In this episode of Humans of Authenticity, host Vy Le interviews Joe Lindahl, the Chief Executive Officer of Mission MSA. Joe discusses the rare disease multiple system atrophy (MSA), which affects an estimated 15,000 to 50,000 people in the U.S. He highlights the organization's mission to raise awareness, support research and advocate for patients. Joe shares his journey in the association sector, the challenges of raising awareness for a little-known disease, and the importance of patient-centric approaches in healthcare. He also touches upon the emotional and logistical struggles MSA patients face, the organization's global outreach efforts, and the impact of meaningful work on both a professional and personal level.
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