IG Living Advocate Podcast
IG Living Advocate podcast connects you to get your questions answered from experts on a variety of topics related to living with a chronic illness. IG Living is the only magazine for the immune globulin (IG) community comprised of patients who suffer from chronic illness and their caregivers. www.igliving.com/life-with-ig/ig-living-advocate-podcast.html
Episodes
Listen to the episode Rethinking Immunodeficiency hosted by patient advocate Abbie Cornett. In this episode, we'll be exploring how what we traditionally call immunodeficiency is actually part of a larger spectrum of immune dysregulation. Our guest today, Dr. Kobayashi, is a clinical professor at the University of California, Los Angeles, School of Medicine, and is an expert in diagnosing and managing complex immune disorders.
In today's episode, Living Well with Chronic Illness, we'll be exploring how lifestyle medicine can help soothe symptoms and support healing. Our guest today, Sharleen Lucas, is the RN next door health coach. She's passionate about helping people soothe ongoing symptoms associated with chronic illness so they can live fully. After eight years at the hospital bedside, she became a health writer and coach to help peopl...
This podcast is sponsored by CSL Behring, manufacturer of Hizentra, subcutaneous immune globulin.
In this episode, we will discuss Melaine's journey with PI, from her experience with IVIG, to her switch to subcutaneous IG, and what that meant in terms of self-administering her treatment at home. Melaine enjoys cycling, gardening, travel and she's also living with primary immunodeficiency or PI. Melaine will be sharin...
IG Living's patient advocate, Abbie Cornett, hosts Nick Burrus, a Kawasaki disease patient, to discuss his journey with the disease that due to a delayed diagnosis led to complications and the need for a heart transplant.
Today, I have the great pleasure of inviting one of my dear friends from when I was in the legislature. Shannon Anderson is an attorney who specializes in public advocacy and risk management. Her dog Neely, though, could care less about all of that. Shannon keeps a steady supply of wholesome treats on hand, and is committed not only to regular walks but adventure walks and, most importantly, has arranged for important therapy work ...
In this episode, we will discuss how to stay positive and refuse to let your illness define you. Today, we have as our guest speaker Debbie Konrad. Debbie is a cancer survivor and common variable immunodeficiency (CVID) patient who refuses to allow chronic conditions to limit or define her. Debbie is a dynamic individual with a diverse background. Since 1990, she has owned and operated her own drapery business. She also taught bal...
In this episode, we will discuss the intersection between politics, healthcare and chronic illness.
Today, we have guest speaker Peggy Tighe. Peggy is a prominent figure in healthcare policy and lobbying. With a juris doctorate degree from Delaware Law and a bachelor of arts from Wittenberg University, Peggy has dedicated her career to understanding the challenges faced by health systems, patient groups and provider organizations. H...
In this episode, we will discuss the intricate process of producing immune globulin products, hereafter referred to as IG products.
Today, we have guest speaker Keith Berman. Keith has worked in the plasma therapeutics and blood therapies industry in a career spanning over three decades. He holds a bachelor’s degree in biological science from UC Berkeley, an MBA in marketing and an MPH in health services management from UCLA.
Beginni...
In this episode, we will discuss the differences between the role of patient advocacy and self-advocacy. Today, we have guest speaker Megan Ryan. Megan is a 1998 graduate of Texas A&M University where she earned a Bachelor's of Business Administration in business analysis and business honors after graduating from Texas A&M
Today, we have guest speaker Dr. Brett Kettelhut. Dr. Kettelhut is board certified in pediatrics, allergy and immunology. He is currently practicing allergy and immunology at Boys Town, Neb., and is an adjunct clinical professor in the College of Medicine at the University of Nebraska Medical Center. Dr. Kellelhut also serves as the president of the Nebraska Academy of Allergy, Asthma and Immunology.
This podcast is brought to you by IG Living magazine to give readers an opportunity to hear from healthcare experts on topics important to them. In this episode, we will be talking about one of the most important steps in patients’ journeys to diagnosis: their primary care doctor!
Today, we have guest speaker Dr. Lisa Allen-Khalil. Dr. Khalil received her medical degree from the University of Nebraska College of Medicine....
In this episode, Abbie Cornett will be talking about the issues geriatric primary immunodeficiency patients face when accessing care.
In this episode, we will be talking about changes in Medicare and how they affect patients treated with IG products. Today, we have with us guest expert Leslie Vaughan, chief operations officer for Nufactor, a Specialty Pharmacy. Leslie has been a licensed pharmacist since 1990 and has spent the majority of her career in the home infusion specialty pharmacy space with a specific focus on IG products. Her expertise is in both clinic...
In this episode, we will be talking about how to successfully exercise with a chronic illness. Today, we have with us guest speaker Matt Hansen. Matt has a clinical background in physical therapy with a specialty in chronic health conditions. He is a passionate advocate for population health and holistic care who believes when recipients of care are a partner in the process and the center of every decision made, true and lasting di...
In this episode, we will cover some of the ways patients with a chronic illness can plan for retirement. We would like to thank our readers who wrote in with questions regarding today’s topic
This is a very important topic for patients because it can directly impact the quality of their later years of life. If you are like many Americans, you may not be preparing for retirement. A survey conducted by Money magazine in 2016 found o...
In this first episode, we will be talking about the increased demand for immune globulin (IG) products and its effect on patient access. This is our first podcast episode of IG Living Advocate and a transition from our Readers Teleconferences. With this podcast, we have an opportunity for our readers to hear from healthcare experts on topics important to them.
In this first episode, we will be talking about the increased demand for...
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