Episode 132: The Power of Choice: Nick Palmer on Declining Transplant and Choosing Quality of Life

In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Nick Palmer, who shares his extraordinary journey of living with chronic kidney disease (CKD) and focal segmental glomerulosclerosis (FSGS). Diagnosed at just 19 years old, Nick opens up about navigating the complex realities of kidney disease as a young adult—balancing university, a demanding career, and the emotional toll of a condition that would require multiple transplants and ongoing dialysis.

 

With unflinching honesty, Nick reflects on his decision to decline a third kidney transplant and instead embrace home nocturnal dialysis—a choice that profoundly improved his quality of life, restored his sense of independence, and helped him reclaim control of his health. He discusses the impact of this decision on his mental well-being, family life, and career, and how it ultimately allowed him to thrive in ways he never expected.

 

Nick’s story challenges traditional narratives around kidney treatment, shining a light on the importance of patient choice, education, and mental health advocacy in chronic illness care. This episode is a must-listen for anyone navigating kidney disease, healthcare professionals, or anyone seeking inspiration from a story of resilience and informed self-advocacy.

 

Key topics include:

• Living with FSGS and the impact of early diagnosis

• The emotional and physical toll of dialysis in early adulthood

• The recurrence of FSGS post-transplant

• Choosing nocturnal dialysis and the profound benefits for quality of life

• Mental health, self-advocacy, and redefining what it means to live fully with CKD

 

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In this powerful and informative episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined once again by the insightful and compassionate Dr. Hannah, an experienced transplant surgeon. Building on their previous conversation, Dr. Hannah returns to share expert guidance and essential strategies for navigating the complex journey of kidney disease—from diagnosis to transplantation and life beyond.

 

This episode is a must-listen for anyone affected by kidney disease, offering a comprehensive look at renal replacement therapy. Dr. Hannah breaks down the key differences between dialysis and transplantation, and highlights the importance of preparation, planning, and patient empowerment. Listeners will gain valuable knowledge about preemptive transpla