Katie Prentiss | The Slow Goodbye: Mother Loss with Frontotemporal Dementia

This week, I sit down with Katie Prentiss, a filmmaker, actress, and caregiver who transformed her most profound loss into a powerful creative mission. Katie shares her raw and inspiring journey of caring for her mother through frontotemporal dementia (FTD), a challenging form of dementia that impacts personality and communication far differently than traditional memory-loss conditions.

At the age of 62, Katie's mother, Maggie, passed away from FTD. Through our conversation, we follow Maggie's transition from caregiver to actress and the filmmaking of her debut film, "Wake Up Maggie," hoping to raise awareness about dementia and caregiving.  

Katie beautifully describes grief as a "slow goodbye." She shares transformative perspectives, saying that grief doesn't have to have the final word and that facing fear can become a pathway to clarity and purpose. And, my favorite: the sun is always shining above the clouds, even when we can't see it. 

Katie has had to learn how to embrace life fully, knowing the genetic uncertainty of FTD, following the diagnosis of another family member. But she's already learned how creative expression is a healing outlet and the importance of viewing midlife as an unraveling. 

Key Takeaways:

• Understanding the unique challenges of frontotemporal dementia.
• The emotional landscape of caregiving for a parent with a progressive illness.
• How grief can be a catalyst for personal transformation.
• The power of creative expression in processing loss.

RESOURCES:

• Movie | "Wake Up Maggie"
• IMDb
• IG | Wake Up Maggie

CONNECT WITH KATIE:

• Website
• IG
• FB
• YouTube

Send Victoria a text message!

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NEED HELP?

• National Suicide Prevention Lifeline: 1-800-273-8255
• Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor

If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.

CONNECT WITH VICTORIA:

• Instagram
• Website
• LinkedIn
• Facebook

This episode is sponsored by Do Grief Differently™️, my twelve-week, one-on-one, in-person/online program for grievers who have suffered any type of loss to feel better. Click here to learn new tools, grief education, and the only evidence-based method for moving beyond the pain of grief.

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