Foundation Fighting Blindness
The Foundation Fighting Blindness is committed to finding treatments and cures for blinding retinal diseases that affect more than 10 million people in the United States. To learn more, go to FightingBlindness.org.
Episodes
September 18, 2023 • 3 mins
Ocugen Reports Updated Results for Clinical Trial of Modifier Gene Therapy by Foundation Fighting Blindness
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September 15, 2023 • 31 mins
David Birch, PhD, at the Retina Foundation of the Southwest in Dallas, talks to host Ben Shaberman about his productive and impactful 40-plus-year career as a retinal disease researcher and clinical trial investigator. Dr. Birch also discusses the challenges and opportunities for advancing more therapies through trials and out to the people who need them.
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September 7, 2023 • 1 min
Opus was established by the RD Fund, the Foundation’s venture philanthropy arm
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September 1, 2023 • 23 mins
September 1, 2023. Brendan Creemer talks to host Ben Shaberman about how he is taking on the diagnosis of Usher syndrome 1F by dedicating his education and career to becoming a researcher for retinal disease treatments and cures.
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August 31, 2023 • 3 mins
First cohort of patients has been dosed in Phase 1/2 clinical trial taking place in Pittsburgh and Paris
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August 28, 2023 • 3 mins
The AAV.SPR gene delivery system used in the trial is designed to more safely reach targeted retinal cells
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August 25, 2023 • 3 mins
Known as antisense oligonucleotides, the treatments performed encouragingly in ProQR’s clinical trials
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August 18, 2023 • 38 mins
Artur Cideciyan, PhD, one of the world’s foremost authorities in measuring vision and structural changes in people with retinal diseases, talks with host Ben Shaberman about current imaging tools, functional tests, and his experience as an investigator in several prominent clinical trials at the University of Pennsylvania, Scheie Eye Institute.
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July 21, 2023 • 32 mins
Rachel Huckfeldt, MD, PhD, a clinical researcher and assistant professor of ophthalmology at Mass Eye and Ear, talks with host Ben Shaberman about caring for patients with inherited retinal diseases (IRD), the challenges and opportunities with clinical trials, and the educational and professional journey that led her to the IRD research field.
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July 12, 2023 • 3 mins
The emerging RNA therapy is designed to boost expression of the PRPF31 protein
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June 30, 2023 • 28 mins
Alex Cohen, PhD, a marketing professor with retinitis pigmentosa, talks with host Ben Shaberman about his career in the hospitality industry and launch of Accessible Pharmacy, a comprehensive pharmacy service for people with vision loss.
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June 16, 2023 • 22 mins
Jami Kern, PhD, chief clinical officer at Nacuity Pharmaceuticals, talks with host Ben Shaberman about NACA, the company's emerging gene-agnostic therapy for Usher syndrome and retinitis pigmentosa in a Phase 2 clinical trial in Australia. Their conversation includes a discussion about oxidative stress, which NACA is designed to mitigate, and timing for the efficacy readout from the Phase 2 study.
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June 2, 2023 • 23 mins
Kari Branham, a genetic counselor with Kellog Eye Center at the University of Michigan, talks to host Ben Shaberman about a variety of topics related to genetic testing and counseling for people with inherited retinal diseases. Their conversation includes discussion of: common misconceptions about genetic testing, variants of unknown significance, when re-testing makes sense, and when and if family members should be tested.
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June 1, 2023 • 2 mins
The company is expanding the trial to enroll younger patients with less advanced disease
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May 19, 2023 • 18 mins
Aaron Osborne, MD, chief medical officer and chief development officer at Nanoscope Therapeutics, talks about vision restoration in clinical trials of the company's optogenetic therapy for people with advanced vision loss from retinitis pigmentosa and Stargardt disease.
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Known as The Lighthouse Study, the Phase 1/2 trial is expected to begin in mid-2023
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During his Proctor Award Lecture, Dr. Pierce reviewed encouraging clinical trial results for Editas’ CRISPR/Cas9 treatment for people with LCA10
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April 28, 2023 • 5 mins
News | Budd Tucker Honored with Award for Advancements in Retinal Therapy Development by Foundation Fighting Blindness
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April 28, 2023 • 31 mins
April 28, 2023. Henry Klassen, MD, PhD, co-founder of jCyte and clinical researcher at UC Irvine, talks to host Ben Shaberman about jCyte's clinical trial results and future plans for developing its cell-based therapy for preserving vision caused by retinitis pigmentosa, Usher syndrome, and related retinal conditions.
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Clinical trial participants with advanced vision loss from RP were able to identify fruits and vegetables
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