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March 12, 2025 7 mins
Enduring the tumultuous journey of heart condition diagnosis and treatment led me, Jeff Holden, to realize the profound need for a supportive community and reliable information. Reflecting on my own experiences, from the initial confusion and misdiagnosis to the breakthrough testing and subsequent surgery at Stanford, I've been driven to share insights that can empower others in similar situations. This episode marks a significant milestone with the release of my new book, Imperfect Heart: Stories of Myocardial Bridges, a tangible resource aimed at providing solace and understanding to those who prefer something beyond digital content. Through patient stories and expert interviews, I've assembled a wealth of knowledge that addresses the myriad challenges faced by patients, families, and healthcare professionals alike. Together with the relentless dedication of our Facebook group participants, the administrators, Rob and Stephanie, and the rest of the team, our community has flourished, expanding from 1,200 to over 2,600 members in just two years. This growth underscores our collective mission to raise awareness and foster understanding of heart conditions. It also emphasizes the need for a book as well. My hope is that this book will serve as an invaluable tool not only for individuals grappling with their diagnosis but also for medical professionals who need a deeper grasp of patient experiences. By sharing these narratives and insights, I aim to reach those who aren't digitally inclined and provide a cornerstone of support that bridges gaps in communication and knowledge across all fronts. Now we finally have... a book, the book, my book. Get your copy of Imperfect Heart:Stories of Myocardial Bridges HERE.
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