Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

Episodes

Tarsus plans to purchase Alkeus, developer of emerging Stargardt treatment

August 24, 2026 • 3 mins
Tarsus Pharmaceuticals announced plans to acquire Alkeus Pharmaceuticals, including its emerging oral treatment for Stargardt disease, gildeuretinol (ALK-001), in a deal valued up to $800 million. Stargardt disease is the most common form of inherited macular degeneration and is often diagnosed in children or teens. There are no current treatments.
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PRIMA retinal implant restores sight in patients with geographic atrophy from AMD

August 19, 2026 • 3 mins
In Europe, Science Corporation has commercially launched PRIMA, a retinal implant designed to restore central vision in people with geographic atrophy (GA). The treatment has been shown in clinical trials to restore functional central vision in people with GA who until now had no way to get lost central vision back. While PRIMA is available in Europe, it is still going through FDA approvals in the U.S. Geographic atrophy is an adva...
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FDA accepts new drug application, prioritizes review for potential Stargardt treatment

August 14, 2026 • 4 mins
Belite Bio’s tinlarebant could become the first-ever approved treatment for Stargardt disease
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Eye on the Cure Podcast | Episode 102: What is Venture Philanthropy?

August 5, 2026 • 30 mins
Dr. Alicia Kemble explains how the Foundation is using venture philanthropy to drive treatments for inherited retinal diseases even closer to the finish line.
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Sepul Bio completes clinical trial enrollment for its USH2A retinitis pigmentosa treatment

July 24, 2026 • 3 mins
Sepul Bio recently announced that it completed enrollment of its Phase 2b safety and efficacy clinical trial for ultevursen – an investigational RNA therapy to treat patients who have retinitis pigmentosa (RP) associated with mutations in the USH2A gene.
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FDA approves Lumvoa, a new treatment for thyroid eye disease

July 15, 2026 • 5 mins
FDA approves Lumvoa, a new treatment for thyroid eye disease by Foundation Fighting Blindness
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Belite Bio submits new drug application to FDA for its Stargardt treatment

July 6, 2026 • 3 mins
Belite Bio submits new drug application to FDA for its Stargardt treatment by Foundation Fighting Blindness
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Eye on the Cure Podcast | Episode 101: Dr. Patrick Staropoli

July 1, 2026 • 42 mins
New host Maddie Mossman interviews retinal surgeon Dr. Staropoli, the first medical doctor to win a NASCAR race.
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Potential Oral Stargardt Treatment Advances to Phase 3 Clinical Trial

June 18, 2026 • 4 mins
Promising oral treatment moves closer for Stargardt patients.
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Foundation Fighting Blindness Celebrates Bennett, Maguire, and High's Breakthrough Prize for Revolutionary Gene Therapy

May 11, 2026 • 4 mins
2020 Llura Liggett Gund Award recipient honored for pioneering gene therapy that transformed vision research
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Atsena Therapeutics Advances to Pivotal Phase 3 Trial for X-Linked Retinoschisis

April 21, 2026 • 3 mins
Data monitoring committee recommends proceeding with registration-enabling study for ATSN-201
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MeiraGTx Announces the Acquisition of Botaretigene Sparoparvovec (bota-vec) for the Treatment of X-linked Retinitis Pigmentosa (XLRP)

April 16, 2026 • 3 mins
MeiraGTx Announces the Acquisition of Botaretigene Sparoparvovec (bota-vec) for the Treatment of X-linked Retinitis Pigmentosa (XLRP) by Foundation Fighting Blindness
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Opus Genetics Secures $155 Million Financing to Accelerate Gene Therapy Pipeline

April 8, 2026 • 2 mins
Strategic funding extends cash runway through 2029 and advances multiple inherited retinal disease programs
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VeonGen Reports Promising Clinical Progress for Stargardt Disease Gene Therapy

March 26, 2026 • 2 mins
VG801 shows sustained vision improvements through 12 months with favorable safety profile
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Sumitomo Pharma Receives FDA Orphan Drug Designation for Retinitis Pigmentosa Treatment

March 24, 2026 • 2 mins
Potential cell therapy, DSP-3077, gains special regulatory status to support development for inherited retinal disease.
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Octant Bio Begins Clinical Testing Oral Treatment for Rhodopsin-Related Retinitis Pigmentosa

March 11, 2026 • 2 mins
First-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP
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Opus Genetics Reports Promising Early Results from BEST1 Gene Therapy Trial

March 2, 2026 • 2 mins
First patient shows vision improvements with a good safety profile.
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Eye on the Cure Podcast | Episode 100: BEST OF

February 27, 2026 • 35 mins
To celebrate episode 100 of Eye on the Cure, host Ben Shaberman features highlights from conversations with some of his previous guests including: Dr. Dean Bok from UCLA, Dr. Michel Michaelides from Moorfields Eye Hospital, actor Ben Mehl, triathlete Michael Stone, and jazz keyboardist Matthew Whitaker. This "Best Of" episode is Ben's final for Eye on the Cure, but the podcast will continue on with a new host. Stay tuned!
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SparingVision Completes Dosing in Gene-Agnostic Therapy Trial for Retinitis Pigmentosa (RP)

February 11, 2026 • 2 mins
Novel neuroprotective approach could benefit RP patients regardless of genetic mutation
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Blind & Beyond Radio Spotlight: Jason Menzo on Vision Research and Advocacy

February 8, 2026 • 15 mins
Listen to the latest episode of the Blind & Beyond radio show featuring Foundation Fighting Blindness CEO Jason Menzo. Jason discusses the Foundation's mission and the remarkable progress achieved over the past 55 years in advancing diagnostics, treatments, and cures for blinding diseases. He also shares insights into ongoing advocacy efforts on Capitol Hill to preserve critical vision research funding through the FDA and ...
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