A transcript is available online
Sickle cell disease is an inherited disorder of the blood protein hemoglobin. It has multiple ways to impact the health of someone with the disease ��� with a hallmark symptom being excruciating chronic pain. The vast majority of people with sickle cell trait and sickle cell disease are Black. Until relatively recently, there has been only one drug to treat the disease.
On this week's program, host Se��n Collins talks with Dr. Titilope Fasipe, co-director of the Sickle Cell and Thalassemia Program at Texas Children's Cancer and Hematology Center in Houston about advances in both the treatment of sickle cell disease and progress toward a cure.
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Co-Director
Sickle Cell & Thalassemia Program
Texas Children's Cancer & Hematology Center
Assistant Professor
Pediatrics & Hematology/Oncology
Baylor College of Medicine
Houston, Texas
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To produce this episode, we collected stories from people living with sickle cell disease. These interviews are excerpted in this podcast episode and we invite you to listen to more of the conversations by following the links below.��
Andre Marcel Harris speaks with his sister Alexis Harris
Sijaama Branch talking with producer Scott Acord
Heather Avant in conversation with her cousin Dr. Bria Davis ����
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To learn more:
A full list of resources is available on our website
Sickle Cell & Thalasemmia Program �� (Texas Children's)
A ���Narcotics Contract��� for a Patient With Sickle Cell Disease ����Pediatrics / (the "care-seeking" article)��
Building access to care in adult sickle cell disease ��Blood Advances
Cure Sickle Cell Initiative ��NIH
Sickle Cell Gene Therapy Education Project �� NIH
Addressing SCD: A Strategic Plan and Blueprint for Action �� NASEM
A Review of Sickle Cell Disease (and Reply) JAMA
Hospital Use and Mortality in Transition-Aged Patients With Sickle Cell Disease ��Hospital Pediatrics
Still seeking balance in opioid management for acute sickle cell disease pain ����Pediatric Blood & Cancer
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