IBDetermined
Created to discuss living with Crohn's disease and made for adults, kids, teens, and families to encourage them to find ways to overcome obstacles, small and large. We will invite guests from multiple perspectives to give us insight on how they have handled challenges and what they did to get through them. Some episodes will focus on open and honest discussions about Crohn's disease from a caregiver and patient perspective. We will talk to others with IBD, chronic illnesses, and life changing situations people have learned to navigate. Hosted by a mom and son duo who had their lives flipped upside down with a severe Crohn's disease diagnosis. They are living their best lives and helping others survive and thrive by creating awareness and finding empowerment.
Episodes
Welcome to S4 episode 16! As we head towards the end of 2025, we wanted to cover IBD breakthroughs, treatment developments and other stories that were in the news. We felt these stories were important to share because a lot of times there are click bait stories out there that can be misleading. But most of all we think it is important to share the hope, support, and direction research is heading! We included links for...
Welcome to S4 episode 15! It is IBD Awareness week but also a shorter show. We both ended up with colds but we didn't want to miss a podcast on such an important week. Use this week to tell your story, to raise awareness, and to find support! Feel free to comment and share your own stories with IBD! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we...
Welcome to S4 episode 14! We know there is a lot to consider with IBD on a normal day. We know the holidays is even more demanding and our goal is to discuss common problems and offer solutions. This disease is never fair and it isn't right that you should have to have more stress during this time of the year. Our holiday guide will help prepare you so you can sail into the holidays and hopefully enjoy "the ...
Welcome to S4 episode 13! This time of year brings out a lot of questions about IBD and getting through cold and flu season. We go over risks of getting sick, treatments, ways we minimize risk, and things to consider if you have IBD. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness.
S4 Episode 12 - Michelle is Volunteer of the Year & more about the Crohn's & Colitis Foundation Gala
Welcome to S4 episode 12! Michelle was honored by the local Crohn's and Colitis Foundation as the Volunteer of the Year at the Champions of Hope Gala. We go over the hope and inspiration we left with, tell you who we met, who was honored, and everything else about the wonderful night! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some att...
Welcome to S4 episode 11! Mental health is so important for anyone. For IBD patients, they sometimes have more appointments, treatments, and procedures than the average person. A lot of time these situations can create anxiety. Today we go over several methods you can do anywhere, to help relieve and reduce anxiety and stress. Anyone can use these and we hope you find them helpful! We are family friendly and want our ...
S4 Episode 10 - Thanks to a new initiative, hospitalizations and emergency room visits are 50% down!
Welcome to S4 episode 10! The Crohn's and Colitis Foundation recently released a news article about their initiative and study that has decreased hospitalizations and emergency room visits. It is all about working together and coming up with early intervention at the clinics. These tools have been tried and tested and are now available to other clinics! Very exciting! We are family friendly and want our audience ...
Welcome to S4 episode 9! Today we discuss what we have noticed, our experiences, and our ideas with organizations that are intended to help chronically ill children. These organizations are phenomenal and we sure would love to see more IBD kiddos be recognized! Most of all, we want you to know your disease isn't invisible, you are a warrior, and we see you! We are family friendly and want our audience to be invol...
Welcome to S4 episode 8! It is so important to learn more about biologics o we can ask educated questions when we meet with a GI. We have heard about similarities between Tremfya, Stelara, and Skyrizi. Today, we go over all of them to better help you understand the options out there to treat IBD. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring s...
Welcome to S4 episode 7! After 5 years of infusions, we wanted to share our tips and tricks on what to bring, what to ask for, and what to expect at an infusion. Our tips will bring comfort and ideas to make an infusion a little better! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic illness...
Welcome to S4 episode 6! There have been so many times we wished we could help infusion patients, newly diagnosed IBD patients (or various other diagnoses!), and also thank blood donors. We think we found a way we can do all those things with Karmatude Clips. These will be donated and 100% free to patients! We can't wait to hear what you think! We are family friendly and want our audience to be involved! Listen t...
Welcome to S4 episode 5! There was an article that was on social media and had been sent to me by a few friends. We wanted to go further than the headline to see what this article actually meant for those who suffer from IBD. The article was called, "Scientists discover network of cells and and genes involved in Crohn's disease complications." The link to it is: https://www.broadinstitute.org/news/scien...
Welcome to S4 episode 4! There has been a lot of talk about using ChatGPT to evaluate lab results, medical pictures and even help diagnose patients. We put it to the test and asked 10 questions about IBD to determine how accurate and helpful ChatGPT and Google AI really are. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some ...
Welcome to S4 episode 3! We have discussed the physical aspects of this disease along with the financial burdens of IBD. Today we go more into the unwanted and unfair mental burdens placed on both the patient and caregivers. Our hope is to show you aren't alone and offer the ways we help navigate the challenges we also face. We are family friendly and want our audience to be involved! Listen together, separately,...
Welcome to S4 episode 2! We have had a busy week and wanted to share the good news that Mason is graduating. To be clear (since I am not sure how clear we are in the podcast), Mason was one year ahead in school prior to his Crohn's disease diagnosis. After diagnosis, he gained another year so he ended up graduating two years early. His path isn't for everyone but we hope you find inspiration or validation in...
Welcome to S4 episode1! After 75 episodes, we have officially entered season 4 of our podcast. It is a very proud moment for both of us and we are so hopeful this podcast is helpful to you. Today we discuss Lego and how they can help with hospital stays, being unwell, and how they are used for therapy. Lego helped Mason through some tough times and continues to do so! We are so excited to share news about how Mason re...
Welcome to S3 episode 201! We go over how our appeals went and are happy to share that we won this round. However we know the fight isn't over and we are hoping to testify before congress or share this story. We aren't alone in this and there are so many who are forced to make changes based on what insurance wants, not what the doctor wants. We are family friendly and want our audience to be involved! Listen...
Welcome to S3 episode 20! We are facing a treatment change by insurance against Mason's doctor's wishes. It has been a fight with pharmacists, health solutions, and insurance to do what is right and let Mason remain on what is working for him, not what will save money. Our hope is change will happen because step therapy and "try and fail" tactics are heart breaking and so difficult for patients.We ...
Welcome to S3 episode 19! How many times have you caught yourself trying to figure out what caused your Crohn's disease or Ulcerative Colitis? There are the scientific ideas, then there is what you can google and find. A lot of people think it is something they did and we are here to tell you to stop blaming yourself. IBD is still a mystery in so many ways but we go over what google AI tells us it is and debunk a...
S3 Episode 18 - The Reggie Project and how we can help you raise awareness for any health challenge!
Welcome to S3 episode 18! Today we revisit the Reggie Project. We would love to have any of you participate and really help us provide a place where you have a platform and a voice for whatever chronic illness or disease you wish to discuss. We go over the ways we can help you raise awareness and get your message out there. We truly want to create a community of awareness and support with the help of Reggie! We are fa...
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