When you have a child diagnosed with any illness, you can only hope your efforts don’t require a lifetime commitment. The hope is for a short-lived illness that comes with a diagnosis followed by a cure. For former MassBio President, Bob Coughlin, he has lived through the in utero cystic fibrosis diagnosis of his son, Bobby, the physical challenges of caring for a young CF patient, and the constant involvement as a CF patient advocate raising awareness and all-important research money. Also, a time where CF treatments improved allowing Bobby to enjoy his teen years, finish high school, graduate college and begin his professional career. Despite this progress Bob has not remained stagnant and continues to advocate for patients with CF and other unmet medical needs. He also never stopped plying his most important role as his son’s caregiver where he remains committed, passionate, and always involved. Bob is joined on the podcast, Charlotte McKee, M.D., Chief Medical Officer of Sionna Therapeutics, a clinical stage biopharmaceutical company, developing therapeutics to treat cystic fibrosis.
To learn more, visit insickness.org.
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