IBDetermined
Created to discuss living with Crohn's disease and made for adults, kids, teens, and families to encourage them to find ways to overcome obstacles, small and large. We will invite guests from multiple perspectives to give us insight on how they have handled challenges and what they did to get through them. Some episodes will focus on open and honest discussions about Crohn's disease from a caregiver and patient perspective. We will talk to others with IBD, chronic illnesses, and life changing situations people have learned to navigate. Hosted by a mom and son duo who had their lives flipped upside down with a severe Crohn's disease diagnosis. They are living their best lives and helping others survive and thrive by creating awareness and finding empowerment.
Episodes
As most of our listeners might know, there is that familiar moment of panic, despair, frustration when things change. It can happen overnight and in a matter of minutes. And sometimes it is hard to know what is going on, no matter how many flares you have had before. Things have been challenging the past few weeks and we wanted to be honest as a caregiver/parent and patient/teen on what these moments of uncertainty ...
We briefly discuss our newest book and talk about a few of the stories we included. We wanted to share a story of where Mason found support and how those new friendships both helped to heal him, but also encouraged him to want to be that support for others. Finding support can be found in so many different ways and it is very important for roller coaster diseases like IBD. We are family friendly and want our audienc...
Sometimes it is interesting to see what other patients are searching. It helps give you an idea of similar concerns or questions as well as alerts you to new articles out there. We decided to do a search and go over them as we find them. It was interesting to see what you all are asking! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some att...
We just published our second book and we are really hoping it helps patients reframe their outlooks. How you choose to grieve, to celebrate, to handle a diagnosis, is your choice. But we wanted to share what has helped Mason and us (as his parents and caregivers) find ways to continue to find joy and see the silver linings to live life to the fullest. We are family friendly and want our audience to be involved! List...
Even though Mason isn't quite to moving to adult care yet, we realize listeners might be at different ages. Some might be adults, while some might be very early onset. We wanted to sit down and go over the ways you can begin to think and prepare for moving to adult care. This disease is difficult on adults, and can be even more daunting for a teen going to college or working a first job. We hope our tips help ease t...
Reggie is back! Today we finally reveal the name of our new children's book and the second one in the series. It took around 8 months and we are so proud to tell you all about it! Join us as we take you through the process of a book we can't wait to share with all of you! We hope you enjoy this episode as much as we enjoyed researching it! We are family friendly and want our audience to be involved! Listen together,...
We are finally back to our short series on treatments and biologics. Today we go over the expenses associated with developing and manufacturing a biologic. We might not like the prices but it is important to understand if we ever hope to make changes that benefit everyone. We hope you enjoy this episode as much as we enjoyed researching it! We are family friendly and want our audience to be involved! Listen together...
We have discussed the difficulty of outside opinions and judgement with IBD. Today we read an anonymous letter we received from a "neighbor". Might have been well-intended but the advice was dangerous. We discuss the ways you can support and help patients when offering advice but mainly are her to say we get it, we see you, and we know the opinions can be so frustrating. We are family friendly and want our audience ...
Today is a big day for the IBDetermined podcast family. You have made it with us to our 100th episode! We never had any idea how many podcasts we would create and we sure are happy we have made it to the big 100. We are also excited to keep going and continue to make podcasts! Join us as we reminisce and make a special announcement just for our listeners. We are family friendly and want our audience to be involved! ...
On today's episode we are continuing a series on better understanding biologics and expensive treatments. Today we are covering the reasons bioscience companies and pharmaceutical companies are accused of not wanting a cure. We examine why these claims are being made, how accurate they are, and why some people just don't trust them. We are family friendly and want our audience to be involved! Listen together, separa...
On today's episode we are beginning a series on better understanding biologics and expensive treatments. Our hope is to create more awareness and hopefully spark change and understanding. We begin this series by going over a brief history of how treatments have changed over the past 20 years, which wasn't too long ago! We are family friendly and want our audience to be involved! Listen together, separately, but ulti...
On today's episode we go over a recent article from the Crohn's & Colitis Foundation. It is about a study and how step therapy affects young adults in particular. It is helpful to better understand how to help young adults facing the challenges of step therapy. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well des...
On today's episode we discuss what Calprotectin tests are, how the scores work, and why your results might be a clue as to where your inflammation is located. Mason discusses his most recent results and why he is no longer in lab remission. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chronic i...
We discuss a book called "Immune: A Journey Into the Mysterious System That Keeps You Alive" by Philipp Dettmer. We highly recommend it for anyone but it was particularly interesting to us as we made connections to the IBD world. And we have more exciting news about jumping spiders. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attentio...
Having IBD can be scary and confusing. When you have to make decisions it is easy to be afraid of the unknown. We go over how we help ease those fears so we can make good decisions that are based on facts. We hope our techniques might help you empower yourself and make the best decisions for your health! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope ...
Welcome to Season 5 Episode 1! We are excited to start a new season in the new year. We wanted to kick it off with a topic and question we hear about often, is Crohn's curable? But then we got to thinking what a cure would look like. We go further into both topics and hope you find some hope in learning how the future of this disease is changing and what that could look like! We are family friendly and want our audi...
Welcome to S4 episode 17! Mason got to pick what he wanted to end the year and final season 4 with and he chose Christmas movies. We sometimes do Christmas Day throughout the year. When Mason is having a tough time we watch Christmas movies, bake, do whatever we can to enjoy the joy the holiday brings him. Enjoy his list of Christmas movies the whole family can watch together. He wanted to share in case any of you a...
Welcome to S4 episode 16! As we head towards the end of 2025, we wanted to cover IBD breakthroughs, treatment developments and other stories that were in the news. We felt these stories were important to share because a lot of times there are click bait stories out there that can be misleading. But most of all we think it is important to share the hope, support, and direction research is heading! We included links f...
Welcome to S4 episode 15! It is IBD Awareness week but also a shorter show. We both ended up with colds but we didn't want to miss a podcast on such an important week. Use this week to tell your story, to raise awareness, and to find support! Feel free to comment and share your own stories with IBD! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we br...
Welcome to S4 episode 14! We know there is a lot to consider with IBD on a normal day. We know the holidays is even more demanding and our goal is to discuss common problems and offer solutions. This disease is never fair and it isn't right that you should have to have more stress during this time of the year. Our holiday guide will help prepare you so you can sail into the holidays and hopefully enjoy "the most won...
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