Everything You Know About Disability Is Wrong

Jillian Curwin, Director of Communications for the Mascots Matter Campaign, is an advocate, storyteller, and content creator reshaping the conversation around disability, access, and representation. In this episode of Everything You Know About Disability Is Wrong, she joins hosts Lily Newton and Erin Hawley for an insightful discussion.

Jillian shares her experience as a little person navigating an often inaccessible world,...

Kyla and Jedidiah Mora are a neurodivergent couple, writers, and advocates. They are the authors of “Today My Brain Is a Dinosaur,” a popular children’s book that helps kids understand autism, ADHD, and different ways of thinking.  Their journey started with their own diagnoses of autism and ADHD as adults. After years of confusion and challenges, they found clarity, self-acceptance, and a desire to help others feel less a...

Tiffany Yu is a disability advocate, entrepreneur, and author of The Anti-Ableist Manifesto. She started her career at Goldman Sachs before becoming a leader in disability inclusion.  

After acquiring a disability as a child, she struggled with loneliness and self-doubt. Over time, she turned her experiences into advocacy and founded Diversability, a community that celebrates disability pride and fights stigma.  

She...

Experiencing the world isn’t just about sight, it's about tasting, touching, hearing, and smelling, too. Using all our senses helps us connect more deeply to the world around us.

Dr. Hoby Wedler is a chemist, entrepreneur, and advocate for inclusivity. He holds a Ph.D. in physical organic chemistry from UC Davis and founded the Wedland Group to explore how our senses shape emotions and connections. He creates unique foo...

"Just because you can’t see it, doesn’t mean it’s not real."

Onyinye Udokporo, CEO and founder of Enrich Learning, dives into a conversation that’s both eye-opening and deeply personal, exploring the differences between UK and US disability cultures. From how each country approaches accessibility and support to the ways people talk about neurodivergence, it’s clear that culture shapes the disability experience in ways w...

Richard Jacobs is a dedicated gamer and member of the esports team QuadGods. He discusses his journey of resilience, the pivotal role gaming plays in his life, and the misconceptions he faces as a disabled individual.

Richard shares about the power of community and how his streaming “family” has allowed him to harness his competitive spirit and embrace his emotions. 

Key Moments

13:32 - Inspiration and belonging.

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Humor can educate and challenge, but it must highlight issues without mocking the disability community. In this episode, we explore how satire can play into advocacy and ask, “What exactly makes good satire?”. 

Steven Verdile, Founder of Squeaky Wheel Media, shares his insights on the critical intersection of disability and content creation. Steven discusses the significance of focusing on specific issues, particularly thos...

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.

Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdia...

Your co-hosts Lily Newton and Erin Hawley return with a candid "Just Between Us" segment on this episode of Everything You Know. They discuss the importance of authentic storytelling in media, using recent casting choices in "Wicked" and Disney adaptations as a jumping-off point. The hosts explore why representation isn’t enough without real inclusion and the need for self-accommodation to destigmatize accessibility. Lily ...

Advocacy is not just about raising awareness; it’s about creating real change.

Madison Tevlin is an actor, Host, Model, and Advocate. She is known for her impactful work in the "Assume That I Can" campaign for World Down Syndrome Day and her role in "Champions" alongside Woody Harrelson. Madison shares her wonderful journey and passion for music and storytelling.

Madison talks about her upcoming podcast, "21 Question...

Humor is a bridge to understanding; it transforms conversations about disability into moments of connection.

Pamela Schuller is a passionate disability advocate and stand-up comedian. Pamela shares her journey with Tourette syndrome and how humor has helped her tackle tough conversations about disabilities.

Pamela opens up about finding the right balance between vulnerability and oversharing, the challenges of accomm...

Rachel Lowenstein, Founder and Culture Expert at Rachel Lowenstein Consulting and Divergent Convergent, joins Lily Newton and Erin Hawley on the show. Rachel talks about why neuro-inclusion is a crucial part of workplace accessibility and how her work with Divergent Convergent is making a difference. 

Rachel also opens up about her own experiences with finding her true identity, avoiding burnout, and shifting from a cor...

"The journey of self-acceptance is ongoing and deeply personal."

Jennifer Gasner, author of *My Unexpected Life: Finding Balance Beyond My Diagnosis*,

shares her journey of self-acceptance and understanding of her own identity. She explores the importance of supportive workplaces, the power of tell your own story, and addressing misconceptions about disability.

Jennifer also highlights her personal growth in accepting...

Author and Activist, Lauren Melissa, shares a powerful story of resilience and creativity. Diagnosed with autism in her twenties, Lauren Melissa turned the challenges of the COVID-19 pandemic into an opportunity, hand-writing a novel that was later accepted by Bold Strokes Books. 

Based in New York City, she passionately advocates for the representation of queer, BIPOC, and disabled individuals in fiction, bringing to l...

"I don't concern myself with what they get wrong. I like to just show up as myself and then let any preconceived notion, if there is any, flow like, float away”

Oliver Scheier, is a 19-year-old filmmaker, artist, and sophomore in college. Oliver discusses his approach to authenticity in both his work and personal life. He shares insights on his short film "Read a Page," his journey as a young artist, and how he navigate...

Your co-hosts Erin & Lily have a special in-person segment for the first time ever on the podcast. They Kick things off by discussing the significance of Disability Pride Month and the joys of creating content together as friends who are both disabled.

They also discuss some light-hearted topics like newfound interests—Erin’s evolving relationship with pizza and Lily’s dive into the world of fantasy books, including...

In this episode, hosts Erin and Lily interview Jenna Bainbridge, an actress, singer, and accessibility advocate. Jenna shares her journey as the first wheelchair user to perform in a new musical on Broadway, debuting in the award-winning "Suffs." She discusses her career and daily life as an ambulatory wheelchair user, challenging misconceptions and emphasizing the importance of accessibility and personal freedom.

Jenna...

Your co-hosts Erin & Lily have a special segment today called “Just Between Us!” Today’s episode is all about the importance of Disability Pride Month. They share their thoughts on why it's crucial to celebrate being disabled and not just focus on ableism. Erin & Lily also discuss how pride in their identities as disabled people and as friends empowers them. 

We hope you enjoy today’s real (and unfiltered) episo...

Amanda McGrory, a four-time Paralympian and seven-time Paralympic medalist shares her journey as an elite athlete. She addresses the pervasive stereotypes and misconceptions surrounding disabled athletes and how they are often misrepresented in the media.

Throughout the conversation, the importance of authentic representation in media and sports is highlighted, focusing on the significance of community support. She disc...