
could use it herself. She could apply it
like a PRN
and,
you know, as needed, any any time of
day. And she claims that it really, really
worked with her liver pain or her pancreatic
pain. And

(40:16):
I think that's great. I get to
experience
evidence of
how great these oils really are and how
folks can really be using them.
Oh gosh. What kind of scent works for
nausea?
My neighbor's husband has cancer, and he's been
battling nausea.
He Well eats the ginger chews. But what

(40:37):
kind of scent works for that?
I think peppermint
is great.
Sweet orange is actually,
nice too.
Also,
fennel.
That can be a good one.
That's great. So for constipation. I do also
a lot of abdominal work because they will
send me in there for,

(40:58):
bowel protocol. I'll do abdominal work and to
help keep things moving, and I usually use
essential oils. I'll use something like fennel or
ginger
or peppermint
to help with that. But peppermint is, the
go to for
for nausea.
Some people do like sweet orange. I like
spearmint too. Spearmint's one that it's good for

(41:20):
a type of,
like, when there's
reflux or burping
or
things like that kind of in your solar
plexus.
So when somebody has nausea, if you're gonna
do the peppermint,
where would you apply it? Like, if somebody's

(41:43):
experiencing I'm
I'm getting some professional tips for you from
you, from my neighbor's husband who's suffering right
now. He's not on hospice yet, but he's
suffering.
So peppermint, like, for nausea, where would you
apply that? Does it matter? Could you put
it on the forehead? The chlamydia is a
strong one. I stay away from the throat
unless you're putting it in a carrier oil.

(42:03):
Even olive oil isn't even a great carrier
oil, and that's probably in somebody's kitchen.
Put it in a carrier oil if you're
gonna put it on your thinner skin, but
I like to put it, down by your
diaphragm, your solar plexus,
under your sternum. There's
receptors there that that Okay. Can absorb it
better in that area.

(42:24):
And,
also, I love the inhalers.
I I love,
those little bullet inhalers,
because especially for nausea because you can
grab it.
It's a go to. You can take
as many breaths of it as you if
you want. You can just I've had people
just stick that thing right up their nose,
and

(42:47):
they just leave it there. But it people
claim it really, really helps. Write this down
right now. Yeah. Peppermint inhaler.
Writing this down.
Peppermint inhaler.
And the ginger is another one that's great.
If he's already doing the ginger chews, that's
that's perfect.
Orange sweet orange is another one that's good

(43:08):
for nausea.
Yeah. There's a there's a lot of things.
It's
gosh. It's such a
great program. I want to make sure I
cover the broad spectrum of it.
But, it's not I'm not a
I don't, I'm not making pure perfumes. It's
not I'm not an Avon lady. When I
go to somebody's house, I have a really
cute

(43:29):
little
kit that I bring with me, and and
I think that that's
really fun for people. I I they like
to make creations with me sometimes or or
with their family, and and that's fun. Sometimes
I'll do
I've done, like, a facial treatment.
I'm not an aesthetician.
I wasn't, you know,

(43:50):
popping any pimples or doing anything.
But I'm
applying a mask.
Hey. There's something really lovely about
being about painting on
honey onto somebody's
skin and
just how much they
I mean, honey or whatever. It's it's a
the act is very pleasing and soothing for

(44:11):
people,
and I do. I will paint their feet.
I have a lovely lady that I work
with with Alzheimer's, and she
gets
she gets so relaxed.
It's like her she starts the treatment always
just sitting there rigid, and she slowly,
like,
slowly leans in. I always make sure she

(44:32):
has lots of pillows behind her back. And
she will just
melt
because I and I'm painting,
clay onto her feet, and it's just and
the aromatics in the room are just lovely.
Oh, yeah. I got that. Do you do,
aromatherapy
for wounds?
Do you do aromatherapy
for, like, bad smelling wounds?

(44:55):
Oh,
well, I mean, there's ways we can manage
the aromatics in the room, but I would
not
would not dare try to treat a a
wound. I leave that to the doctor. Yeah.
No. Not on the wound, but Oh. Not
on the wound. Not to treat the wound,
but when a person has
you know, I've I've had lots of patients
who had

(45:15):
fungating breast cancer that smelled really bad or
other types of wounds that are really rotten
smelling or,
bed sores like Kennedy ulcers that start to
smell really, really bad, but, like, treating the
room with something. Treating the room. Diffusers are
great. I also think there's something to be
said about giving something a person that they

(45:36):
can a tool that they can use when
they feel like they need to use it.
If it's a I think the aromatic room
mist is great if we find the right
aroma for them.
Citrus is great for cutting that stuff and
mixing it. I like to mix it sometimes.
It sounds a little odd, but mix it
with a little eucalyptus or or something if

(45:56):
you
Mhmm. To,
Yeah. That doesn't sound no odd to me.
We used to have eucalyptus oil. We'd put
it in our mask before we did wound
care on
a on a foul smelling oil.
Yeah. That's
yeah. I remember what during COVID, I did
a lot of,
red time.
I was I had a diffuser in my

(46:18):
room, and I was just
all all day long
had it going because it is so,
antiviral.
It's good at cleaning air.
Red time.
Yeah. Red time.
That was my go to for my personal
go to for COVID.
Yeah.

(46:38):
You know, also,
I learned a lot with aromatherapy
and tension,
the different nervous tensions that people have and
anxieties,
finding aromas that will soothe them.
I found that, you know, lavender's great, but
not everybody loves lavender. It is I don't
love I don't like lavender.
I do like it because it's pretty animal

(47:00):
safe, and I have to be mindful of
that if, especially if I'm making a diffuser,
and I I need to be careful. I'm
not loading it with peppermint or Mhmm. Clove
or something that could be really irritating to
them to the animals.
But
yeah.
What were we talking about?
I knew we were talking about lavender.

(47:22):
Oh, yeah. Lavender's
lavender's not for everybody.
So finding other things that that can help
them.
Oh, Jasmine. I love Jasmine.
I've never really thought about it before, but
it's,
it's great for people with depression. It's great
for
it's it helps,
anything that's like aphrodisiac

(47:43):
or euphoric,
that really is
that's those I found to be really helpful
for if they can handle the floral bomb
of it all. I had one woman who
was, experiencing horrible pain when she was being
transferred, and I made her one of those
inhalers with Jasmine, and she would just snort
that thing.
Instead of screaming in pain,

(48:05):
she'd be pulling on that thing, and and
she loved it. So that's what I wanted
to come around to, giving somebody something that
they can
miss themselves or use themselves
or a tool that they can
have in their in their kit that's not
just morphine or
methadone or
it's it's

(48:25):
we're addressing all the different layers. It's very
holistic.
I I love that. Bringing more,
awareness into
into their space. And and it's a lot
of people. It's something they've never imagined before
that it would help them. But a lot
of people, you know, if you go up
into the high hills up here,
they've been working with this stuff forever. They've

(48:47):
the herbalism and the knowledge up there. I've
learned a lot from
from, some of the folks
that just grew up out in the woods
and with nature, and they've been working with
oils and herbs for
all their lives. It's there's something to it.
Sounds like the oils are just such a
great adjunct to

(49:08):
things like the comfort kit and the traditional
medicines, but also
the ability to give patients control
and to be able to evolve their family.
I love those stories of something you're giving
the caregivers and the family to be able
to participate in as well.
Yes. And it gives them a tool to
for them to use too that they can,

(49:28):
you know, oh, grandma, let me get your
oil or let's spritz or just
having something to do when it was at
times when you're
experiencing
your loved one's departure,
we all want to do something.
We all want to help them. We all
want to
I mean, most of us do.

(49:50):
And there are some people who are you
know, I'm there because nobody else wants to
touch the
person. And there's something about that too.
I don't have attachment to their history. I
don't have I don't know where what their
story is.
I remember one time I was working with
a gentleman and I don't know anything about
his background.

(50:11):
This was in the early days before I
had a lot of access to their charts
and their history.
One of the other teammates told me that
this man, if I wanted to opt out,
that that would be okay because this man
was evil,
like, evil.
And they emphasized this. And I thought,
you know, I think I I'm gonna choose

(50:32):
not to find out what this is about.
I don't want to know. Please don't tell
me because
everybody deserves compassion. Everybody deserves
to
I'm not
there I'm not there to, you know, for
them to confess anything. I'm just there to
rub their back
and try to make them their suffering a

(50:53):
little bit less. I don't know what their
yeah. So
it's not always,
the sweetest,
lovely, most lovely people. Sometimes there's sour, crotchety
assholes out there that, you know, they
they don't,
you know, part of the reason they're maybe
so crotchety and pissy too is because they've

(51:14):
been in pain their whole lives or they're
suffering from the thorn in the paw. And
and all of a sudden, they get some
relief. And somebody who comes through and offers
them some care and
and compassion,
that's that's great. Then then they Well, and
they're dying too. So people can be crotchety
when they're told that they're dying. That's a

(51:37):
Oh, yeah. That's a trigger.
That's a trigger.
Yeah.
I think that's always gonna be a trigger.
Even if we normalize hospice a bit more
and and death and dying,
We're all still
not really looking forward to it, right now.
Right. To live a lot of living to
do myself. I'm not ready to die yet,

(51:58):
but
who knows? Because like you say, someday, we'll
all be dead.
Mhmm.
I do wanna shift gears just a little
bit because I wanna be mindful of your
time, and I am a 1000% sure you
could tell us stories all day long. That
would be just incredible
from all the experiences you've had.
I do want to ask,

(52:19):
how do you handle
I think you've touched on this a little
bit in the self care. I know Penny
and I often hear,
oh, it must be so hard to do
your work. It must be so sad, and
you've touched on that a little bit.
How do you respond to folks that ask
you that and also how do you manage
your own self care
as you're going through this work with people?

(52:39):
Well, sometimes it's sad,
but, you know, sometimes it's joyful too.
And sometimes it's actually there's a lot of
laughter and there might be tears, but
sometimes,
it's not as heartbreaking
as you would assume.
And, you know, life there's a lot of
sadness in life. We all have to experience

(53:00):
it at some time. I just try not
to take it home with me. It does
affect me, but but I've learned lessons. I,
Palo Santo, that's my go to. I will
hotbox that in my car in between patients
sometimes
just to clear the energy
and right myself.
I take a lot of walks. I will

(53:21):
I'm not shy. I'm not I will stop,
drop, and hug a tree if I need
to. Nature is what heals me me and
soothes me and keeps me going.
Meditation,
that helps me a lot. I I take
a lot of saltwater baths.
I have my own rituals and routines. I
love a good fire. I will write stuff

(53:41):
down. You know, the thing I hate about
journaling is this sticks around. Like, I don't
wanna go back and read it, so I
throw that shit on the fire.
If I got some stuff to say, I'll
just get it out and burn it up.
Those are great examples. I love that. Yeah.
Yeah. Me too. Dancing,

(54:01):
music.
That music is a big one. I've had
some really funny scenarios where I've come out
of, like, an active death, and I get
in my car,
and I turn
on my, you know, my car and
the most absurd song will be playing.
And I just I have to I have

(54:21):
to, embrace that because that song was gonna
play in the you know, in that moment
regardless,
and I just I sometimes I love that.
It'll be ridiculous things playing in tears or
laughter or
joy. I, yeah, I love the experiences I
can have that of of all the different
kinds of emotions. It's not always just sad.

(54:44):
You know, because when you're in your dying
days, sometimes those days are not days. They
are months. They are years.
Sometimes they're years. And let's be real about
that.
You don't have to have every day be
a sad day. You can have, good days
in that time. I mean, really, let's make
the most of what we got, what we
got it, and,

(55:04):
you know, it's okay to be sad, but
it's doesn't have to be the only emotion
that you are capable of. And
and a lot of people stepping into somebody's
situation,
and when even they're just visiting, it's the
gravity of having every encounter that you that
you are having be so hefty is sometimes
let's just have some laughs and

(55:26):
check it up. You know?
I love
it. Is there anything that we didn't touch
on with in regards to massage and aromatherapy
that you want us to know or you
want listeners to know about that we didn't
talk about?
You know, I yeah. There's a lot I
could say, but now the pressure is on
for me to say it all right now.

(55:49):
Don't wait for one thing. Don't wait till
your last what you think are your last
days.
Get in there worthy and really
make use. Because like I said, I've seen
many times where people get so much relief
when they come into hospice that, you know,
all of a sudden, they feel better than
they felt in years, and they have this
energy to go out there and and

(56:12):
do things
and for, well, you know, for the time
that they have left. And that's
that's lovely.
And yeah. So, yeah, that's important. Get in
get out there and call if you need
to call or even if you suspect that
you need to call. Just try it because,
if if
it can be something that will serve you

(56:32):
well.
Yeah. What else could I say about it?
You could say a lot about it.
I mean, that's a great place to end
is if you're not sure, just pick up
the phone.
Right. And don't wait until you're dying.
Yeah. That's true.
Well, our new season 2 question

(56:53):
for all guests, I'm gonna ask you now,
this is our coffin question.
What have you thought about and what would
you like to happen with your body when
you die?
Oh, boy. I love that question.
Oh,
I want to decompose
very badly. I'm I used to think, oh,
when my options were limited back in the

(57:14):
day, I was pretty sure I didn't wanna
go in a cemetery with a stone.
But so everybody just automatically goes to cremation.
But now that I had there are so
many,
greater offerings. Yeah. Don't burn my body. Let's
dig me in the ground.
And now there are so many great companies
out there that are
really, grabbing this industry and

(57:36):
and creating this new opportunity for people. Yeah.
I wanna decompose.
Microbes,
worms,
bring it on. I want to interact with
the planet. You know? I want the planet
to experience me.
I love that. Love that. Love it.
I love that so much. From the Earth.
We came from the Earth. We go back

(57:58):
to the Earth. That's right.
I love that.
Now it and now it's officially,
out
there. I've said it out loud. So if
I don't have it on paper,
which I do,
you're on record.
Right. My sisters, all my loved ones. Tiana,
we're
thank you so much for being with us.

(58:19):
Where can folks find you?
Oh, well,
you know, when I want to be found,
which, there are some things coming up in
my future that are yet to be seen.
And I would say, keep an eye out
for me on Instagram
and the links. If we can provide some
links for my website, then there are some

(58:41):
exciting posts to Absolutely.
Verizon,
Alright. And They will all be in the
show notes.
That's great. Tiana, what's the
Tiana, what's your username for Instagram?
Well, stay tuned for more.
I will
I haven't set it up yet.
I'm a very private person. I like to

(59:02):
be in hiding. So I'm I'm in the
process of
dipping my toe in the water.
So, I'm sorry. Time this episode releases, we'll
have some more things to add to the
show notes.
Yeah. That's great.
That's a that's great. Perfect.
Alright. Thank you, Tiana.
Thank you.

(59:24):
Alright. Well, now we know much more about
aromatherapy
and massage and Reiki now
Yes. In the world of hospice.
Yeah. Do you have thoughts about any of
this?
I,
actually, I really liked that she was talking
about how she approaches
people
because she doesn't have the

(59:45):
the table. They don't have to get undressed.
They don't have to get up on the
table and Mhmm. You know, so I think
that was,
a really good point. You know, people shy
away from
accepting massage therapy when they're homebound because they
don't want to have to, you know, get
naked and climb on a table and that's
not what it's about. She really meets people
where they're at. Also, lots of information about

(01:00:06):
the aromatherapy.
Before we before we talked with her, you
know, you and I talked about aromatherapy
and my thoughts were really it's about
getting the odor down when there's a tumor.
That's where my brain goes as a nurse
and having, you know, experienced
those really
melodorous
Yeah.
Tumors.
It didn't occur to me that that it

(01:00:27):
could even be helpful for nausea. So that's
something that I thought was was really valuable
that I'm gonna
take to my neighbor
for her husband who's been really suffering
with Yeah. Nausea and vomiting. I think, couple
of things we didn't really get time to
talk get into with the massage
was when I know we use and and

(01:00:47):
request massage for things like edema.
Yeah. Lymphedema.
Mhmm. Lymphatic massage. Yep. Yep. That's something that's
that's really important
because we do have situations where people really
get that edema in their legs. They can't
even walk. It's weeping. They can't even in
their arms, especially if they've had a mastectomy.

(01:01:08):
We've had some just
absolutely life changing results
with some of our massage therapists and folks
with little tree trunk legs
and barely being able to walk. And then,
I mean, it really does feel miraculous that
they're able to actually function
with this massage.
Yeah.

(01:01:28):
It is very beneficial. I I wish it
was something that
Medicare would be able to reimburse for
outside of what they only pay us right
now so that more hospice agencies could could
have it. You know, like, we do not
employ,
at my agency, we do not employ,
comfort therapists.
We have comfort therapists who are volunteers,

(01:01:50):
and so it's it's very limited how much
we can provide to people. Yeah. I think
it's, like, 3 massages during their hospice stay
is all that we're able to give them,
and that's very limited depending on do we
have any, volunteers that are available at that
time.
So Yeah. And and I mean, like ours,
I'm sure a lot of hospices also use
foundations,

(01:02:10):
to to cover the cost. So Yes. Yep.
Ours too. It's important if,
foundations for people who who don't know is
that many hospices
that are nonprofits
will have foundations
that
raise money to be able to pay for
certain things that we can't pay for, because

(01:02:31):
of the low amount that Medicare pays.
Mhmm.
So if it if it's in your spirit
to give, by all means, look for your
local hospice
foundation.
Yeah. Absolutely. Paying for the hospice. Medicare is
paying for us or your insurance coverage, but,
really, that foundation is all that extra support,
exactly all the things we were talking about
today. So please do that.

(01:02:53):
For Tiana,
we will put in the show notes her
links, but she,
very
adequately told us don't Google her because there
are multiple Tiana Joys in the world.
So she will be using
mystery tree as her official. That's her company
name. That's what her Instagram will be. So
if you're looking for Tiana Joy in the

(01:03:14):
Internet,
it may not be the one that you're
looking for, so be careful
about that. Right. Yes. Just go to the
links in our our show notes.
Mhmm.
Alright. Well, until next time.
I'm gonna be going to get a massage
soon.
Oh, that's the other thing. Like, sitting here
I mean, listening to her talk about all

(01:03:36):
these different things that she does, I was
just like,
oh, man, that sounds so
good. Like the the head massage with the
oils. I was like,
sounds so good. I know. Just listening to
it. I was like, oh, man, painting the
clay on the feet, the honey on the
feet. I'm just like, give it all to
me. Sounded really good.

(01:03:58):
But, yeah,
it's all
it all sounds good. I think I need
to make an appointment.
Yes. Well, that'll be, while you're remembering to
live because someday
Well, I'll be dead.

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Season 2, Episode 10: Stimulating the Senses; Hospice massage and aromatherapy

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