In today’s episode you’ll get to hear from Fano and Francesca, the proud parents of a beautiful 4yr old girl named, Sienna. Sienna was born with HLHS which stands for Hypoplastic Left Heart Syndrome. HLHS causes the left side of the heart to be underdeveloped. Thankfully it has a good prognosis with the help of multiple surgeries including an open heart surgery that usually occurs when a baby is just a few days old. Sienna was doing really well until their entire family got sick with the flu in December of 2022 and it hit Sienna the hardest. Sienna was taken to the hospital while sick with the flu and was diagnosed with severe heart failure. Sienna has not left the hospital since that day. Next week will mark the 2 year anniversary of Sienna being inpatient while awaiting a heart transplant. Fano and Francesca share their heart wrenching account of being told multiple times that Sienna had been perfectly matched with a donor heart only to have something fall through including a donor family rescinding their offer while Sienna was in surgery. I learned so much from this conversation and I know that you will too. This was a first for me on the podcast as I’ve never had anyone discuss a pediatric heart failure story. This conversation had me audibly choked up in the end but I’m so grateful for these incredible parents for sharing Sienna’s story.
For more information on organ donation please visit unos.org. To read some incredible donor and transplant stories filled with hope please visit donorconnect.life.
To follow Sienna's journey on Instagram follow @wholeheartedlysienna
You can also follow me on instagram @hillarysheart
This episode is listener supported! If you have been encouraged by this podcast please consider becoming a monthly supporter for as little as $3/month by clicking the link below:
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Today is a gift!
🫀, Hillary
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