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September 30, 2021 42 mins

Steve and Sheena Zent discuss their experience as parents who love and have lost a fragile child, their continuing advocacy for other fragile children, and increasing awareness of Menkes Disease which took their son's life at the age of three. Each year they celebrate Nolan's life by hosting a community event where hundreds gather to walk and support fragile children and the families who care for them.  All proceeds will support the services provided at A Rosie Place for Children.  

Learn more about the 2021 Nolan‘s Menkes March event at https://www.facebook.com/events/164296755734841

Register for or Donate to the 2021 Nolan‘s Menkes March at  www.givegrove.com/nolans-menkes-2021/

Learn more about A Rosie Place at www.arosieplace.org

 

 

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