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April 9, 2025 25 mins

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Are you struggling to navigate the complex world of Medicaid and disability benefits? You're not alone. For many individuals with disabilities and their families, understanding the maze of waivers, eligibility requirements, and available resources can be overwhelming.

Navigating the Medicaid Waiver System

  • The challenges of accessing and understanding state-specific waivers
  • Practical tips for finding accurate information and helpful resources
  • Why it's crucial to verify information, even from official sources

Advocating for Disability Rights

  • The importance of the SSI Restoration Act and SSI Savings Penalty Elimination Act
  • How current asset and income limits create barriers for people with disabilities
  • Ways you can support these crucial legislative changes

Breaking Down Stigma and Misconceptions

  • Why living with stigma can be more challenging than the disability itself
  • Strategies for educating others and changing perceptions
  • The power of representation in media and politics

Whether you're directly affected by disability or simply want to be a better ally, this episode is packed with valuable information and actionable advice. Devon's passion for creating a more inclusive world shines through as she shares resources, personal anecdotes, and hope for the future.

Don't miss out on:

  • Essential websites and tools for understanding Medicaid waivers in your state
  • Recommended movies and books that offer insight into disability experiences
  • How to get involved and make a difference in disability rights advocacy

Are you ready to become a more informed and empowered advocate for yourself or your loved ones? Let's get savvy about Medicaid, waivers, and disability rights together!

Resources:

Wheel With It

State Medicaid and Waivers - CMS

Many people who qualify for waiver services are not even aware that they exist. Families struggle alone, to provide care- creating economic, physical, and emotional strain. States do not educate people about these programs, and it is often only through crisis that people realize help is available. 

Patrice the Movie

Patrice the Movie – Take Action

Hillbilly Elegy – The Book

Medicaidwaiver.org

Google Community Service Board Near Me or Use Your Zip Code

Health First Colorado – Medicaid Program

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