What About Those Who Love and Help Care for Vestibular Patients?

Living with and supporting someone with a chronic illness can be challenging. First off, we'd like to give a big shout out to all the spouses, parents, friends, and other “care partners” out there who selflessly adapt their lives around the restrictions imposed by their loved one’s vestibular illness. Aborted family events, staying home instead of going out for dinner and a movie, and lots of medical appointments are just some of the complications you might face. On top of that, there is the worry - will your loved one ever get better? The guilt - could you be doing more to reduce your loved one’s burden? And, let’s face it, the exhaustion - when can you take time to care for yourself? Care partners often spend so much time and energy focused on their loved one’s needs, they often sacrifice their own. In this episode of the ICU - "I See You" podcast, we’d like to shine the light on these unsung heroes, and offer them a moment to reflect on what self-care might look like for them.

This podcast is a co-production of the Vestibular Disorders Association (VeDA) and Unfixed Media. https://unfixedmedia.com/

If you are or know a care partner who has been along side their loved one in their vestibular journey, please invite them to join VeDA's "Supporting Loved Ones" support group at https://vestibular.org/members/slovedonessggmail-com/

About the Guests:
Katie Willard Virant is a psychotherapist living in St. Louis.  She sees clients in therapy and writes for Psychology Today about chronic illness.  She is a graduate of the Brown School of Social Work at Washington University in St. Louis and of the St. Louis Psychoanalytic Institute’s Advanced Psychodynamic Psychotherapy program. She works with adults, adolescents and children on a variety of issues, including loss and grief, life transitions, and living with chronic illness.

Christina Mullins: Christina has been married for seven years and is a mother to two children, ages 7 and 5. She enjoys hiking, skiing, traveling, and cherishing moments of fun with her kids. Four years ago, her husband was diagnosed with Ménière's disease, and since then, he has also been diagnosed with Ankylosing Spondylitis, vestibular migraines, and Persistent Postural-Perceptual Dizziness (PPPD). Despite these challenges, Christina remains committed to her family and her passion for helping others.  Professionally, she is a licensed clinical social worker in a middle school setting, where she dedicates her career to supporting students and their well-being. Additionally, she has started a blog called Sunshine Parenting in Chronic Weather, where she shares her experiences and insights on being a spouse and parent while navigating the complexities of chronic illness.

Hosts:
Cynthia Ryan, Executive Director of the Vestibular Disorders Association (VeDA) https://vestibular.org/

Kimberly Warner, Founder and Director of Unfixed Media https://unfixedmedia.com/

VeDA relies on your support to help vestibular patients on their journey to find a life rebalanced. You can make a real difference by making a donation at https://vestibular.org/donate/

If you are experiencing vertigo, tinnitus, dizziness, imbalance, brain fog, or other balance-related symptoms, VeDA may be able to help. To learn more about vestibular conditions and get help finding a diagnosis, treatment, coping tools, and support visit https://vestibular.org/

For help finding a vestibular healthcare provider visit https://vestibular.org/healthcare-directory/

If you are a vestibular healthcare professional and want to reach more patients, join VeDA's Healthcare Provider Directory by becoming a member at https://vestibular.org/article/resources-for-professionals/professional-membership/. Additional benefits include patient education articles you can brand with your logo.

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